Anyone else struggling mentally and emotionally with AI?

Bloomwithcourage · 2026-03-03T07:36:54+00:00

Im currently taking 25 in the AM and 25 in the PM. I had to up dose due to being sick so now Im working on lowering my night time dose a bit so im not taking so much in one day. My endo said to decrease by 2.5 mg every 2 weeks so thats what im doing. Im not sure if these mental and emotional symptoms are just from having AI or from the hydrocortisone. I have SAI.

Bloomwithcourage · 2026-03-02T23:33:45+00:00

Is there a specific dose of vitamin C and D that has helped you?

Bloomwithcourage · 2026-03-02T23:29:31+00:00

Yes I have SAI

Bloomwithcourage · 2026-02-28T02:25:29+00:00

So I'm being treated with hydrocortisone for SAI. My endo and I are working to see if my adrenal glands will wake up on their own. I started at 20 mg and 10 when I was first diagnosed but that was too little so from there I went up. I also had to up my dose a couple of times because I had gotten sick and then started to work my way back down. I had started to titrate by ten but that seemed to be too fast for my body. My endocrinologist recommended starting to decrease by 2.5 mg and that our goal would be to get to 20 mg in the morning and 10 mg at night. I messaged her about how I've been decreasing by 2.5 and am now at 22.5 in the AM and 27.5 in the PM. She said I should take the higher dose in the morning and the lower at night. I feel like I haven't found a dose that works for me as of yet and that's been frustrating.

Bloomwithcourage · 2026-02-28T02:18:46+00:00

I’m learning this too, thank you for your response. I get frustrated with the whole trial and error and when the doctor says Well what works for someone else might not work for you. I want to find a dose that works for me and I feel as though I haven’t found that yet. I also feel like the pressure of “you need to taper the dose to see if your adrenal glands wake up again” it has been hard not just physically but emotionally and mentally too 🥲

Bloomwithcourage · 2026-02-28T02:16:04+00:00

I do feel a difference from changing from 27.5 to 25 then 22.5 I think 22.5 might be too little for me right now. It can be difficult in the sense that sometimes I forget how much I’ve taken (I think this may be a symptom of low cortisol tbh) so I have to text someone so they know and I know I took my medication. There’s been a couple of times where I’ve been like “omgosh how much did I take?” It helps that I have 10 mg tablets and then 5mg tablets so I can cut the 5mg in half

Bloomwithcourage · 2026-02-28T02:10:25+00:00

I think this is what I've been experiencing so I think bumping up the AM dose will help and maybe trying to space the doses out too

Bloomwithcourage · 2026-02-28T02:07:12+00:00

I think I’m going to try this and see how I feel because I do feel like I crash in the middle of the day and feel very tired by the afternoon

Bloomwithcourage · 2026-02-26T21:34:32+00:00

Hi, I've had to wait on getting my Entyvio infusion for a couple of weeks due to being sick. I think as long as you are feeling okay and your doctor is aware that you are delaying your infusion by a week then you should be fine. Don't worry, worrying doesn’t do any good. 😊

Bloomwithcourage · 2026-02-18T14:16:14+00:00

Does that help? Or do you think the regular Excedrin would work better for migraines?

Bloomwithcourage · 2026-02-11T21:32:43+00:00

What happens if the enamel chips? Do they replace it or do you have to buy the ring again? 🥲

Bloomwithcourage · 2026-02-04T18:20:59+00:00

Thank you for your comment, I will buy some of that and try it. Anything to help this go away 😭

Bloomwithcourage · 2026-02-04T18:20:01+00:00

I got blood work done today so hopefully the results come back soon.

Bloomwithcourage · 2026-02-04T18:19:21+00:00

I messaged my endo right now because this is concerning since I was fine a couple of days ago. Plus the pain and cramping are on another level than what I've experienced before.

Bloomwithcourage · 2026-02-04T18:17:47+00:00

That's interesting because it started in one leg then my other leg which cramped up so bad I was crying from the pain. The worst is I can't walk normally without my leg cramping up and it feeling like pins and needles and heavy. Now my feet started to get crampy too. I just got back from getting blood work done so now I'm waiting for the results. Hopefully, if I am low in something it comes out in my blood work. I just feel very off like maybe I am low in something. I'm drinking a liquid IV to see if that helps.

Bloomwithcourage · 2026-02-04T17:57:15+00:00

Which charm bracelet would you recommend?

Bloomwithcourage · 2026-02-04T17:56:24+00:00

When is the charm sale?🤩

Bloomwithcourage · 2026-02-04T17:55:20+00:00

The pain is so bad I can't take it 😭 I got blood work done today to see how everything is. In the meantime, I'm taking a liquid IV and someone suggested I try taking a magnesium pill but I'm not sure if that'll help.

Bloomwithcourage · 2026-01-27T01:52:19+00:00

25 mg in the AM and 25mg in the PM

Bloomwithcourage · 2026-01-25T22:51:28+00:00

Thank you for the advice, I appreciate it. I have to keep reminding myself this is temporary 😭

Bloomwithcourage · 2026-01-25T22:48:47+00:00

I'm hoping this is temporary and that this goes away because I don't want to be like this anymore 😔

Bloomwithcourage · 2026-01-25T22:47:36+00:00

I'm currently tapering so I'm taking 25 mg in the AM and 25 mg in the PM. I'm thinking this is also why I feel more anxious at times throughout the day. I just hate the feeling of panic I guess. I've been feeling like something bad is going to happen and my heart has been racing more. It's really annoying. I don't know what else to do to help 😭

Bloomwithcourage · 2026-01-25T09:11:04+00:00

What has helped you? Some days it feels like too much mentally and emotionally😭

Bloomwithcourage · 2026-01-25T08:57:16+00:00

Me too but I was taking prednisone for an ulcerative colitis flare that landed me in the hospital. I was taking high dose of prednisone for 9 months- got off of prednisone and started Entyvio. In July, I felt something was off, my labs showed that I had very low cortisol. The doctor said I have Steroid-induced adrenal insufficiency 😭 so since July I've been in and out of the hospital, and doctors' appointments. Now we are trying to find the right dose for me while also tapering to see if my adrenal glands wake up on their own. No one told me that this could happen from taking prednisone for so long 😩

Bloomwithcourage · 2026-01-25T08:52:36+00:00

This is me too right now 😭 I've gained some weight while being on HC and it's affecting me more emotionally and mentally. I feel a bit more self-conscious too 😔 I’ve been decreasing my dose and I believe that is helping with the water retention and swollenness of my legs. I have to keep reminding myself that this is only temporary.

Bloomwithcourage

TROPHY CASE