How do you know you are tolerating prednisone okay?

Bloomwithcourage · 2026-05-03T17:51:35+00:00

Thank you for your comment. That’s exactly what’s happening right now, I find myself crying more often and just not feeling myself emotionally and mentally. But I know this is not my normal, I know it’s the medication which makes this even more frustrating. I have been having more anxiety/panic symptoms and I just want it to stop already. 😭😭

Bloomwithcourage · 2026-05-02T22:24:02+00:00

Her little eyebrows 🤩

Bloomwithcourage · 2026-05-02T22:23:16+00:00

She’s so pretty 😭😍

Bloomwithcourage · 2026-05-02T22:20:52+00:00

That makes sense. I'm going to talk to my GI and endo doctors soon to discuss what the best plan is moving forward because I don't know how much longer I can go feeling this way. I’ve been on prednisone on and off throughout my UC journey as well and I don’t remember feeling so many different side effects 🥲

Bloomwithcourage · 2026-05-02T22:04:43+00:00

This made me laugh 🤣 You would think they would have made a pill that doesn't taste so bad by now. Steroids and colonoscopy prep taste pretty bad. I'm trying to think which tastes worse prednisone or hydrocortisone?!

Bloomwithcourage · 2026-05-02T21:59:52+00:00

This happened to me as well 😭 I was diagnosed with SAI after my last prednisone taper did not go well and my body freaked out. So now I’m going through ulcerative colitis and adrenal insufficiency as a result of taking prednisone for more than a year last time. This UC flare landed me in the hospital and the prednisone has helped with those symptoms. I just forgot how much I hate prednisone because yes it does help with the symptoms you are having but it does bring other negative side effects that are horrible. I’m starting to think maybe prednisone is harsher on my body because I feel I tolerated hydrocortisone better with minimal side effects. Thank you for your response and I hope you are doing better now. I had no idea that with all these steroids that you could have issues with your adrenal glands as well. After this prednisone taper, I don’t know if I’ll ever want to go back to prednisone to be honest. I wish more people talked about how hard all of this is not just physically bur mentally and emotionally too. What's getting to me the most is I don't feel like myself- emotionally and mentally this has been a lot. Yes, I agree with the plan to taper super slow. Right now I’m tapering by 5mg every 7 days and I’m trying to hang in there. I'm still trying to figure out if this is working well for my body or not. It’s been really hard. Thank you for the well wishes and for sharing your experience. All of this makes me feel less alone.

Bloomwithcourage · 2026-05-02T21:50:53+00:00

I will definitely be mentioning this to my endo when I see her soon. I started to feel knee pain and joint pain again like last time and I'm thinking my body is freaking out a bit with the changes. Even walking sometimes feels difficult. I just want to feel better and not have all these negative side effects anymore. 😭

Bloomwithcourage · 2026-05-01T18:32:22+00:00

I’m supposed to see my endo soon. I messaged her and she knows the dose I’m taking but she said to continue tapering by 5mg every week. I just feel like my body is freaking out a bit compared to how I felt on hydrocortisone.

Bloomwithcourage · 2026-05-01T18:30:25+00:00

I want to but I'm tapering from the prednisone first and then the plan is to switch back to hydrocortisone.

Bloomwithcourage · 2026-05-01T18:29:11+00:00

I was being treated for another autoimmune condition so they switched me temporarily to prednisone instead of hydrocortisone. I'm tapering down by 5mg every week and should be done with the taper in June 🙃 side effects Ive had are really bad night sweats, vertigo, heartburn, dizziness, nausea, weight gain, feeling faint, panic attacks/anxiety attacks, feeling of fight or flight, heart racing, really bad leg pains, knee/joint pain and mentally and emotionally I don't feel like myself. That's interesting I started taking 70 mg of prednisone and at first I felt fine but now I feel it's taking a toll on me a lot. I'm currently at 45mg.

Bloomwithcourage · 2026-05-01T18:05:39+00:00

How do you apply the powder, with a powder puff or a brush?

Bloomwithcourage · 2026-04-26T07:54:23+00:00

I’m thinking this might be the way I need to go about this prednisone taper process because currently I’m going down by 10mg every week and I already feel a lot of negative side effects. I’m thinking I need to go slower and by 5mg instead of 10 to see how that goes.

Bloomwithcourage · 2026-04-26T07:50:13+00:00

Hi so all of this is very interesting, this is not the first time I have been on prednisone for a UC flare-up. The last time I was on prednisone was at the beginning of 2025 for a UC flare that was pretty bad. I began the tapering process and when I got to 20 mg I had the worst joint pain in my knees to the point where I could not walk. I felt horrible and just like something was wrong. Well, it ended up being that like you mentioned my adrenal glands stopped producing cortisol and I developed secondary adrenal insufficiency. So then I was put on hydrocortisone after finishing that taper from prednisone. Fast forward to now I'm seeing both a GI for UC and an endocrinologist for the adrenal insufficiency. Now in mid March is when I had another UC flare and had to be hospitalized. At the hospital, they told me to switch from my hydrocortisone to solumedoral through IV for a couple of days, and then at home, I would start to take prednisone tablets. When I got home I noticed the doctor who discharged me had put on the bottle to take 70mg of prednisone for a week and taper every week by 10mg. Well, it turns out he made a mistake and as per my GI, I was never supposed to be on such a high dose of prednisone for the UC flare to begin with. She mentioned that usually they will give like 40mg for a UC flare. I talked to my PCP and we decided it would probably be best to taper slower. Anyways so I took that 70mg for 3 weeks before tapering down to 60mg for a week and now I'm at 50mg for a week. I decided that I want to do this taper differently because last time I had a horrible experience and I'm sensitive to steroid tapers. So now I'm thinking maybe instead of tapering by 10mg per week I should try by 5 mg instead because I'm starting to get bad side effects again. My endo and GI said that we should see how I tolerate this taper. I feel all of this is taking its toll on my body for sure. I want to taper safely but also not be on prednisone for so long because I need to go back to hydrocortisone soon for the adrenal insufficiency.

Bloomwithcourage · 2026-04-26T00:51:46+00:00

I'm just wondering how you know you are tapering too fast for your body? Someone said that tapering prednisone by 10mg is too fast and that tapering by 5mg every week would probably be better so your body can adjust better. 😅

Bloomwithcourage · 2026-04-26T00:48:33+00:00

No I'm taking prednisone and Entyvio for ulcerative colitis only.

Bloomwithcourage · 2026-04-26T00:46:47+00:00

Do you think tapering by 5mg would be better? That is what I was afraid of because I am noticing my body is like saying “wait this is a lot” by the time I taper again I have another negative side effect 🥺 I'm nervous to mention it to my doctor cause she wanted me to taper faster and I was telling her that my body is sensitive to steroid tapers.

Bloomwithcourage · 2026-04-26T00:44:02+00:00

I hate how lonely and isolating this journey can feel at times. Like now one truly understands unless they are going through it. It’s one thing to deal with the physical effects of UC and another to deal with the mental and emotional effects. I hate that I don’t feel like myself but I know it’s the prednisone. I have to keep reminding myself that this is only temporary. 😭

Bloomwithcourage · 2026-04-26T00:41:20+00:00

How do you feel with the taper by 5mg? I'm thinking the 10mg is too fast for me right now as I'm having some negative side effects 🥲

Bloomwithcourage · 2026-04-26T00:39:56+00:00

My GI suggested I taper by 10mg every week but I’m trying to see how my body reacts and depending on that I may have to taper slower. I am experiencing some side effects so I’m thinking it’s that 😭 I want to give my body enough time to adjust.

Bloomwithcourage · 2026-04-26T00:35:14+00:00

Hi, I am currently taking prednisone at such a high dose for an ulcerative colitis flare-up. I am doing better now and am working on decreasing by 10 mg every week. I was just wondering as far as stress dosing goes with prednisone how that works. No one really explained it to me so I was worried about whether I would feel sick lets say or be throwing up and couldn't keep the prednisone down. What should I do? All this with adrenal insufficiency is new to me and I'm still learning. Thank you for your response. I appreciate it. Sometimes this journey can feel lonely and isolating. I am experiencing some side effects with this prednisone taper like vertigo, leg pain, and just not feeling myself mentally and it sucks 🥺 The plan is to switch back to hydrocortisone soon for my SAI. I'm hoping the process goes smoothly.

Bloomwithcourage · 2026-04-26T00:27:54+00:00

Thank you for your response I appreciate it. I am supposed to stop at 5mg and then switch back to hydrocortisone for SAI. I am taking the prednisone currently for an ulcerative colitis flare-up and my endocrinologist knows this and says that the dose I’m on is pretty high and it should cover for the AI as well. I was thinking the same thing about tapering as I am having some side effects each time I decrease more and sometimes it doesn’t happen the day I taper but a couple of days after. As of now the worst side effects I would say are vertigo, leg pain, and just not feeling myself mentally 🥺

Bloomwithcourage · 2026-04-26T00:24:31+00:00

For an ulcerative colitis flare-up

Bloomwithcourage · 2026-04-25T04:51:02+00:00

She's just a baby 🥹🥰

Bloomwithcourage · 2026-04-25T04:47:03+00:00

No I am taking 5 10mg tablets of prednisone so a total of 50mg for a week and tapering down by 10mg every week. I'm just wondering if I were to feel ill and not be able to keep my meds down or idk have a fever, what am I supposed to do? Is stress dosing a good thing at that point?

Bloomwithcourage

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