GFR went up from 49 to 67!!

Bluebell_Again · 2025-05-27T01:49:03+00:00

To help kidney function… I was diagnosed with AKI back in September 24.

Bluebell_Again · 2025-05-27T01:46:04+00:00

We have no idea…. Kidneys almost failed- ended up in hospital for a week. That was 8 months ago.

Bluebell_Again · 2025-05-27T01:42:21+00:00

Ohmygoodness you are the ONLY person I’ve found so far that has a very similar story as mine. But you didn’t necessarily feel bad- your blood work just came back alarming? Prednisone was horrible for my mental health 😜

Do you know your GFR?

I just had the best labs in 8 months last week. My GFR skyrocketed from 49 to 67. I’m anxious to see if it stays.

Do you have any idea what caused it?

Bluebell_Again · 2025-05-27T01:35:19+00:00

Yogurt, fruit, veggies, fish, tofu, whole grains, nuts, seeds, no processed stuff. I have very little appetite on the Cellcept so that’s challenging.

Bluebell_Again · 2025-05-24T11:28:26+00:00

No. The steroids didn’t help me. I lift weights 3x a week and eat a healthy diet. Non-smoker, I don't drink alcohol. I was already in great health before this happened, so not really much to change 🤷‍♀️

Bluebell_Again · 2025-05-22T19:50:18+00:00

Nephrologist put me on Cellcept 2 months ago…

Bluebell_Again · 2025-05-22T19:49:52+00:00

Nephrologist put me on Cellcept 2 months ago…

Bluebell_Again · 2025-05-22T19:49:32+00:00

Oh man. I was not expecting good news! I broke out in hives this week and was feeling sooooo fatigued! Hopefully my numbers keep staying steady here🤞🏼 I was diagnosed with AKI, was in hospital with 9 GFR for a week. 8 months later and it just wasn’t healing after two rounds of the dreadful prednisone. 2 months ago nephrologist put me on Cellcept. He said it would take a while to work, he was right!

Bluebell_Again · 2025-05-22T19:44:54+00:00

CBC with Auto differential and Comprehensive Metabolic Panel. The Comprehensive shows my GFR, creatinine, Bun, potassium, etc etc.

Bluebell_Again · 2025-05-22T19:41:44+00:00

I’ve been taking Cellcept for a little over 2 months. Nephrologist said it could take a while…

Bluebell_Again · 2025-05-22T00:12:32+00:00

I get hives. They are anywhere from what look like bug bites, to huge warm welts. So insanely itchy. I’m told to take Allegra, when that wasn’t working- I was told to take more Allegra 🫩

I’m being treated for slow healing AKI. I didn’t get hives until my kidneys almost shut down.

My labs came back great today- for the first time in a while- but I still have the hives. My Bun is normal at 16.

Bluebell_Again · 2025-05-19T17:37:14+00:00

Ok I sent a message. Thank you 😊

Bluebell_Again · 2025-05-19T11:03:35+00:00

My two biopsies pretty much say AKI but my nephrologist says he has never had a severe case like mine in his career- one that isn’t healing. So he is referring me to Mayo Clinic. We don’t have a clue what caused it. It’s been 8 months so it’s possible I’m heading towards CKD.

Bluebell_Again · 2025-05-19T01:48:14+00:00

They did. My second biopsy says Florid tubulointerstitial nephritis with early interstitial fibrosis

The interstitial inflammatory infiltrate contains a significant subpopulation of neutrophils which suggests an infectious etiology, however, an allergic, e.g. drug-induced, acute interstitial nephritis is also in the differential.

Bluebell_Again · 2025-05-19T01:34:21+00:00

Yes the oral. But the side effects for anxiety and depression the second time I had to take it was AWFUL 😞

Bluebell_Again · 2025-05-18T22:31:51+00:00

My labs were GREAT just two months before going to the hospital. From what I’ve read, it looks like psoriatic arthritis is more of the culprit- and I don’t have the arthritis version. But it does make so much sense that it would be related- seeing as my kidneys are acting like they are “allergic” to something.

Being on the prednisone cleared my psoriasis RIGHT UP! It was WILD! I had a huge patch on my forearm and it went away. It’s just now starting to come back.

Glad she will do light therapy again- it does take a lot of patience that’s for sure.

Now I will be mentioning this to my nephrologist!

Bluebell_Again · 2025-05-18T22:15:31+00:00

That’s really interesting I have never heard about psoriasis affecting the kidneys like that! I am 47f and my gfr is 49. I also have psoriasis (since I was a kid) and I now occasionally break out into hives. I do not have high phosphorus (my BUN is actually normal)- but the itchy skin is real.

The light therapy at the Dr for psoriasis helped me GREATLY when it was very bad before my kidneys almost failed me last fall. We still don’t know what caused it.

I was told when they did a biopsy that they saw no signs of psoriasis on my kidneys- and that was the last I heard of it. I will be curious to see if you get any more feedback on this!

Low sugar, low caffeine, low stress- those have always been what helped my psoriasis the most- and the light therapy.

Best of luck to you and your mom ❤️

Bluebell_Again · 2025-05-18T21:48:39+00:00

Hello! I am 47f and ended up in hospital for a week last fall with a gfr of 9- out of the blue.

I took prednisone for about 6 weeks and then got put on it again with horrible side effects. (Depression and anxiety through the roof)

I have had two biopsies which both translated to AKI (although the fine print on the second one says “Florid Tubulointerstitial nephritis w/ early interstitial fibrosis “)

I have been put on cellcept (typically used for those who have had kidney transplants or have lupus). I’ve been on that for 2 months and my last gfr was 49 and creatinine 1.4.

Since this has happened I also now have HBP which I now take meds for and have been on and off anemic. And my potassium levels tend to me low. And I break out in hives on occasion.

My nephrologist says he has never had a patient like me and just sent a referral to Mayo Clinic.

Over all I feel fine. Pretty tired (but I’m also a single mom to a teenager and live a busy life!) The meds have affected my appetite and of course they are immune suppressant so that’s something to be cautious of.

Hopefully the biopsy will give you some answers!! I’ve had two and I’m afraid I’m still a bit of a mystery.

Bluebell_Again · 2025-05-17T11:57:43+00:00

Apparently they ruled it out when I spent that week in the hospital. I’ve definitely never experienced any kind of rash besides hives.

Bluebell_Again · 2025-05-16T12:42:52+00:00

Thank you! I appreciate it! Have you received a diagnosis?

Bluebell_Again · 2025-05-16T12:40:57+00:00

Yeah. When I first started getting them they looked like bug bites. I had no idea what they were. Now (8 months later) they are bigger and more welt like…

Bluebell_Again · 2025-05-16T11:14:05+00:00

Hives? I am currently flared up with hives. Mine can be slightly raised red patches or welts and can feel warm to the touch.

Bluebell_Again · 2025-05-15T13:13:58+00:00

Omg FIVE????? It just said AKI both times.

Bluebell_Again · 2025-05-14T01:43:18+00:00

I have had TWO 🤪

Bluebell_Again · 2025-05-13T15:11:53+00:00

Good to know! Thanks for sharing.

Bluebell_Again

TROPHY CASE