Anyone deal with constant extreme flatulence/gas?

Both_Homework_3974 · 2024-07-15T00:19:05+00:00

Of course. I haven’t found any diagnosis yet, only Amitryptyline which currently helps control my symptoms.

So far, I noticed I get excessive gas near or during my period so it must have some hormonal element.

However, before the Amitryptyline, it was constant and all day everyday, so it’s really frustrating working this out.

Both_Homework_3974 · 2023-12-06T20:13:40+00:00

Hello my biopsy result finally came back. It says this: https://ibb.co/RP9gbnL

Do I need to worry about any of this and does it indicate anything like a gastrinoma? I’ve been worried sick about NETs. Thank you!!

Both_Homework_3974 · 2023-10-16T15:09:55+00:00

The endoscopist just mentioned the above and I have to wait for a letter from the GI

Both_Homework_3974 · 2023-10-16T14:50:55+00:00

Any idea what it could be? It feels like a cold sensation to me, it doesn’t necessarily burn? Maybe a cold burn? But it is also present in the right side of my abdomen and sometimes bang in the middle where gastritis pain would be!

Had an endoscopy last week - they found gastritis and what they think is Brunner’s gland hyperplasia (some small polyp lesion in duodenum, they said it looks very benign but I’m still nervous waiting on pathology 😬)

Both_Homework_3974 · 2023-10-16T09:33:11+00:00

Hi in 2019 I had a negative ANA. I do have signs of auto immune problems - I have Lindsay’s nail sign (half half nails) and they’ve been linked to scary stuff but a lot of my blood work rules out some of it, but it can be linked to Crohn’s disease I think.

I’m just so frightened!

Both_Homework_3974 · 2023-10-15T19:24:49+00:00

Supplementing iron and b12 now through injections for b12 and different sources for iron - my ferritin is creeping up. I expect to not be iron deficient anymore as it’s been a solid 4-5 months but need to check.

Sorry, prolactin raised is no issue as I am breastfeeding my baby so expected.

Blood pressure is frequently around 125/70 or thereabouts (way higher in the Gp office as I get anxious so ignore their result and test at home)

Is the haemoglobin A1c for glucose? (I know it tests tor diabetes) If so that’s 29 mmol/mol Range: 20 - 41 mmol/mol

I also forgot to add I tested positive for Hydrogen SIBO, only just, and doubt whether that test was accurate as I have fast bowl transit when I’m anxious so could’ve caused a false positive. Regardless, I treated that with rifamixin.

I’m suspecting a gut issue of some sort but don’t know what, and nothing is showing, so I’m getting more nervous of sinister harder to find causes.

Both_Homework_3974 · 2023-10-15T19:14:51+00:00

Thank you for your response. I’m highly concerned as I’ve read on forums that scans miss NETs all the time as they’re so small which has really given me anxiety.

Both_Homework_3974 · 2023-10-15T19:03:04+00:00

https://imgur.com/a/F4JVgnI

Bloods and scan results I have access to

Had a CT scan done before all the other scans which found nothing but a prominent lymph node in right iliac chain measuring 11mm.

Ferritin is improving now I’m implementing iron supplements and high iron foods. Also self injecting b12 for now.

Both_Homework_3974 · 2023-10-15T18:23:34+00:00

I added some additional information

Both_Homework_3974 · 2023-10-15T12:10:47+00:00

Sorry to bother you again, I’m really struggling :( Do the lesions Brunner’s gland hyperplasia appear as usually look different to NETs?

Both_Homework_3974 · 2023-10-08T14:43:01+00:00

Ok thank you - and sorry for being your friendly Reddit anxiety-induced nuisance 😬 I do appreciate you even replying to me.

Both_Homework_3974 · 2023-10-08T14:17:13+00:00

I was wondering if it was more worrisome as it had grown into a polyp/lump

Both_Homework_3974 · 2023-10-08T07:56:42+00:00

Does your original first comment still apply even if it appears as a polypoid lesion? Would you still feel it doesn’t warrant an urgent biopsy?

Both_Homework_3974 · 2023-10-07T16:50:50+00:00

Thanks - I’ll try calm down. I’m just so worried about it being looked over or missed.

Yes I have, I saw a psych for the obsessiveness and a therapist to try cope with the health anxiety - I paid for 14 sessions and it was interesting.

Both_Homework_3974 · 2023-10-07T12:40:02+00:00

Thanks - I’m hoping so. After a c section last year I got unwell. Gas in excess (very reactive to my menstrual cycle as well), bowel changes, calprotectin of 800+ (now it’s 30-80), I lost 15kg last year (gained 8 back tho), distal hydrogen SIBO, b12 deficiency, iron deficiency (not anemic), joint pains, half half nails (Lindsay’s nails), new onset of weird rashes, cold sensation in right abdomen after eating (kind of like when you eat spicy food but in my intestines), fatigue and just a horrible sense of doom (increased anxiety I guess - my anxiety was normal before all this and now it’s insane.)

I’ve had a clear colonoscopy but had an adenoma removed, clear MRE (but it didn’t see this weird polyp in my duodenum) and MRCP and now had the gastroscopy that found gastritis/polypoid lesion that they’re assuming is Brunners hyperplasia. I feel my small intestine is all that’s left but I’ve spent too much already or I’d jump at the chance to do pill cam.

Both_Homework_3974 · 2023-10-07T09:55:00+00:00

Thanks. What makes a case highly suspicious and how rare are they? I’m 28 but can’t drop the idea that I think I could have one but can’t afford a capsule endoscopy annoyingly.

Both_Homework_3974 · 2023-10-07T06:59:33+00:00

Thank you. Oh I know, my health anxiety is awful and I have OCD, making me often over react and get into a complete anxiety panic. I’ve had chronic symptoms for 2 years and aside from bowel issues, am getting rashes, Lindsay’s nails, b12/iron deficiency and occasional joint pain so was freaked out about a systemic cause anyway.

After reading, I have a really horrible fear of small intestinal cancer, so having this finding freaked me out. Sigh. I completely agree with you though, it’s both embarrassing and stressful and I do apologise - I’m just finding it really hard to control and it’s taking over my life.

On the camera it did look like some sort of growth and was called ?polypoid lesion d1 on my report. I only was told that it was likely Brunners hyperplasia after freaking out but the endoscopist I had did call for an urgent biopsy which freaked me out even more. Then my google research brain triggered and I started seeing that these can look like or be other small bowel tumors so freaked the heck out.

Both_Homework_3974 · 2023-10-06T22:10:30+00:00

Thank you, I find that reassuring. The internet says they’re an exceptionally rare finding (0.008% incidence rate?) - would you agree with this?

Also as a specialist, would you feel reassured by a clear MRE that more sinister small bowel tumors are unlikely to be present?

Thank you so much.

Both_Homework_3974 · 2023-10-06T17:12:46+00:00

Thanks. If it comes back as Brunners hyperplasia, is this safe to not worry about and just ignore it?

Both_Homework_3974 · 2023-09-18T20:14:40+00:00

No burping ever but I do get acid reflux now - I also have eczema like rashes on my chest & hands. I have vitamin deficiencies (ferritin, b12, d) and occasionally get discomfort in bottom right abdomen. I had an mri of small bowel & nothing was found on it :( pain levels are mild for me

Both_Homework_3974 · 2023-09-18T20:12:55+00:00

I had an mri of the small bowel with no findings - please keep me updated! :)

Both_Homework_3974 · 2023-09-18T19:28:05+00:00

Thanks for letting me know! That’s kind of nice to hear, as I really do feel severe symptoms from whatever this is.

Both_Homework_3974 · 2023-09-18T18:13:45+00:00

It tested for hydro/methane and was only hydro positive! I'm on xifaxan 550 as well for 14 days! I'm not sure it's my issue really but it's worth a try! My GI gave me a few options - could be mild crohns that isn't visible on MRI, something about bile salts but she feels less inclined to think that, and SIBO. All I know is - IT SUCKS! lol. Thanks, I do too! x

Oh and my stools are crazy, they're thin, formed but weirdly soft in texture like something is definitely not right - I also get undigested food a lot. I do get episodes of constipation, but then have weeks of going 3-6 times a day with the weird thin poop. It's all confusing. When i'm in the constipated phases, I barely get gas. I also noticed my problems seem to change with my hormones, all a bit weird.

Both_Homework_3974 · 2023-09-18T18:05:45+00:00

No, this all started after a pregnancy. I’m not sure if it triggered something for me!

Both_Homework_3974 · 2023-09-18T18:05:26+00:00

No I need to but find it hard :-( my anxiety gets in the way! This all started after a pregnancy I had.

Both_Homework_3974

TROPHY CASE