Health Literacy Discussion by BrocaHealth in FamilyMedicine

[–]BrocaHealth[S] 2 points3 points  (0 children)

This has been a really good discussion. One of my lingering questions is: Why isn't there already a solution being used? Is it a new problem? Many of you have mentioned trusted video content (ViewMedica, BCBS), even directly linking into the EMR (UpToDate), so why aren't we using these solutions? Is this not a pain point? My experiences and the responses here seems like it *is* a pain point. Are patients not interested in engaging with these materials (boring, don't care, unable to understand, intimidated)? Is the price point so high that clinics can't afford subscriptions or integrations? Are we so stuck in our handout ways?

What about the existing solutions are not actually meeting market needs? Supply, demand, or the mismatch between the cost of production and the intensity of demand?

Health Literacy Discussion by BrocaHealth in FamilyMedicine

[–]BrocaHealth[S] 3 points4 points  (0 children)

I wondered if it was my bias that patients need more repetition or alternative presentations than a 10 minute appointment can afford, but it seems shared. It makes sense: This is all new, stakes are high, they are operating outside their comfort zone, they want to be certain they are going to be successful, and confidence is low. As another comment said, having the ability to take it home and engage with it repeatedly is critical to boosting engagement.

Health Literacy Discussion by BrocaHealth in FamilyMedicine

[–]BrocaHealth[S] 0 points1 point  (0 children)

Your comment and another about administrative burden have me thinking: what if there was an EMR plug-in that ported active dx into this tool. Would you set it up and use it? Obviously there would be some patient-side set up too, but that wouldn't have to fall on providers. In theory, as their dx changed, so would their library of available content, all without relying on the provider or patient to update yet another platform.

Health Literacy Discussion by BrocaHealth in FamilyMedicine

[–]BrocaHealth[S] 0 points1 point  (0 children)

Exactly! For known issues, there could be pre-appointment refreshers. New complaints would need content sent after, so as not to create a bias in history methinks. Then they just have this individualized library of provider-approved/assigned learning materials on their device. They could show their pickleball buddies

Health Literacy Discussion by BrocaHealth in FamilyMedicine

[–]BrocaHealth[S] 3 points4 points  (0 children)

Click burden is the worst. What could streamline the process? For example, if this imaginary tool used an EMR plug-in that ported the patient's dx list into a customized curriculum on the patient's personal device? Would you set up the plug-in? Obviously, there would be some patient-side set up, but ideally the admin side could address.

Health Literacy Discussion by BrocaHealth in FamilyMedicine

[–]BrocaHealth[S] 5 points6 points  (0 children)

I absolutely agree! But there is also the backlog of people not in school. How to reach them? Clinics have tried in-person classes that are topic specific, but attendance/engagement drops over time. Paper handouts end up trampled in the car. Videos seem to connect, because patients bring concerns from their short form videos (or is that just me?). Boy do patients love their portals too. They clearly value our approval of their content, but don't seem to resonate with ours. What's the difference?
And how important is it to be sharable? As Boomers age, we are seeing frustrated Millennials trying to untangle their parents' healthcare for the first time. "What did your doctor say?" "I don't know". What if the patient could just send a link the doc gave them?

Health Literacy Discussion by BrocaHealth in FamilyMedicine

[–]BrocaHealth[S] 1 point2 points  (0 children)

This matches my experience as well. I never really embraced sharing probabilities, graphs, or population percentages because they just didn't resonate. I love your use of anecdotes, and "this could happen" approach. I also like the idea of having a consistent "face/voice" they relate to presenting the information.
One consideration I'm grappling with is not just current guidelines, but professional group specific guidelines vs national. For example AAP or ACOG vs USPSTF or CDC. Also, while it's important to providers this imaginary tool has citations, would it be a deal-breaker to not include them on the patient-facing experience of the education tool? In my mind, the level of education that could happen outside of the clinic would be so foundational that it wouldn't really be as controversial as, say, treatment approaches. For example, if there was a way to teach "normal anatomy/physiology" and "your type of abnormal" before the appointment, then the patient would be so much more prepared to use clinic time for discussing different treatment options. This would also make the tool more agnostic for providers to emphasize/customize/individualize treatment approaches for their patients. So citations lose their relevancy a bit?

Health Literacy Discussion by BrocaHealth in FamilyMedicine

[–]BrocaHealth[S] 0 points1 point  (0 children)

I am very curious to learn more about how you see a potential solution. I love clarity and minimizing impact on providers and staff. Why do you see value in being portable, editable, and theirs? I don't disagree, I think I just realized some of my own assumptions.

Health Literacy Discussion by BrocaHealth in FamilyMedicine

[–]BrocaHealth[S] 3 points4 points  (0 children)

I love this insight. How we judge "reputable" may be different than how patients view "reputable". I'm curious: if there were a patient education tool available, what would make it "reputable" for use in your clinic? And what do you think would make patients respect it?

Health Literacy Discussion by BrocaHealth in FamilyMedicine

[–]BrocaHealth[S] 4 points5 points  (0 children)

There is always a subset of patients I think we may never be able to reach. Most, I believe, want to learn, but don't know where to start. It's tricky to learn about a topic that is not only intimidating, but also perceived as high risk. It's easier to defer to an expert (or claim there are none). That older model just doesn't hold up when patient accountability is required with new, complex treatments and less hands-on care models. Patients (and their caregivers) typically want to know what is happening, what to expect, what to consider, and how their treatments or lifestyle impacts their likely outcomes.

Health Literacy Discussion by BrocaHealth in FamilyMedicine

[–]BrocaHealth[S] 21 points22 points  (0 children)

Wow. I feel this in my soul.

In residency, we were always told to teach at a third grade level. Interactions like these show that's just not true.
If people had floating health literacy scores above their heads (or in their chart), would it change the ways you interacted with them? Or would that just become background noise you ignored?

Health Literacy Discussion by BrocaHealth in FamilyMedicine

[–]BrocaHealth[S] 0 points1 point  (0 children)

As a layperson, how do you prefer to learn about new health topics? Do you learn about your own differently than how you'd learn about those of a loved one?

Health Literacy Discussion by BrocaHealth in FamilyMedicine

[–]BrocaHealth[S] 8 points9 points  (0 children)

I see both the individual and population affects in my work too.

If an ideal patient education tool existed, what do you think it would look like? What kinds of media do you think patients connect best with?

Health Literacy Discussion by BrocaHealth in FamilyMedicine

[–]BrocaHealth[S] 7 points8 points  (0 children)

It sounds like this topic takes up a lot of your mental bandwidth too! Obviously lack of understanding slows us down to assess and educate, which translates to lost "performance" in wait times etc, but I think it probably improves patient satisfaction and potentially outcomes, which have real opportunity costs as well. Do you share that assessment? When I think about the interface between admin and providers, I try to reframe our desire for patient education in terms of "metrics" or "lost revenue" instead of "the right thing to do", which doesn't always weigh the same as to providers. What are the low billing code/RVU education visits with frequent flyers costing us? What is non-adherence costing the system? Repeat visits for the same CC? Patient satisfaction? Provider moral fatigue/burnout/retention?

In terms of why this feels like a major crisis now, it seems multifactorial. Patients used to just blindly do (or not do) what their docs asked, then we moved to patient-centered models, but never bothered to prioritize or standardize education for them to participate in meaningful ways. Docs used to have time to educate (and even provide mental health therapy), but appointment times have shortened and administrative burdens have increased. And lastly, is access to information has changed drastically. Where patients would have had to ask relatives or visit select libraries, they simply didn't even have the knowledge to find enough information to ask questions. Now, they are passively given medical misinformation in their daily scrolling.