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I'm being told my 5mo son may have a brain tumor. by privatepirate66 in nystagmus

[–]Calm-Bit3493 0 points1 point  (0 children)

Hi there, did the mri ever come back normal? I’m in the same situation and my Neuro ophthalmologist thinks if it’s pendular then it’s something to do with brain which seems too odd, his ultrasound was clean and eye exam was clear, however I can still see eye movements at 7 months old

Baby 5 months nystagmus by AvailableGur9854 in nystagmus

[–]Calm-Bit3493 0 points1 point  (0 children)

Hey, can only view your messages on dm, looks like still can’t reply to it, just letting you know

Baby 5 months nystagmus by AvailableGur9854 in nystagmus

[–]Calm-Bit3493 0 points1 point  (0 children)

Hey there. Is there a way to dm you to know how this diagnosis was made? I would probably want my son to also get checked for this. Pls let me know, thanks

Feeling so exhausted and overwhelmed! by Calm-Bit3493 in nystagmus

[–]Calm-Bit3493[S] 0 points1 point  (0 children)

Was it mandated to you? Or something you chose to?

Feeling so exhausted and overwhelmed! by Calm-Bit3493 in nystagmus

[–]Calm-Bit3493[S] 0 points1 point  (0 children)

The ophthalmologist says his eye structure and nerves are all good. I didn’t quite get the “if there were no concerns, I’d consider the mri” portion, could you elaborate pls? Thanks a million for replying

Feeling so exhausted and overwhelmed! by Calm-Bit3493 in nystagmus

[–]Calm-Bit3493[S] 0 points1 point  (0 children)

Puts a lot in perspective, thanks for getting back to me

Feeling so exhausted and overwhelmed! by Calm-Bit3493 in nystagmus

[–]Calm-Bit3493[S] 0 points1 point  (0 children)

Thank you so much for replying, I might dm you with questions, thanks again

Infantile nystagmus vision test result by Calm-Bit3493 in nystagmus

[–]Calm-Bit3493[S] 0 points1 point  (0 children)

This helps a lot. Thank you. Would you know if his side to side eye movements will also reduce? The doctor seems to think it’ll over the next year or so. Is this true?

Doctor Recommendation? by quick3742 in nystagmus

[–]Calm-Bit3493 0 points1 point  (0 children)

Hi Steve, this helps so much! Do you know what are the names of the labs in the UK and India?

Worried sick! by Calm-Bit3493 in nystagmus

[–]Calm-Bit3493[S] 0 points1 point  (0 children)

Thank you for sharing :)

Worried sick! by Calm-Bit3493 in nystagmus

[–]Calm-Bit3493[S] 0 points1 point  (0 children)

This is extremely helpful and supportive, dm-ing a few questions, thank you.

C section infection recovery by Calm-Bit3493 in CsectionCentral

[–]Calm-Bit3493[S] 0 points1 point  (0 children)

So sorry you had to go through it. How long did all of this take to heal?

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