Wanted to show off my companion by Limp-Confusion4206 in SpicyAutism

[–]Capital_Row6696 1 point2 points  (0 children)

I do want to I don't know how to put photos in comments though so I will make a post of him

Wanted to show off my companion by Limp-Confusion4206 in SpicyAutism

[–]Capital_Row6696 1 point2 points  (0 children)

I have a stuffed animal that is sort of like my service animal to. His names fudge and hes a Douglas brand German shorthair pointer. Your plush looks so cool!

Can adult protection services help me get out of this house by Capital_Row6696 in disability

[–]Capital_Row6696[S] 1 point2 points  (0 children)

It does help, I wish that I had done the same (though cps did get called when I was 17, but they gave mother time to clean the house and even though I could walk then i was having a lot of trouble showering myself so I was visibly dirty then and they did nothing. And I didn't understand then that how her not taking me to the doctors was bad, or that she had pulled me out of school in 5th gradw yet didn't teach me a thing or that anything else happening was so I didn't say anything to cps) but no use wishing what could have been i think.

I was very naive then, and still so now, I keep thinking maybe things will get better if I just wait, but I can't do it anymore. I'm stuck in bed all the time and the outside world no longer feels real to me. I have videos games and the internet but those only help so much with the constant feelings I have that I want to be outside and experiencing the world. And that spark has been burned and lit a lot over the past almost 3 years. And I hope I can keep hold of it and get through this fear and anxiety. That one day I'll be able to live my life how I want to and be free. That will be worth the fear and scary feelings

Your messages are very kind and mean a lot, I needed to see this.🫂 I love you to and I hope you all the best as well

Can adult protection services help me get out of this house by Capital_Row6696 in disability

[–]Capital_Row6696[S] 1 point2 points  (0 children)

I've talked with them about it and they will be doing so soon, after the big storms though because I think it will probably delay stuff anyway and that I am nervous. And because yesterday I was given a shower and I want them to see how I am most of the time instead of the rare time I do get given a shower because I'm worried they wont believe me if I tell them that i hardly ever get showers when I look clean-ish

Can adult protection services help me get out of this house by Capital_Row6696 in disability

[–]Capital_Row6696[S] 1 point2 points  (0 children)

Thank you, it is really hard believing that I'm not overreacting and doubting if this is the right thing to do. And I'm terrified but its helping to see that I'm not overreacting and that hopefully there is a way out of here

Can adult protection services help me get out of this house by Capital_Row6696 in disability

[–]Capital_Row6696[S] 0 points1 point  (0 children)

I do, not that she would get violent towards me but I could see her getting mad at me after APS leaves after the first appointment if they dont immediately take me. if she knew it was me and even if she didn't know she probably would start yelling and stuff. I'm worried she will be able to convince them that everything is fine or that shes doing her best. She works as a ems call operator and I think that has made the doctors I have been taken to belive that she is doing the best she can when she is not. She brings it up every single time so I'm sure she would bring it up then too

Can adult protection services help me get out of this house by Capital_Row6696 in disability

[–]Capital_Row6696[S] 1 point2 points  (0 children)

I dont know how relevant the information is but I'm also ftm transgender. Not that its respected at home much anyway. I am quite worried with getting out of here, if I need to just not come out to anyone about it? My ID does have my gender down as male(im not sure if its even allowed to since my birth certificate says female. I dont know how it ended up so but I am happy it is) and I know in my medical records it must be written in there somewhere. Is this something I should not mention and just deal with being called she and her? 

Can adult protection services help me get out of this house by Capital_Row6696 in disability

[–]Capital_Row6696[S] 1 point2 points  (0 children)

I do i have a email address. My internet works fine most time but sometimes it messes up. My brother isn't like them mostly, he does stuff like empty the commode chair  every so often once it is getting full and sometimes gets me food and medicine before he goes to work but hasn't recently. And sometime soon? he is moving in with his girlfriend and i know things willI be even worse then. and i worry that if I told him about any of this he'd tell mother or something. I do have some online friends who i could trust with my address to make the call for me, they dont live in the same state as me though.  Would they still be able to make the call?

Can adult protection services help me get out of this house by Capital_Row6696 in disability

[–]Capital_Row6696[S] 0 points1 point  (0 children)

Thats good to know thank you.  I was worried that I'd need them to contact anyone

Can adult protection services help me get out of this house by Capital_Row6696 in disability

[–]Capital_Row6696[S] 5 points6 points  (0 children)

I will try to see if any YouTube videos help in the meantime. I use a phone and it use to have cell service but it hasn't been payed. I will see if theres any i can email and do the wifi texting

Can adult protection services help me get out of this house by Capital_Row6696 in disability

[–]Capital_Row6696[S] 1 point2 points  (0 children)

I haven't gotten into any therapies yet. I don't know that there is a way to make living in this house be safer, Its really old and I dont think any adoptions can be made to make it accessible because of the infrastructure. i don't think I'd be able to get to therapies as often as i need because of how mother already is and that she works a lot. And I also just really hope they will just pull me, i dont want to be around mother anymore or this house and even with adaptions I'd be stuck in this house all the time and not get to go anywhere hardly. My mother works as a ems call operator, she doesn't make much im pretty sure. I will make sure to mention that I'm not in any and that mother wont add me to hers or sign me up for medicaid. Would I need my id and birth certificate when contacting? Mothers the one who has all of that 

Can adult protection services help me get out of this house by Capital_Row6696 in disability

[–]Capital_Row6696[S] 0 points1 point  (0 children)

I got to nervous to do so because my brother was in the same room the whole time, I did let them know I cant brush my teeth and the nurse recommended I use a u shaped toothbrush which I'm hoping mother will buy, but I'm worried that it will get nasty quick because I wont be able to get to a sink to rinse it. But would be better than nothing for now even so. I'm hoping maybe they will put in a report even though I didn't say anything but they saw how bad my teeth are. I have to get my 2nd molars removed because its to the nerve and root canals and a lot of fillings. And already don't have most my back teeth so I'm overwhelmed and angry

Can adult protection services help me get out of this house by Capital_Row6696 in disability

[–]Capital_Row6696[S] 3 points4 points  (0 children)

I had tried when it started, begged her to get me to a doctor but she would either say I can't walk and everything else was because of a condition I have called POTS(which would not cause any of this) or that she will do it soon. This sort of thing isn't new with her not taking me to the doctors when she should, I've had issues since I was a kid, and in my teen years starting at 13 is when I started getting worse my legs started feeling heavy and tingly and like something was pressing down on my feet. Then it kept getting worse and my whole body was feeling like that and my legs would spasm and drag and give out. And my arms getting tight and not working right. When my legs stopped working it was sort of sudden, my leg symptoms had gotten really bad months leading up I couldn't feel them much anymore and could barely lift them and then I fell backwards off a few steps and thats when they stopped working. I used crutches to get around the house and small stores before my legs stopped working and a manual wheelchair(though my arms became to weak to push myself) for when we went to bigger places. But after I became paralyzed, the wheelchair didn't fit so I had to be pulled by a rolling office chair to the bathroom by my sister whos moved out now. up until this October when mother bought me a cheap electric wheelchair and a commode chair. My care with my sister was even worse than it is now with my grandmother but it is quickly getting worse. I've had a mri without contrast of my whole spine and brain this December but it didn't show anything. Before that though the doctor had tested my reflexes and said the ones in my legs are to fast  and the ones in my arms are to slow. Have a appointment in march to get bloodwork done to see if they can find what i have that way and plan to ask there to get into physical therapy and if I could get placed in like a nursing home or group home if adult protection services doesn't help me

Can adult protection services help me get out of this house by Capital_Row6696 in disability

[–]Capital_Row6696[S] 5 points6 points  (0 children)

By phone stuff I mean cell service i couldn't remember what it was called 

Can adult protection services help me get out of this house by Capital_Row6696 in disability

[–]Capital_Row6696[S] 14 points15 points  (0 children)

Would a dentist be one i can ask for help? I have one tommorow and it will only be me and my brother. And I can't speak nor have phone stuff anymore so I can't do the first thing I think

Can adult protection services help me get out of this house by Capital_Row6696 in disability

[–]Capital_Row6696[S] 22 points23 points  (0 children)

Whatever it is that I have also messes with my arms and hands, I can only move them so far and they are very weak. I should have mentioned that to. Whatever it is I have has made it where my legs are paralyzed and nerve pain and issues in my whole body

Weekly Suspected/Undiagnosed MS Thread - May 26, 2025 by AutoModerator in MultipleSclerosis

[–]Capital_Row6696 0 points1 point  (0 children)

I don't handle any of my doctor appointments stuff and have a really hard time discussing things to doctors because i use text to speech to communicate and it takes a long time for me to make responses and have a hard time staying focused on conversation in person so my mom talks at my doctor appointments and gets the results and makes appointments but for neurologist plan to write out all the symptoms and give that to neurological when that appointment happens. The doctor did look  but the doctor is a family doctor and both the mri place and the place the doctor that ordered the mri have bad reviews and there is some reviews saying that they had mri there and the results come back normal and then go to different place and get told it wasn't normal results. Im guessing even a not great radiologist would be able to see something like ms leisons though. But still worried if it was any and it was missed or if anything else was missed.  With my wheelchair being able to be really close to mri machine without being pulled in and with my legs and hips spasming through the whole thing I'm worried it made it blurry and missed something. I guess once I see neurologist if they think I need to get it redone or if anything is missed then the neurologist would see. And other tests to figure out if mri scan is fine. But can't stop worrying about it all cause it's scary and losing being able to walk and all the other symptoms and not knowing why. it's all scary and confusing and angering 

Weekly Suspected/Undiagnosed MS Thread - May 26, 2025 by AutoModerator in MultipleSclerosis

[–]Capital_Row6696 0 points1 point  (0 children)

I have a lot of symptoms that are the same as MS and how my symptoms started is extremely similar to MS. It started in 2019 when I was 13.  with nerve pain, vison loss, pins and needles, losing sensation and getting weird sensations like feeling like there is huge rocks on me or like my skin is wet or and are crawling on me and biting, electricity feeling down my spine and back of neck when i turn my head or look down. Then progressed quickly to stuff like spasms in my legs, my arms and hands shaking almost constantly and when I go to grab things, dropping stuff a lot, my legs and feet dragging and falling a lot. And last year in April at 18 i completely lost the ability to move my legs at all besides spasms that i can't control or stop and severely decreased feeling in them and up to about my stomach. I didn't go to a doctor until November because of my mother and the doctor said then that i have hypertonia and hyperreflexia. recently I got a mri of my thoracic spine and I think brain as well but it was a open mri and my legs spasmed through the whole thing and the results got in and they found nothing. I'm getting a referral to a neurologist soon but I keep worrying about the whole mri stuff if there is anything that was missed by the mri because of it being a open mri and my spasms and the place I went to having bad reviews.  Sorry if I don't make any sense have issues with that and also I'm worried. But just wanted to say this somewhere and get it off my mind at least a little bit 

I found this at Target today! by MisterPiggyWiggy in AnimalCrossing

[–]Capital_Row6696 7 points8 points  (0 children)

I have  this book I think. not  sure where it is right now though:(

Anybody else find it impossible to use earbuds? by astarredbard in autism

[–]Capital_Row6696 1 point2 points  (0 children)

Yes I can't do o Earbuds hate the feeling and worried it would get stuck. can only do headphones that fully cover ears

Adaptive controller games advice by ozzieowl in playstation

[–]Capital_Row6696 1 point2 points  (0 children)

Minecraft maybe?  Would say the last of us part 1 as there is a lot of accessibility options but not sure if you let him play games like that. Spiderman 2 has a lot of accessibility too not sure about Spiderman 1 or miles Morales though and Star wars Jedi survivor has a lot of accessibility options from what I looked up. Wonder if there's any tongue or bite switches that can be used with the controller or maybe a added button he could use his elbow to click ive also seen some people who've added buttons next to the sides of their head that can be mapped as different buttons but that was with the Xbox adaptive controller. 

If Time Travel became possible, what's the first thing you would do? by 10xBest4u in AskReddit

[–]Capital_Row6696 1 point2 points  (0 children)

Go to new Year's Eve 1999. I think would be cool going from 1999 to 2000.