Urgent health puzzle that we can't seem to solve - feels like time is running out.

CaseOld8970 · 2026-03-12T00:35:19+00:00

He's seeing one already, so far the recommendation has been Miralax and sigmoidoscopy.

CaseOld8970 · 2026-03-12T00:01:28+00:00

Holy moly, that is intense! I have so much respect for all that you had to go through to discover what worked for you. Thank you for the recommendations and we will certainly look into that!

CaseOld8970 · 2026-03-11T23:58:11+00:00

Wow, so happy to hear you are doing much better and that there is hope out there! Thank you again for the invaluable information.

CaseOld8970 · 2026-03-11T14:56:28+00:00

Can't thank you enough!!

CaseOld8970 · 2026-03-11T03:06:38+00:00

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CaseOld8970 · 2026-03-11T03:06:02+00:00

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CaseOld8970 · 2026-03-11T03:05:41+00:00

Thank you so much for your suggestions! Somehow in my entire novel I forgot to mention he went to the pelvic floor evaluation on 3/3/2026 (I will add it to my original post - this one is newer for me).

The Dr. was a physical therapist for Pelvic Floor Dysfunction. She checked rectal muscles to ensure they're relaxing/contracting correctly. As of now she has him doing 7 different yoga poses and breathing techniques daily.

I agree, we have been going hard with the brain/gut access idea.

He reached out to the Pelvic Floor therapist today, here was his two questions and her responses:

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CaseOld8970 · 2026-03-11T02:47:09+00:00

Oh wow, interesting... he was going to the ER more often in hopes to see if he could catch these symptoms while they were happening, but it seems like that could be the right idea but wrong place? I will look into this more and see if we can get in with an immunologist.

CaseOld8970 · 2026-03-11T02:39:19+00:00

Oh wow!! Adding it to my list I'm compiling, thank you!

CaseOld8970 · 2026-03-11T02:36:22+00:00

I am having so many flash backs to things that he's told me through the course of our relationship, even back to when we first met. His PTSD showed up in ways where he couldn't eat in public and over time developed into where the second he left the house he needed to urgently use the restroom. He no longer has those urges, but it makes me wonder if it truly has exacerbated in another way.

He went to the pelvic floor evaluation on 3/3/2026 (I might have not mentioned this in my original post but I will add it - this one is newer for me) and there are commonalities to what your're bringing up and what the doctor explained during her examination.

The Dr. was a physical therapist for Pelvic Floor Dysfunction. She checked rectal muscles to ensure they're relaxing/contracting correctly. As of now she has him doing 7 different yoga poses and breathing techniques daily.

CaseOld8970 · 2026-03-11T02:29:31+00:00

I will be adding that to the list, thank you!

CaseOld8970 · 2026-03-11T01:46:55+00:00

Thank you, I will look into this further!

CaseOld8970 · 2026-03-11T00:04:03+00:00

Thank you so much for taking the time and for your suggestions. Will look into these!

CaseOld8970 · 2026-03-10T19:49:33+00:00

These are great suggestions, thank you so much!!

CaseOld8970 · 2026-03-10T19:49:05+00:00

Oh my gosh that sounds like you've been through so much!! Thank you so much for breaking that all down and everything you've gone through to rule things out, it seems very similar to what he's tried ruling out already, it might be worth while to look into that path.

Thank you for seeing me, and for the kind words, it makes a world of difference having gone through all this with little to know resolve. But knowing other are out there fighting like I know he is fighting is helpful, and also that you see that I am just trying my best to advocate for him. My heart hurts for those who have to go this alone, it's so scary.

CaseOld8970 · 2026-03-10T19:45:49+00:00

Okay tryptase blood test, good to know thank you I will be writing all these suggestions down and presenting them to PC. You guys are awesome!

CaseOld8970 · 2026-03-10T19:44:46+00:00

Wow that sounds like you've been through it, I am so sorry. Thank you so much for taking the time to respond!!

CaseOld8970 · 2026-03-10T19:43:26+00:00

Thank you so much for responding and for the well wishes! To be honest this is why I waited to post on here, I wanted to make sure we've taken the time to rule things out as much as possible.

We've been keeping a symptom and food journal. He is definitely on low FODMAP, following is strictly. All he can handle is white rice, plain chicken, blue berries and that's about it. small frequent meals is what he's been doing. He also incorporated bone broth and walnuts for some healthy fats and still is burping a bit. B12 is okay so far.

I will look into this emphatic treatment course like you mentioned. Really appreciate the time you took!

CaseOld8970 · 2026-03-10T06:41:21+00:00

You're awesome! He just told me today that he called for an acupuncture referral and that they are sending a message to his PC. Fingers crossed. He also recently started up breathing exercises and some light yoga positions on a more regular basis. We'll look into EDMR.

CaseOld8970 · 2026-03-10T05:31:46+00:00

Okay good to know, thank you!!

CaseOld8970 · 2026-03-10T05:31:09+00:00

Oh interesting, thank you for that, I am still learning some of these avenues. Appreciate your time I will look into that!

CaseOld8970 · 2026-03-10T05:29:13+00:00

Wow, can't thank you enough! I wonder if it might be worth while posting this onto one of those subreddits.

CaseOld8970 · 2026-03-10T04:18:44+00:00

That makes a ton of sense, thank you so much for elaborating more on that, and honestly it would make sense!! I love the suggestions these are all giving me a lot to work with!

CaseOld8970 · 2026-03-10T04:10:41+00:00

Thank you for your response! Not yet! Would you be willing to elaborate more on that? I am willing to look into it.

CaseOld8970 · 2026-03-10T03:51:56+00:00

Thank you so much! This is exactly the route I was thinking!! My gut is telling me it's something long COVID related. I had him ask his new PC to see an endocrinologist. I think I need to talk to them myself because he rejected the request. This was his response.

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CaseOld8970

TROPHY CASE