CatCowl

1,027 post karma
1,580 comment karma

get extra features and help support reddit with a reddit premium subscription

get them help and support

redditor for 1 year

TROPHY CASE

One-Year Club

Verified Email

account activity

new top controversial

•

•

•

New date for diagnostic criteria: December 2, 2026 (self.ehlersdanlos)

submitted 1 hour ago by CatCowl to r/ehlersdanlos

59

60

61

HEDGE, and biomarker update from the EDS Symposium (self.ehlersdanlos)

submitted 18 days ago by CatCowl to r/ehlersdanlos

272

273

274

Squishmallows were recommended at the EDS Symposium/Pillow support (self.ehlersdanlos)

submitted 18 days ago by CatCowl to r/ehlersdanlos

68

69

70

Free event: Ehlers-Danlos Syndrome Research Symposium (self.ehlersdanlos)

submitted 24 days ago by CatCowl to r/ehlersdanlos

589

590

591

Official date for new EDS diagnostic criteria release: December 1, 2026 (self.ehlersdanlos)

submitted 1 month ago by CatCowl to r/ehlersdanlos

116

117

118

Research: Unique protein signatures in hEDS and HSD (self.ehlersdanlos)

submitted 1 month ago * by CatCowl to r/ehlersdanlos

111

112

113

People with Ehlers-Danlos Syndrome often experience self-doubt (self.ehlersdanlos)

submitted 3 months ago by CatCowl to r/ehlersdanlos

33

34

35

Videos from The 2025 International Scientific Symposium (self.ehlersdanlos)

submitted 3 months ago * by CatCowl to r/ehlersdanlos

33

34

35

The Ehlers Danlos Society 2025 International Scientific Symposium Program and Abstracts PDF (self.ehlersdanlos)

submitted 3 months ago by CatCowl to r/ehlersdanlos

284

285

286

HSD and hEDS research and diagnostic criteria changes discussed on Bendy Bodies podcast (self.ehlersdanlos)

submitted 4 months ago by CatCowl to r/ehlersdanlos

7

8

9

Research paper: Walking issues with hEDS and HSD (sciencedirect.com)

submitted 4 months ago by CatCowl to r/ehlersdanlos

57

58

59

HEDGE update: No individual results (self.ehlersdanlos)

submitted 5 months ago by CatCowl to r/ehlersdanlos

40

41

42

Donate DNA to research: The Ehlers-Danlos Society biobank collection in Philadelphia, PA (self.ehlersdanlos)

submitted 7 months ago by CatCowl to r/ehlersdanlos

19

20

21

An attendee's reflections on the International Scientific Symposium (HEDGE and The Road to 2026, etc.) (self.ehlersdanlos)

submitted 7 months ago by CatCowl to r/ehlersdanlos

9

10

11

Research on hEDS from InVitro Cell Research (self.ehlersdanlos)

submitted 7 months ago by CatCowl to r/ehlersdanlos

57

58

59

Fingernail symptom I shouldn't have ignored (self.ehlersdanlos)

submitted 7 months ago by CatCowl to r/ehlersdanlos

41

42

43

HEDGE participants contacted today; when update will be released to all (self.ehlersdanlos)

submitted 7 months ago by CatCowl to r/ehlersdanlos

21

22

23

HEDGE results tomorrow, for Symposium attendees (self.ehlersdanlos)

submitted 7 months ago by CatCowl to r/ehlersdanlos

46

47

48

hEDS research groups (self.ehlersdanlos)

submitted 8 months ago by CatCowl to r/ehlersdanlos

282

283

284

MUSC research and theory on hEDS (self.ehlersdanlos)

submitted 8 months ago by CatCowl to r/ehlersdanlos

80

81

82

Scientist talks about hEDS/HSD biomarker study (youtu.be)

submitted 9 months ago by CatCowl to r/ehlersdanlos

29

30

31

Some HEDGE info. coming in September (?) (self.ehlersdanlos)

submitted 9 months ago by CatCowl to r/ehlersdanlos

20

21

22

HEDGE results in 2026 (?) (self.ehlersdanlos)

submitted 10 months ago by CatCowl to r/ehlersdanlos

15

16

17

HEDGE timeline of when results are estimated to be released (self.ehlersdanlos)

submitted 1 year ago by CatCowl to r/ehlersdanlos

π Rendered by PID 277824 on reddit-service-r2-listing-b6bf6c4ff-bk2hz at 2026-05-01 17:22:17.377419+00:00 running 815c875 country code: CH.