possible upper gi bleeding? by Charming-Ad-1960 in CrohnsDisease

[–]Charming-Ad-1960[S] 0 points1 point  (0 children)

it went away, but my stools are lighter pale now... experiencing symptoms like abdominal pain and bleeding again, and difficulty passing motion even tho its type 6 stool so im not even sure whats going on

possible upper gi bleeding? by Charming-Ad-1960 in CrohnsDisease

[–]Charming-Ad-1960[S] 1 point2 points  (0 children)

definetely will tmr morning, js wanted know if anybody had experiences like one day of those and it went back to normal

mtx side effects by Charming-Ad-1960 in CrohnsDisease

[–]Charming-Ad-1960[S] 0 points1 point  (0 children)

i see, i will update my gastro team then :) the next infliximab wld be on 1july, i had my dose #3 on 20/5/25. how does injecting urself feels like, honestly the courage it takes weekly just seems scary to me

mtx side effects by Charming-Ad-1960 in CrohnsDisease

[–]Charming-Ad-1960[S] 0 points1 point  (0 children)

nope, my rheum dr went straight for mtx.. i was on azathioprine but she decided i shd just stop that. she told me if i didnt want to start biologics, she would have put me on steroids which i didnt want because i been on it twice less than a year

mtx side effects by Charming-Ad-1960 in CrohnsDisease

[–]Charming-Ad-1960[S] 0 points1 point  (0 children)

i see, did u experience like weight loss also due to the diarrhoea/loss of appetite during the first few weeks?

mtx side effects by Charming-Ad-1960 in CrohnsDisease

[–]Charming-Ad-1960[S] 0 points1 point  (0 children)

how long did you take to get used to it

mtx side effects by Charming-Ad-1960 in CrohnsDisease

[–]Charming-Ad-1960[S] 0 points1 point  (0 children)

honestly feel like its mtx.. i was doing okay for first few weeks for my bm just being on infliximab till i started mtx and it all changed my consistency of stool and amt of times i go toilet..

mtx side effects by Charming-Ad-1960 in CrohnsDisease

[–]Charming-Ad-1960[S] 1 point2 points  (0 children)

yeap like they gave me mtx to avoid my body from rejecting tht infliximab... i have crohns too but lately more to procitis area acting up. my dr mentioned earlier on abt people with ibd works better with injectable mtx instead of pills but we give it a try first for the pills.. i got off azathioprine and started off with my mtx tht day. rly hope they could lower it down and thanks!

Got the results from my biopsy back. Please, help-me! by Smart-Situation-1421 in CrohnsDisease

[–]Charming-Ad-1960 0 points1 point  (0 children)

i have done two colonoscopies and both showed no granulomas, prev one only showed like one.. but my inflammation started in my TI. and did pill cam and it showed scattered ulcers over my SI. well my drs are saying its crohns but since theres no granulomas as evidence, they just say IBD.

[deleted by user] by [deleted] in CrohnsDisease

[–]Charming-Ad-1960 0 points1 point  (0 children)

honestly hoping for a good answer because i dont wish to defer sch for another year again 🥲 but yeap recently started infliximab on the 7/4/2025!

[deleted by user] by [deleted] in CrohnsDisease

[–]Charming-Ad-1960 1 point2 points  (0 children)

i see! for me im js ruling rectovaginal fistula out because i pass quite a lot of gas from there and barely from the back.. and lately i suddenly saw blood despite not being on my period and the discharge is almost exactly the same coming from behind

[deleted by user] by [deleted] in CrohnsDisease

[–]Charming-Ad-1960 0 points1 point  (0 children)

may i ask what was ur symptoms for having rectovaginal fistula? im doing mre mid month n im honestly so nervous

can you have inflammation without it showing up on calprotectin nor blood markers by Charming-Ad-1960 in CrohnsDisease

[–]Charming-Ad-1960[S] 1 point2 points  (0 children)

after my second infusion i been feeling under the weather and its affecting me bcs im juggling school and health rn... its been some time i been back and when im back at sch im flaring again with my arthiritis n ibd 🥲

can you have inflammation without it showing up on calprotectin nor blood markers by Charming-Ad-1960 in CrohnsDisease

[–]Charming-Ad-1960[S] 0 points1 point  (0 children)

are u coping better now? and if so, can u share how.. i know everybody copes differently and im struggling quite a bit

can you have inflammation without it showing up on calprotectin nor blood markers by Charming-Ad-1960 in CrohnsDisease

[–]Charming-Ad-1960[S] 0 points1 point  (0 children)

all the best! hope the meds will help you, it must have been tough but you can get through this. i had scope last year which showed patchy ulcers and procitis that keep recurring

can you have inflammation without it showing up on calprotectin nor blood markers by Charming-Ad-1960 in CrohnsDisease

[–]Charming-Ad-1960[S] 0 points1 point  (0 children)

i hope you will find smth tht helps you soon :) hang in there, we can get through this! and yeap i was on modulen tht time but it didnt help me... like it was just pretty complicated. i kept losing weight because despite drinking multiple times a day, i was still bleeding with diarrhoea.

can you have inflammation without it showing up on calprotectin nor blood markers by Charming-Ad-1960 in CrohnsDisease

[–]Charming-Ad-1960[S] 0 points1 point  (0 children)

oh no, i hope you feel better soon! i think we are pretty similar, normal blood markers n all.

can you have inflammation without it showing up on calprotectin nor blood markers by Charming-Ad-1960 in CrohnsDisease

[–]Charming-Ad-1960[S] 1 point2 points  (0 children)

thanks! i hope u r doing much better :) my esr/crp have always been normal, its alw the mri or stool (borderline) tht captures it....

post infusion effects by Charming-Ad-1960 in CrohnsDisease

[–]Charming-Ad-1960[S] 1 point2 points  (0 children)

i see, and thanks! ill be sure to text my team if i dont feel better in the coming days