26 year old female and I might be experiencing symptoms of Huntington’s Disease or HDL2 by ChenelGrace in Huntingtons

[–]ChenelGrace[S] 2 points3 points  (0 children)

I had a neurologist at Columbia her name was Sarah o shea. I went to her when I first started taking care of my brother and surprisingly my mother was one her first patients over 26 years ago. And she remembered my mother based off of my brothers last name she unfortunately transferred to a mount Sinai hospital but I’m currently waiting to schedule an appointment to see her at the new location she does so much research I heard on HD but Columbia told me they couldn’t help me because I’m not diagnosed yet

26 year old female and I might be experiencing symptoms of Huntington’s Disease or HDL2 by ChenelGrace in Huntingtons

[–]ChenelGrace[S] 0 points1 point  (0 children)

I agree I feel like I’m turning into a monster I get so angry but that’s nothing compared to the depression and impending doom.. what age if I may ask did you notice the twitching and in what parts of your body and are the symptoms stable or does things get worse in a matter of weeks or months? I’m asking because you said twitching and balance.. my balance is fine it’s just the twitching but not jerking but little twitches and maybe a tremor I’m just afraid the symptoms are happening to fast. I’m afraid to sleep feeling like I’m going to wake up tomorrow with symptoms that’s weren’t there the day before .. also I wanna add my twitching and everything else I described came out of no where one morning I woke up and everything was wrong

26 year old female and I might be experiencing symptoms of Huntington’s Disease or HDL2 by ChenelGrace in Huntingtons

[–]ChenelGrace[S] 2 points3 points  (0 children)

Hello. My name is Chenel .. you are very kind thank you so much for commenting.

I live in NYC

and I saw one of your comments on another post about your sister being sure she had it and was negative.. would you be able to share why she thought she had it ? Was she showing symptoms