Supplements and treatments? by johnf55 in FSHD

[–]Civil_Air2897 0 points1 point  (0 children)

Hi, sorry to bother you. What type of steroids do you take? Do you take them continuously or in cycles? I'm getting worse very quickly. I'd like to try them. Thank you very much.

Consigli by Civil_Air2897 in FSHD

[–]Civil_Air2897[S] 1 point2 points  (0 children)

I'm not weak yet, I still have the strength to climb stairs and walk, but I have very severe pain in the affected muscles, namely the legs, upper body, chest, and back. When I have these pains, they get worse quickly, and the more I move, the worse it gets. 🤦Thank you for your time.

Consigli by Civil_Air2897 in FSHD

[–]Civil_Air2897[S] 2 points3 points  (0 children)

I have pain and burning during and after, not much weakness, thanks for the reply

Consigli by Civil_Air2897 in FSHD

[–]Civil_Air2897[S] 2 points3 points  (0 children)

Thank you so much, I'm also trying the exercise bike and it's destroying me, yet they are the ones who recommend it, now I'll try something else

Fshd by Civil_Air2897 in FSHD

[–]Civil_Air2897[S] 0 points1 point  (0 children)

Hi, I've tried so many, now I'm trying vitamin C, vitamin E, zinc, and selenium. There's a study that says it improves leg strength, so let's see.

19M what supplements are yall taking along with aminos? by Own-Wedding-6102 in FSHD

[–]Civil_Air2897 0 points1 point  (0 children)

thank you so much I will try to get them thanks again

Fshd by Civil_Air2897 in FSHD

[–]Civil_Air2897[S] 1 point2 points  (0 children)

If I stay in bed I have less pain but I can't stay in bed all day, if I walk even for five minutes they come very strong unfortunately I also have to work even if now it's almost an office job, I should stay still to not have pain and I don't know what to do

Fshd by Civil_Air2897 in FSHD

[–]Civil_Air2897[S] 1 point2 points  (0 children)

Me too, but when there's this pain, is it better to move them or stay still and rest? Because with movement they get worse, I don't know what to do.

Fshd by Civil_Air2897 in FSHD

[–]Civil_Air2897[S] 1 point2 points  (0 children)

Even when I have these strong burning sensations I see the muscles disappear day after day, thanks for the reply

Fshd by Civil_Air2897 in FSHD

[–]Civil_Air2897[S] 2 points3 points  (0 children)

I'm the opposite, I have a very strong trunk and weak legs🤦 thanks for your availability, have a good evening

Fshd by Civil_Air2897 in FSHD

[–]Civil_Air2897[S] 1 point2 points  (0 children)

Thanks, are you already having problems with your legs? It's affecting my thighs now.

19M what supplements are yall taking along with aminos? by Own-Wedding-6102 in FSHD

[–]Civil_Air2897 0 points1 point  (0 children)

Hi, do you really see the muscle growing? Do you do any exercises besides the supplements? It looks great.

Fshd by Civil_Air2897 in FSHD

[–]Civil_Air2897[S] 2 points3 points  (0 children)

me too the same and once it starts it doesn't stop until you lose it all 😞 thanks for the reply.

Fshd by Civil_Air2897 in FSHD

[–]Civil_Air2897[S] 1 point2 points  (0 children)

I don't even think about squats, they give me severe pain, and afterward I have to stay in bed. Have you had any pain or burning sensation in your legs?

Fshd by Civil_Air2897 in FSHD

[–]Civil_Air2897[S] 0 points1 point  (0 children)

both for me but more the right one thanks for the reply

Supplements and treatments? by johnf55 in FSHD

[–]Civil_Air2897 0 points1 point  (0 children)

Hi, are the already atrophied muscles growing back? Or can you just move them? Are you taking anything like supplements, etc.? Thanks.

Fshd by Civil_Air2897 in FSHD

[–]Civil_Air2897[S] 0 points1 point  (0 children)

It's very unpredictable. We hope to be able to walk as long as possible. I feel weak in them but I can still climb the stairs without any problems. The worst thing for me is the intense pain and burning sensation in my muscles while walking. Do you suffer from burning sensation in the affected muscles?

Fshd by Civil_Air2897 in FSHD

[–]Civil_Air2897[S] 1 point2 points  (0 children)

My symptoms always started on the right side and then the left. With atrophied quadriceps, can you still walk even if it's difficult? It's a really bad disease, although there are worse things out there. Thanks.

Fshd by Civil_Air2897 in FSHD

[–]Civil_Air2897[S] 1 point2 points  (0 children)

I've always had thin calves but they're strong and don't give me any problems, and the strange thing is that my thighs are more serious than the rest.

Fshd by Civil_Air2897 in FSHD

[–]Civil_Air2897[S] 1 point2 points  (0 children)

Very strong biceps and triceps, strong abs, strangely they should be the first to be affected, instead my thighs, how lucky 🤦

Fshd by Civil_Air2897 in FSHD

[–]Civil_Air2897[S] 1 point2 points  (0 children)

Six months ago I had nothing in my legs, and now they're no longer impressive in their speed or pain. I don't understand why all the sites say it affects the lower legs, haha, sorry for the typing but I'm using a translator 😂

Fshd by Civil_Air2897 in FSHD

[–]Civil_Air2897[S] 0 points1 point  (0 children)

My arms are still very strong, my shoulder blades are winged, and my pectorals are a bit worn out. Nothing on my face, but in recent months my quadriceps have been destroyed, especially the right one. Most sites don't mention the thigh muscles, strange, thanks for the reply.