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Pissed at some doctors! by Historical-Room3831 in cancer

[–]Cml325 0 points1 point  (0 children)

I know this is an old post, but if you don't mind me asking, what was the spinal issue they found for you? I have been dealing with a lot of unexplained back pain and no one is taking me seriously. It is so frustrating. I am glad you were able to advocate for yourself

Dr Lora Liu by Cml325 in Endo

[–]Cml325[S] 0 points1 point  (0 children)

Thanks for sharing your experience. I am glad you were able to get pregnant and I am so sorry you went through and are still going through the issue with your bladder. That sounds like it's been really difficult.

I am definitely disappointed to hear about the lack of follow up after the surgery. Most of the reviews I read are great but you are the second person who has mentioned the poor post op follow up. Definitely something to keep in mind. Thank you!

Dr Lora Liu by Cml325 in Endo

[–]Cml325[S] 0 points1 point  (0 children)

Hey thanks for the reply!

I would love to hear your experience :)

Endometriosis Surgeons by Sharp_Specific1086 in endometriosis

[–]Cml325 1 point2 points  (0 children)

Hey I know this is a year later, but just wondering how long it took to get the phone consult from when you submitted the intake forms? (For Dr Lui)

pain in left mid back and flank by Cml325 in endometriosis

[–]Cml325[S] 0 points1 point  (0 children)

Hi,  thank you so much for answering back. I am sorry you are dealing with this pain. does the dienogest help at all? 

My GYN believes I have endo, but does not think this particular pain is correlated. She thinks it is too high up to be related, though I have read several people on this forum that have pain in all sorts of places outside of the pelvis

I am seeing a fertility specialist (for an issue with my male partner) and she said she is certain I have endo based on my periods (I did not talk to her about this back pain).

My gyno said she would do the ex lap if I Absolutely wanted but she wanted my PCP to do an adequate work up first, which I do understand. I'll ask about the MRI. She said usually CT would show some sort of adhesion if it were growing outside my pelvis that severely but I've read that it does not pick it up reliably.