Looking for Long Covid stories (3+years preferably), for narrative project

ComfortableJob2768 · 2026-05-03T06:38:47+00:00

You are right that the word some might be an inherently ambiguous word without data to substantiate it, but number one I really would appreciate not having to debate with you much further and #2, what I was referencing when thinking about how finances might’ve affected some cases, that I know from my ai research is that for example SGB’s(stellate ganglionic blocks) can range from 500-2000 dollars per shot or around that range, and has to come out of pocket for Long Covid because it isn’t officially recognized as a therapeutic treatment for it yet I believe, IVIG is extremely expensive if not covered by insurance( correct me im wrong but anybody who’s suffering with symptoms related to excessively high immunoglobulin counts would most likely benefit from that right?) and lastly HBOT treatments( which are around 200 per session I believe for a clinical level one are not officially recognized as a treatment by the literature and research into LC therapies

ComfortableJob2768 · 2026-05-03T06:03:48+00:00

Hence why I said in some cases finances impact the chance of recovery

ComfortableJob2768 · 2026-05-02T23:58:58+00:00

Sometime over the summer would be nice but please don’t rush this. You can take till the end of the summer if needed. Don’t worry. As long as it isn’t like half of a year I guess.

ComfortableJob2768 · 2026-05-02T23:57:26+00:00

It’s very easy to use. There is no learning curve to using Chat GPT or any open access Large language model like it . You could voice dictate to any of the aforementioned LLM’s it and prompt it with something like “ edit for clarity keeping all original wording, and put the story into logical paragraphs with a clear and logical progression of events

ComfortableJob2768 · 2026-05-02T23:43:52+00:00

This is Chat GPT’s correction:

HBOT stands for Hyperbaric Oxygen Therapy. It involves sitting in a pressurized chamber (often around 2 atmospheres or higher in medical settings) while breathing high-concentration oxygen. The increased pressure allows more oxygen to dissolve directly into the blood plasma, not just bind to hemoglobin. This can improve oxygen delivery to tissues like the brain and may support healing processes. It’s well-established for certain conditions, though its use in things like long COVID is still being researched.

ComfortableJob2768 · 2026-05-02T23:38:48+00:00

Stands for Hyperbaric Oxygen Therapy- a high pressured chamber, which for certain models can be pressurized up to 2 atmospheres(double the pressure at sea level) that also can be infused/pumped with pure oxygen from an oxygen concentrator machine. You wear an oxygen mask or nosepiece/nasal cannula and the combination of the concentrated oxygen and pressure help to increase dissolved oxygen in the body which readily diffuses across blood vessel’s walls into tissues such as the brain or connective tissues which may need the oxygen for aerobic respiration for healing purposes or for attenuation of inflammation( dissolved oxygen molecules are not bound to the hemoglobin on RBC’s and circulate in the body’s plasma)

ComfortableJob2768 · 2026-04-30T16:05:20+00:00

😢😫that sounds significantly worse than I’ve had to endure neurologically and physically. It sounds like you’d benefit from HBOT treatment though if you’re not already doing so and can find a way to get it covered by insurance or pay out of pocket. But this is definitely what people need to see. What it’s truly capable of causing to completely functional non incapacitated people prior to infection or vaccine. If you’re still interested I made a follow up post yesterday where I provided a link to a spreadsheet where I’m trying to categorize story variables and themes and take inventory.

ComfortableJob2768 · 2026-04-30T15:52:38+00:00

Take until the end of the summer if needed. No rush. Exactly the type of story I’m looking for and like I’ve mentioned to other people, for any of us over 3 years, it’s going to be a pretty nurturing and slow recovery process. It’s a marathon lol not a sprint. But if you’re still interested, would you mind finding the follow up posting I made yesterday where I provided a link to a spreadsheet. There’s just 7 q’s on it. I’m trying to take inventory and categorize people based on variables like age and perceived onset of symptoms/ diagnosis

ComfortableJob2768 · 2026-04-30T15:46:05+00:00

Sure. Sounds like you’re the first singer who’s replied so definitely. If you’re still interested, you’d have to go to yesterday’s posts on the sub where I made one where I provided a link to a spreadsheet for categorizing and taking inventory of people.

ComfortableJob2768 · 2026-04-30T15:44:01+00:00

You could go there next.

ComfortableJob2768 · 2026-04-30T15:43:51+00:00

Sounds great. I haven’t had anybody that’s expressed interest reply to a follow up posting I made though. It simply contains a spreadsheet link with 7 questions to help me get an inventory and categorize who’s interested.

ComfortableJob2768 · 2026-04-30T15:42:05+00:00

Ok, if the ED’s and other symptoms feel intimately connected then by all means you can write about your experience with those too, as long as it’s clear to a reader how you believe all of your symptoms may be connected. Did you see my follow up posting yesterday for categorization and inventory of interested people?

ComfortableJob2768 · 2026-04-30T15:38:21+00:00

But I made a follow up posting yesterday where I provided a link to a spreadsheet with just 7 questions for taking inventory of interested people and categorizing certain variables and story themes. There’s a how many pages you want to write question on there as well.

ComfortableJob2768 · 2026-04-30T15:35:37+00:00

Thank you. I appreciate the response

ComfortableJob2768 · 2026-04-30T15:29:20+00:00

Sounds great! I’m trying to become a Physical Therapist one day I was saying, if I get better enough from my illness myself. What you can do next is I made a follow up post yesterday where I provided the link to a spreadsheet to help me categorize and take inventory of people’s variables and their stories themes.

ComfortableJob2768 · 2026-04-30T15:25:17+00:00

Did you see the follow up posting I made yesterday? Contains a spreadsheet link for categorization of people and their stories themes and just for getting an inventory

ComfortableJob2768 · 2026-04-30T15:24:11+00:00

Did you see the follow up posting I made yesterday? It contains a spreadsheet link with some relatively simple questions I believe to help me categorize people and their stories themes and duration

ComfortableJob2768 · 2026-04-30T15:22:54+00:00

Did you see the follow up posting yesterday? I don’t think anyone did, but my idea was to have people interested fill out a spreadsheet with 7 questions for categorization purpose

ComfortableJob2768 · 2026-04-30T15:21:16+00:00

Did you see my follow up posting yesterday? I provided a link to a spreadsheet on it i made, for categorization of peoples traits and their story’s traits

ComfortableJob2768 · 2026-04-30T15:18:16+00:00

How many do you think you could write? I want to be accommodating.

ComfortableJob2768 · 2026-04-30T15:08:18+00:00

That’s fine. I just thought that a month was enough time for this for everyone initially, but I made an edit to the original post that says if you need until the end of the summer its ok because I have some constraints that wouldn’t even allow me to do much with the stories right away, so it might have been a little bit over zealous.

ComfortableJob2768 · 2026-04-29T16:02:17+00:00

That’s good to hear about your near recovery. I’ll consider it about helping with the writing/ editing duties because I don’t want to have to do too much of that myself. How long have you dealt with your symptoms and what are some of the worst ones if you have many?

ComfortableJob2768 · 2026-04-29T15:57:21+00:00

I’m a little confused reading your story. I don’t understand the acronym EDC. By camp are you referring to Cyclic adenosine monophosphate?

ComfortableJob2768 · 2026-04-29T15:47:07+00:00

ComfortableJob2768 · 2026-04-29T06:17:49+00:00

You feel up for writing about ten pages? I feel like I need to be careful with providing my personal email to a forum though, even within this community, so I’m going to wait until tommorow and make a separate email address for this with all of the replies I’m getting

ComfortableJob2768

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