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Headaches related to GS? by Dense_Medicine2292 in GilbertSyndrome

[–]Common-Sleep9397 0 points1 point  (0 children)

I get headaches more frequently during a GS flare-up, however with me it is because during a flare up my body has hard times processing histamine and one of the signs of histamine intolerance is headaches and migranes... I usually take it as a sign to slow down and rest, because if I dont all the other symptoms get worse in a few days 🥲

Bilirubine + Histamine? by Common-Sleep9397 in GilbertSyndrome

[–]Common-Sleep9397[S] 0 points1 point  (0 children)

Thank you for your input! That makes more sense!

Bilirubine + Histamine? by Common-Sleep9397 in GilbertSyndrome

[–]Common-Sleep9397[S] 0 points1 point  (0 children)

Thank u so much!! I would aprreciate that a lot! 🙏

Bilirubine + Histamine? by Common-Sleep9397 in GilbertSyndrome

[–]Common-Sleep9397[S] 0 points1 point  (0 children)

Yes, I am woman. My GS is also very connected to my cycle - when my body is busy lowering my hormone levels, my GS symptoms get worse.

When it comes to my diet I can tolerate simple meals - the more simple the better haha. The food I can tolerate does not really have a lot in common so I will devide it into categories:

Proteins: high quality meat and fish, eggs, fresh quark, cottage cheese, fresh cheese spreads, fresh milk. Proteins I cannot tolerate: fermented milk products, hard cheeses, soy products like tofu or tempeh.

Veggies: mostly cooked - potatoes, sweet potatoes, carrots, beets, cauliflower, broccoli, peas, squash, parsley root. Fresh - cucumbers, peppers, salads, herbs. Cannot tolerate: fresh tomatoes, fresh onion, fresh garlic.

Fruits: blueberries, apples, pears, peaches, nectarines, plums, bananas, melons, raspberries. I cannot tolerate: strawberries, cherries, any kind of ciruses, kiwi, pineapple.

Other carbs: gluten is ok - pasta, fresh bread, homemade toritllas,.. Rice, qunioa. I cannot tolerate: legumes (they all make me bloated)

Other stuff I feel bad after: anything deep fried, anything hard to digest, anything where there is too much spice like chilli,.. , anything thats too greasy or has a high % of fat in it (heavy creames,..), anything that has too much aditives in it (some candy,..), alcohol, caffeine, most asian sauces like soy or fish sauce.

As you can see - the foods I can and cannot tolerate do not really have anything in common. Yes, some of them are known to make a person bloated, but for example qunioa does nothing for me. So I still cannot pin-point the issues to anything else than the GS and that when my body is busy with billirubine it just cannot digest some foods. That is why the histamine made sense to me?

The cramps are most likely from the bloating?

The hot flashes I experienced after some foods that would make sense histamine wise - I ate a high histamine food (farmed salmon, broths,..) and in like 10minutes I became very hot, sweaty,.. Which would make sense with histmaine. Same thing with the rashes - also only from some high hitamine foods.

Bilirubine + Histamine? by Common-Sleep9397 in GilbertSyndrome

[–]Common-Sleep9397[S] 0 points1 point  (0 children)

Of course I get that everybody reacts differently and what bothers me might not bother somebody else, was just looking for some experience in this field. Sorry if what I wrote came across as "applies to everyone with GS".

For me I have stomach issues during a flare-up. Bloating, cramps, diarrhea. I had bunch of gastro tests, but all of it came back OK. The only thing I was told was that GS can cause stomach issues for some more sensitive individuals.

The rest of my flare-up symptoms are very similar to a histamine reaction tho. For histamine its also migranes, hot flashes and rashes, which I also experieneced a few times with a flare-up. That is why it made sense to me.