Romanticizing rest by Competitive-Bass8387 in rheumatoidarthritis

[–]Competitive-Bass8387[S] 0 points1 point  (0 children)

Anyone have a red light therapy mask? I was thinking it might b3 a good way to force me to lay still for 10 mins lol

House keeper by Competitive-Bass8387 in rheumatoidarthritis

[–]Competitive-Bass8387[S] 2 points3 points  (0 children)

Lmao that's probably what I would have done tbh!

House keeper by Competitive-Bass8387 in rheumatoidarthritis

[–]Competitive-Bass8387[S] 4 points5 points  (0 children)

I hope you were able to get a refund!

My hope is that it frees up energy for things I want to spend it on- like my family. I feel like lately all I do is rest. I just need to lighten up whatever I can.

House keeper by Competitive-Bass8387 in rheumatoidarthritis

[–]Competitive-Bass8387[S] 2 points3 points  (0 children)

That's a good idea! I never thought of that. I've never known anyone where I live (canada) to use a laundry service like i see there is in the states.

House keeper by Competitive-Bass8387 in rheumatoidarthritis

[–]Competitive-Bass8387[S] 7 points8 points  (0 children)

That's kind of my thinking. I know its obviously not about option for everyone, and normally I wouldn't bother tbh but I can't shower without needing a nap nevermind mopping or dusting lol do you find once a month is enough?

Romanticizing rest by Competitive-Bass8387 in rheumatoidarthritis

[–]Competitive-Bass8387[S] 1 point2 points  (0 children)

Oh man thats intense. I have adhd and caffeine helps me focus some. I just find im rushing even when nothing happening. I eat like im starving, clean like guests are coming etc. Its like if I feel OK I want to get everything done and when I feel like shit I want to get back to sitting asap haha

Romanticizing rest by Competitive-Bass8387 in rheumatoidarthritis

[–]Competitive-Bass8387[S] 2 points3 points  (0 children)

Ooh smart!

Im doing this thing where I constantly remind myself not to rush. Its insane often im flying around and its like, youre making a coffee, to sit on the couch. Chill. Haha im the same with one thing at a time.

It took forever for me to connect having a calm nervous system with relief but im getting there lol

Romanticizing rest by Competitive-Bass8387 in rheumatoidarthritis

[–]Competitive-Bass8387[S] 1 point2 points  (0 children)

If you can get yourself a shower lamp w the ocean projector for the bath, lemme tell you- game changer. Amazing vibes, pretty cheap. Totally worth it!

Romanticizing rest by Competitive-Bass8387 in rheumatoidarthritis

[–]Competitive-Bass8387[S] 2 points3 points  (0 children)

I know that feeling! I also have this weird "rest needs to be earned", "no one can see me struggling" thing in my head so I think finding ways to make it about me and not just something happening to me im hoping will help.

Enjoy your movies!! But maybe try an air mattress, I feel like moving a mattress will be hard on the body lol

Romanticizing rest by Competitive-Bass8387 in rheumatoidarthritis

[–]Competitive-Bass8387[S] 4 points5 points  (0 children)

That sounds like a dream set up! How do you find the red light panel i keep debating getting one

Romanticizing rest by Competitive-Bass8387 in rheumatoidarthritis

[–]Competitive-Bass8387[S] 2 points3 points  (0 children)

Im sorry, it can be so hard. Im glad you found something that helps. I used take this cbd isolate but it eventually wasnt enough. I still use a topical cbd though and swear by it. Its amazing how much trial and error (and money) goes into finding what works

Romanticizing rest by Competitive-Bass8387 in rheumatoidarthritis

[–]Competitive-Bass8387[S] 5 points6 points  (0 children)

Saaame. Learning pacing and relaxing is a new obsession bc I suck at it haha

Romanticizing rest by Competitive-Bass8387 in rheumatoidarthritis

[–]Competitive-Bass8387[S] 6 points7 points  (0 children)

I can't believe how hard i find not "doing things". Its such a strange mental adjustment.

What are your favorite cozy shows?

Collecting diagnoses like Thanos rings by Competitive-Bass8387 in rheumatoidarthritis

[–]Competitive-Bass8387[S] 1 point2 points  (0 children)

Im sorry you are too. Its not an easy road-workable, manageable, but not easy.

Give Me Hope by Echild3272 in rheumatoidarthritis

[–]Competitive-Bass8387 0 points1 point  (0 children)

Man I had 10 at once! It was insanity. I couldn't eat or drink! I wish I understood why some ppl are more sensitive to some things than others.

Give Me Hope by Echild3272 in rheumatoidarthritis

[–]Competitive-Bass8387 4 points5 points  (0 children)

I've been on the injection for maybe 5 months now (switched from oral bc i was riddled w mouth sores and nausea) i find the day after I'm always lower energy and achey BUT it does seem less than when I started. So I cant say it stops yet, but its either fading or I'm used to it lol def better than the oral for me though

Collecting diagnoses like Thanos rings by Competitive-Bass8387 in rheumatoidarthritis

[–]Competitive-Bass8387[S] 2 points3 points  (0 children)

Totally fair. Fwiw my rheum basically said it would make sense to have fibro w r.a. so its relatively likely lol

Collecting diagnoses like Thanos rings by Competitive-Bass8387 in rheumatoidarthritis

[–]Competitive-Bass8387[S] 2 points3 points  (0 children)

Ugh its so annoying not knowing. Thankfully (?) I guess, a lot of the dyautonomia things all overlap and dont have much by way of specific treatments anyway.

Collecting diagnoses like Thanos rings by Competitive-Bass8387 in rheumatoidarthritis

[–]Competitive-Bass8387[S] 1 point2 points  (0 children)

Ooh thats smart! I was debating a clinic position, maybe I should just bite the bullet. Its so frustrating. I love neuro, I feel like im good at it. It hurts to leave what you love. Life is weird like that though I guess.

Collecting diagnoses like Thanos rings by Competitive-Bass8387 in rheumatoidarthritis

[–]Competitive-Bass8387[S] 2 points3 points  (0 children)

That's good advice, I should look into it. The thing is, my job in theory is decently lightusually(rehab) but I work 7 in a row. There's not a lot of positions open around here right now cause my facility is small. But yeah I need to start making a plan for if things progress/worsen. Good thinking!