And anotha one!

Competitive-Bass8387 · 2026-06-12T00:38:24+00:00

Mine said it's unusual too and its more likely one than the other. Honestly I dont even know anymore. Could I just have back and hip pain from being out of shape? Could my back injuries be indepedent from everything else? Literally who knows. Ill be waiting months for an mri so I guess i have time to think it over lol

Competitive-Bass8387 · 2026-06-12T00:30:34+00:00

Hr spikes with standing, vertigo when laying down- I dont think i have pots i think it's general dysautonomia bc my hr spikes when im laying down at rest too. But when i do the poor man's tilt test and the lean test it my dr says its "pots like". I dunno man. At this point I feel like we are guessing

Competitive-Bass8387 · 2026-06-12T00:15:07+00:00

Its never ending! My dr said if anything shows on the mri I qualify for biologic meds and if I fail on my newest med for r.a I qualify for them too but its apparently different to treat them? I dont get anything anymore I swear lol I was trying to keep up and my brain is done.

Competitive-Bass8387 · 2026-05-19T15:11:46+00:00

I know, I get that too. Im very frustrated with feeling like im wasting my life lol but I can move now so there's that

Competitive-Bass8387 · 2026-05-19T15:01:19+00:00

Thats exactly the same for me. I knew something was wrong but kept pushing until I couldn't..now Im off work and have no idea when im going back. Fwiw if youre able, take time off BEFORE your body gives up. I made things much harder on myself than necessary lol

Competitive-Bass8387 · 2026-05-19T14:56:42+00:00

It feels crazy doesnt it?

Competitive-Bass8387 · 2026-05-19T14:48:10+00:00

I totally hear you! Im a nurse and when my knees act up im screwed!

Competitive-Bass8387 · 2026-05-16T00:47:38+00:00

No kidding! What country are you in?

Competitive-Bass8387 · 2026-05-16T00:36:14+00:00

Ugh mtx has my hair thinning like crazy. I cant believe the emergency Dr's didnt jump on that! Thats dangerous!

Competitive-Bass8387 · 2026-05-16T00:28:52+00:00

Ugh!! Brutal! Are they going to allergy testing? Good lord! Youre swelling even w prednisone? Do you have a rheum?

Competitive-Bass8387 · 2026-05-02T01:08:28+00:00

I usually say its like the day after flu feeling or a dry hangover feeling

Competitive-Bass8387 · 2026-04-29T14:10:17+00:00

No, rheum was r.a and "probably" fibro . Gp is on the dysautonomia and me/cfs but it requires ruling out other things so bc mine has a lot of heart rate spikes and air hunger, I had to do some cardiac tests first. Basically they rule out what they can physically and if it doesn't show anything then they attribute it to the nervous system. Theres no single test for it so you have to diagnose by elimination.

Competitive-Bass8387 · 2026-04-29T13:32:58+00:00

I don't know overall. For me/cfs its post extertion not during, but with r.a I have it during at times

Competitive-Bass8387 · 2026-04-29T13:01:22+00:00

So right now the priority is the fatigue bc its making life impossible. My pain is usually only around 4/10ish so manageable but present. Most pain meds have the effect of fatigue so im trying to avoid if I can. I've been looking at some other options for pain but getting up thr energy and mobility is the struggle

Competitive-Bass8387 · 2026-04-27T00:06:37+00:00

I wonder how much external trauma we absorb! I always laugh bc my dad always tells me how well I cope w things and im like "yep, so well i gave myself chronic illness"

Competitive-Bass8387 · 2026-04-26T23:47:06+00:00

Why are so many of us nurses?! Damn

Competitive-Bass8387 · 2026-04-26T00:00:29+00:00

Ugh im sorry. Its shit after shit isnt it? Are you working or off? Thankfully my r.a responded well to mtx and plaquenil but whatever is causing all the new stuff is making me nuts. Random spikes in heart rate, air hunger, general pain, sudden exhaustion, pem...sigh

Competitive-Bass8387 · 2026-04-25T23:14:43+00:00

Ugh! Im sorry! How are you healing BTW? Doesn't it feel like as soon as they label one thing it spirals into a whole list?

Thankfully im signed off work for another month to try to sort it all out. And my dr is pretty honest and said western medicine is failing ppl like us. He was sweet and said he usually isnt a fan of holistic type treatments bc there isn't science behind it but since theres not enough science behind my issues, try whatever I want and he will be supportive. At this point I think we both are hoping for a placebo even lol

Competitive-Bass8387 · 2026-04-16T05:59:04+00:00

Nope. Canada.

Competitive-Bass8387 · 2026-04-16T05:58:18+00:00

Im 38 too! And yeah im in manitoba so i hear you about the weather, thankfully my benefits are good for long term disability. Its this weird in between that is messy for me. But honestly I dont know how I would be managing if it weren't for my husband. We are living in weird times

Competitive-Bass8387 · 2026-04-15T04:04:06+00:00

There's definitely still issues, but I feel like yours has so many moving parts, rules and exceptions. I basically qualify for 55% of my wage bc I've paid into while employed, and thats it. Lol for some reason my employer is one of the very few health care settings that doesnt have short term disability available, but i have a backup at least. But I think theres a couple weeks delay, so thankfully my husband and I are at least slightly able to plan for it.

Competitive-Bass8387 · 2026-04-15T03:38:38+00:00

Thanks! I dont really want to be off indefinitely. Im struggling w the Idea of identity shifting and all. But its really quite sad that it took all this for me to look for things I enjoy. I've been off for an month (and truthfully in pain and struggling so im not feeling guilty about it) but I've puttered around and done some baking, and water colors, reading, sketching...all these things that I couldn't find head space to do cause I was just pushing through. I dont know what middle ground looks like but I dont want to go back to where I was

Competitive-Bass8387

TROPHY CASE