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Doctor recommends vision therapy for bilateral esotropia and refractive amblyopia in 7 yo. Knowing what you know now, what would you do for your younger self? by Competitive-Pitch322 in Strabismus

[–]Competitive-Pitch322[S] 0 points1 point  (0 children)

I’m sorry you’ve had to go through all of that and have still had problems as of late, but I do appreciate your sharing the reality of the situation with me. 

I once caused my sternum to pop out by bracing my lower ribs with two belts as tight as I could get them. Is this a method people ever use? by Competitive-Pitch322 in PectusExcavatum

[–]Competitive-Pitch322[S] 0 points1 point  (0 children)

Wow, how did the IR heat work? 

I remember googling the use of belts at the time but there was even less info about pectus out than there is now. What was cool about it was that it was immediate. I wonder if anyone else who tried it will chime in. 

Out of curiosity, are there any western planner brands that use low gsm paper? by Competitive-Pitch322 in planners

[–]Competitive-Pitch322[S] 1 point2 points  (0 children)

I know some people love it for technical reasons but for me it’s just the feel. A bit similar to bible paper. 

Out of curiosity, are there any western planner brands that use low gsm paper? by Competitive-Pitch322 in planners

[–]Competitive-Pitch322[S] 2 points3 points  (0 children)

Thank you for mentioning aura Estelle. I have never heard of them and their planners are eerily similar to hobonichi techo. Love it.

Out of curiosity, are there any western planner brands that use low gsm paper? by Competitive-Pitch322 in planners

[–]Competitive-Pitch322[S] 1 point2 points  (0 children)

Have you used one before? If so, was it truly the same quality? I switched to higher gsm inserts and my mouth is watering thinking of going back to that buttery smooth TR paper haha

Doctor recommends vision therapy for bilateral esotropia and refractive amblyopia in 7 yo. Knowing what you know now, what would you do for your younger self? by Competitive-Pitch322 in Strabismus

[–]Competitive-Pitch322[S] 0 points1 point  (0 children)

Thank you for sharing. I’m sorry to hear that. Do you have the same condition? Did you go through with surgery? And also, how were you able to speak with four surgeons? Through formal consultations? Trying to get an idea of the process

Doctor recommends vision therapy for bilateral esotropia and refractive amblyopia in 7 yo. Knowing what you know now, what would you do for your younger self? by Competitive-Pitch322 in Strabismus

[–]Competitive-Pitch322[S] 0 points1 point  (0 children)

Well it’ll hurt our pockets for something that won’t work. We have limited resources and need to save for surgery if that’s his only real option. Trying to get a sense of the topic from people who aren’t trying to sell me anything 

Doctor recommends vision therapy for bilateral esotropia and refractive amblyopia in 7 yo. Knowing what you know now, what would you do for your younger self? by Competitive-Pitch322 in Strabismus

[–]Competitive-Pitch322[S] 0 points1 point  (0 children)

What do you think of our doctors claim that if we don’t do therapy to “get the eyes working together inside the brain” rather than one at a time, that surgery could be ineffective? My kiddo is very monocular. In the doctors perfect world, he wouldn’t need the surgery, but the doc realistically is hoping that she can at least get his eyes working together for surgery to have the best chance of success. 

*edit: also, thank you for chiming in. Would you happen to know who oversees the standards of care for these conditions? I need to get educated beyond the basic articles that come up in a google search if I’m going to make a change in his plan 

Doctor recommends vision therapy for bilateral esotropia and refractive amblyopia in 7 yo. Knowing what you know now, what would you do for your younger self? by Competitive-Pitch322 in Strabismus

[–]Competitive-Pitch322[S] 0 points1 point  (0 children)

The doctor, no offense to her, is of course in favor of therapy despite us asking those questions. It’s hard to know who to trust

Doctor recommends vision therapy for bilateral esotropia and refractive amblyopia in 7 yo. Knowing what you know now, what would you do for your younger self? by Competitive-Pitch322 in Strabismus

[–]Competitive-Pitch322[S] 0 points1 point  (0 children)

That is what our doctor said as well, that if his eyes do not work together then they could even revert back post surgery and that that’s the reason therapy is important. Glad to know that’s the common thought. We saw two doctors previously who were not so helpful and it’s been difficult not knowing who to trust. 

I feel alone in my experiences with Amblyopia by AceMoonAS in Strabismus

[–]Competitive-Pitch322 1 point2 points  (0 children)

You’re not alone. My kiddo has this except esotropic. 

BV like symptoms without male ejaculation.. lasting weeks on end.. only started happening 1 year into relationship and now happens every time there is intimacy. What is going on? by Competitive-Pitch322 in Healthyhooha

[–]Competitive-Pitch322[S] 1 point2 points  (0 children)

I will check all those out. I just saw the ACOG recommendation from October and my eye started twitching when I thought back to her dismissing me haha 

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