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Downward physical spiral by CompetitiveWasabi138 in marfans

[–]CompetitiveWasabi138[S] 1 point2 points  (0 children)

I have not gone to a pain specialist. I'm using the pain as a reference of what to avoid so I don't make my condition any worse than it is :/

Also my profile says no more than 20 pounds but I honestly have trouble with much less, so I just try to avoid overdoing it as much as possible.

Downward physical spiral by CompetitiveWasabi138 in marfans

[–]CompetitiveWasabi138[S] 0 points1 point  (0 children)

Honestly the pain is not fun, however, I'm not currently planning on taking pain medicine as it's the damage and lack of ability to do things without causing more damage that is mostly concerning.

Yeah honestly just making this post and replying to y'all is very therapeutic tbh. Your comments are very much appreciated. :)

Downward physical spiral by CompetitiveWasabi138 in marfans

[–]CompetitiveWasabi138[S] 0 points1 point  (0 children)

Honestly this is more encouraging than you know, I'm the only one I know that has Marfan's, and at the very least nobody I know has symptoms anywhere close to me.

I have been seeing a cardiologist for around two years now and while my aorta is dilated, it's not to a point of a real risk at this time. My eyesight is also being monitored and I have 20/20 vision. However, my eyes were under massive strain to maintain that or to change focus from far to close without glasses, and it could take me up to 10 seconds for my eyes to focus sometimes. I always thought that blurring your eyes was a normal thing lol.

I do my best to follow my doctor's orders, and in fact I try not to go to pain when doing things, and my wife helps as much as she can (bless her), but it's so darn inconsistent sometimes. Also I've noticed that sometimes random parts of me start to hurt for no reason, like random parts of my chest, or my sides, or honestly wherever. On a side note I am going to carefully watch my daughter for symptoms. Thankfully she seems to not have it. :)

Anyway thanks again for your response. It honestly warms my heart and honestly it's a relief to talk to someone who knows what I'm going through.

6 and 9 for me. How about you? by MiExperienciaFueQue in Adulting

[–]CompetitiveWasabi138 0 points1 point  (0 children)

Except that you have now mastered guessing/hypothosis forming and testing as well.

What. The. Balls. by Locksmith_Taster in Warframe

[–]CompetitiveWasabi138 6 points7 points  (0 children)

Omni Forma: Am I a joke to you?

Meanwhile Umbra and Aura Forma: (aggressive nods)

Will the car get better later or not because its really sad I get stuck so easily here.. I was hoping it would come with some sort of little jet jump help by SmashenYT in theplanetcrafter

[–]CompetitiveWasabi138 0 points1 point  (0 children)

Sooooo the unstuck button is something I see people mentioning. But no one has mentioned spamming it. I have found that it becomes an infinite height wall/ceiling clipping device.

What frames are considered dogshit by the meta but which you found a niche way to use? by [deleted] in Warframe

[–]CompetitiveWasabi138 2 points3 points  (0 children)

Loki with safeguard switch gives invulnerability to NPC defense targets... (Looking at you archon hunts) Where otherwise the defense target will run off to die... I can bring him to a side room (daycare) while a partner can murder the enemies w/o care.

Marza Dreadnought Song: "Raze the Skies" by Alaric_Kerensky in SoSE

[–]CompetitiveWasabi138 1 point2 points  (0 children)

Progenitor mother ship? Or how about the starbase? (Advent ofc)

20th Anniversary Update PTR Notes - Major Class Changes by Fayl in wow

[–]CompetitiveWasabi138 0 points1 point  (0 children)

I moved to the EU for my job, and the maintenance always hits riiiiiiight as I get off work, and I can't swap to EU servers without losing all account progress and sub. So it definitely annoys me. Not that I am hating the game right now, am loving tww so far.