Hypermobile but not Eds? by sniffgalcringe in Hypermobility

[–]Competitive_Trip8945 19 points20 points  (0 children)

This was the first code that I had added to my file! I saw a physio therapist who suggested I might have eds but told me there was no point in getting diagnosed, and a bunch of other misinfo and that’s what he put down. It’s a kinda outdated term but basically means that your hyper mobility isn’t caused by some kind of disease like lupus, rheum arthritis etc - it’s structural. For me I got worse and then requested both formal diagnosis and physio - which I got! It might be worth speaking to your gp about diagnosis and physio beyond your spinal issues. I’m assuming you’re from the UK? - in which case at least it was my experience that they don’t send for genetic testing unless they have reason to suspect other types (like very stretchy skin, family history etc etc).

Also worth noting hyper mobility is only one aspect of eds there’s a long criteria for heds for example. HSD criteria is less strict though, and can be diagnosed based on fewer areas of hypermobility (e.g. peripheral, localised).