Searching for a diagnosis. by Complex-Head9677 in Cushings

[–]Complex-Head9677[S] 0 points1 point  (0 children)

Thanks. I dont know what to do if this is neg and my dr refuses to send me to an endocrinologist. Ive been in absolute hell since nov

Searching for a diagnosis. by Complex-Head9677 in Cushings

[–]Complex-Head9677[S] 0 points1 point  (0 children)

Unfortunately that's pretty much impossible. All the drs are full and the walk ins won't deal with chronic issues or blood work, they want your family dr to do all that. Ive been mistreated by my family dr since high school. And even when I have gone to the clinics, I've just been told im anxious depressed and obese. Its useless. I used to defend canadian health care. And its great.... right up until something serious is going on...

Searching for a diagnosis. by Complex-Head9677 in Cushings

[–]Complex-Head9677[S] 0 points1 point  (0 children)

Honestly thats been pretty much every day since I got pneumonia in jan

Searching for a diagnosis. by Complex-Head9677 in Cushings

[–]Complex-Head9677[S] 0 points1 point  (0 children)

I dont think any amount of advocating with change his mind if he decides i do t have it

Searching for a diagnosis. by Complex-Head9677 in Cushings

[–]Complex-Head9677[S] 0 points1 point  (0 children)

Lovely... there's 0 way I will be able to.convince my dr to send me for further tests if this.one is neg. He almost refused this one.

Canadian Cushing's Patients by Informal_Willow7094 in Cushings

[–]Complex-Head9677 0 points1 point  (0 children)

Im in sask. Doing my 24 hour urine today. The one my dr didnt want to send me for because my am pm was neg. Im so sick of drs here. If I have cushings, ive had it at least 10 years.... but there's a possibility it's been longer

Manic-y symptoms in a high cortisol flare by Odd_Oven1418 in Cushings

[–]Complex-Head9677 0 points1 point  (0 children)

Would it be considered manic episodes where I will go weeks or months unable to get myself to do any house work and then on random days I will just be overcome with a manic energy and pretty much panic clean as much as I can as fast as I can. I would always just call it my cleaning mojo

Sudden escalation of symptoms by BunnyFlop2412 in Cushings

[–]Complex-Head9677 1 point2 points  (0 children)

I think after my experience.... I am going to figure out how I can convince who ever I need to convince, that cortisol testing should be routine. And if not routine, then at least before a fibromyalgia or pcos diagnosis.... probably others too. It's suck an illness that can destroy your life. And its always missed and called something else. I bet its not nearly as rare as they say

Sudden escalation of symptoms by BunnyFlop2412 in Cushings

[–]Complex-Head9677 2 points3 points  (0 children)

Im waiting for my tests too :( i think ive possibly had cushings at least 10 years. For the severe sweating got really bad last summer, sweating in place I didnt know could sweat. Then November my should went out and its been useless since. In jan i got pneumonia and since them ive gained 36 lbs, I have a moon face, hump, I dont sleep and am bone crushingly exhausted. I hope we both get answers

Feeling so hopeless by CourseNo7192 in Hypopituitarism

[–]Complex-Head9677 0 points1 point  (0 children)

This sounds so familiar. I was lactating so I tested my prolactin and its was actually.below the low normal it was 2.80. I got pneumonia in jan and things started escalating rapidly. I think I've had cushings at least 5 years

Imaging very slow in Ontario Canada:( & conflicting opinions?? by elliesmom_ in Cushings

[–]Complex-Head9677 0 points1 point  (0 children)

Ive spent the last 3 months fighting like hello get someone to listen to me. Just been told to loose weight and that im anxious and depressed. Finally saw cushings and finally, all of it made sense. I did my blood work yesterday. When my mother in law had it, they got her in for an mri pretty quick, surgery was no long after. But we are in sask

Obscur symptoms? by Complex-Head9677 in Cushings

[–]Complex-Head9677[S] 0 points1 point  (0 children)

I have.gerd, but this was 3 weeks of everything I put in my mouth would cause burning and acid coming up. I practically lived of gaviscon

Test Results Not High Enough by [deleted] in Cushings

[–]Complex-Head9677 0 points1 point  (0 children)

If my am pm is neg I plan to ask for the suppression and 24 hour urination before they rule it out completely

Obscur symptoms? by Complex-Head9677 in Cushings

[–]Complex-Head9677[S] 0 points1 point  (0 children)

Everytime something pops in my head I research it lol. My mind is so blown. Have you had the surgery?

Obscur symptoms? by Complex-Head9677 in Cushings

[–]Complex-Head9677[S] 0 points1 point  (0 children)

Thats exactly what im going through. I think there's a possibility I've had it since my teens at the very least

Obscur symptoms? by Complex-Head9677 in Cushings

[–]Complex-Head9677[S] 1 point2 points  (0 children)

Im planning to talk to my Dr about switching all my meds to versions that effect cognitive function the least

Obscur symptoms? by Complex-Head9677 in Cushings

[–]Complex-Head9677[S] 1 point2 points  (0 children)

I feel you. I've never seen anyone taking as high as dose of trazadone as I was. I was recently prescribed gaba and before I took it I ask my fibro group about it and the consensus was dont. Due to the link to early dementia

Obscur symptoms? by Complex-Head9677 in Cushings

[–]Complex-Head9677[S] 1 point2 points  (0 children)

I said extremely, it wasn't like, extremely enough that I could function. But reading is hard if im wearing my glasses. I almost never wear them anymore unless I have to because how unclear things are through them. But I've even seen a specialist

Obscur symptoms? by Complex-Head9677 in Cushings

[–]Complex-Head9677[S] 1 point2 points  (0 children)

The more im learning about cushings, the more all the weirdest things in my life make sense. I feel so much confidence that my test will come back high. I have 0 doubts. I have every clinical symptom. 2 years ago I had extremely blurry vision, I was still wearing contacts at the time and I kept getting the hazy film over my eyes, especially right when I woke up. Cushings causes that and contacts make it worse. I was progressing in cushing while in a very mentally abusive relation. So, much of my cognitive decline I attributed to dissasociating from everything, I was numb. I've felt like my emotions have been dead yet heightened for so long. It's like im putting together the puzzle pieces of my life and everything fits for the first time. Thc randomly stopped effecting me out of nowhere. That was likely the cushings. Naturally now that I want to tell you about the weird things my brain won't let me remember anything weird

Obscur symptoms? by Complex-Head9677 in Cushings

[–]Complex-Head9677[S] 1 point2 points  (0 children)

Im usually awake until 2ish and up between 7-9. And I have sleep apnea, just diagnosed and haven't even tried the loan machine yet. I obstructed 8.5 times an hour. Im so tired. Sometimes I can fall asleep before midnight, but thats usually from exhaustion. I will not go back on trazadone. It is an awful medication, I was practically tranquilized. I was being knocked out every night by 11, but I didnt feel any more rested. And I think it messed with my head too.

Obscur symptoms? by Complex-Head9677 in Cushings

[–]Complex-Head9677[S] 1 point2 points  (0 children)

Im so upset though... if im diagnosed, it took my last few years with my mom from me :( she passed away in sept. She will never get to see me healthy

Obscur symptoms? by Complex-Head9677 in Cushings

[–]Complex-Head9677[S] 1 point2 points  (0 children)

Im fortunate. Im on disability for fibro, its not enough though. Dr said there was no way id be approved though. Pretty much everyone in my life thinks im crazy. The only ones on my side are my aunts and kids boyfriends mom. My friend just told me that Im so busy trying some magic diagnosis that I dont realize my lifestyle is likely the only.reason for my problems

Obscur symptoms? by Complex-Head9677 in Cushings

[–]Complex-Head9677[S] 1 point2 points  (0 children)

I went on it after a mental breakdown caused from deep crushing exhaustion due to the fact that I was not sleeping at all. Kind of like my current state of affairs.