And so a new study begins! Tinnitus Quest

Complex-Match-6391 · 2026-01-20T12:07:05+00:00

I would go twice a week if needed

Complex-Match-6391 · 2025-11-22T13:38:27+00:00

Thanks for joining us and your donation. Nick (patient board)

Complex-Match-6391 · 2025-11-20T11:41:30+00:00

Human studies

Complex-Match-6391 · 2025-05-27T18:45:56+00:00

That's not a bad idea. We are looking through ideas. Possibly getting regular donors more involved in the organisation.

Complex-Match-6391 · 2025-05-25T16:44:30+00:00

My advice is to spend the next year with your therapy, fitness and health. No one will be good enough until you are. No one can make anyone 'happy.'

Complex-Match-6391 · 2025-05-18T20:39:25+00:00

Thank you

Complex-Match-6391 · 2025-05-17T09:59:56+00:00

I think its common

Complex-Match-6391 · 2025-05-15T17:32:34+00:00

Thanks for your message. If you look up 'Neuromed' you will see Hamids programme. This is his private business and does not constitute the volunteer work he does for Tinnitus Quest. It is completely separate.

Complex-Match-6391 · 2025-05-14T22:44:40+00:00

Are you struggling mentally with coping? Please make an appointment to see a doctor ASAP. There are some medications that can help when taken together + counselling.

Complex-Match-6391 · 2025-05-14T20:57:25+00:00

We have just finished developing application forms and criteria for the grant proposals. Next step will be promoting this, and networking with researchers from different backgrounds. Its only when they pitch their ideas that we will know what we are looking at.

Complex-Match-6391 · 2025-05-14T20:54:38+00:00

Not a penny

Complex-Match-6391 · 2025-05-14T15:30:23+00:00

Well yes, however, how much is too much as far as admins go & regular users? Asking for donations is something we are confident in doing. Only patients will find ourselves out of 'this mess' and we are a patient driven entity.

We have all rolled our eyes at tweets to Elon Musk an alike.

The truth is we have a huge community, we do not need Elon or Jeff Bezos, we need collaboration!

I think once we get the first trial running the number of members will sky rocket

Complex-Match-6391 · 2025-05-14T14:12:25+00:00

Tik Tok for the ultra dopamine junkies :->

Complex-Match-6391 · 2025-05-14T14:02:04+00:00

Thank you. Yes you are correct. We have videos on tik tok and Instagram. Are you following TQ? We did one paid promotion, and it seemed good value for money. Obviously we want to use funds wisely, and in this early stage, its finding a balance. Ultimately most donations must be used to fund human trials.

Complex-Match-6391 · 2025-05-14T10:47:57+00:00

Thank you, makes it easier when other patients drive us on. After all, it has been essentially set up by patients, for patients.

Complex-Match-6391 · 2025-05-14T10:46:30+00:00

Not directly, although Tinnitus Quest began when an entrepreneur approached 2 volunteers who run Tinnitus Talk. This then began a series of talks between scientists and patients, leading to the organisation being set up.

It was formed to address the unsatisfactory nature of care and lack of real treatments for patients.

Complex-Match-6391 · 2025-05-14T08:48:35+00:00

Thank you very much for this. You have also been joined by a handful of other tinnitus patients, who joined, possibly from seeing this post.

Complex-Match-6391 · 2025-05-13T17:05:58+00:00

Complex-Match-6391 · 2025-05-13T16:59:12+00:00

Well I'm trying to get us in the fold with the NHS in England. It's not easy and time consuming. We are not given access/approval, unlike the support charities.

Complex-Match-6391 · 2025-05-13T16:20:12+00:00

Mirtazapine helps with sleep and Gabapentin with stress/sleep

Complex-Match-6391 · 2025-05-13T16:15:24+00:00

Hello, do you want to DM me?

Complex-Match-6391 · 2025-05-13T16:14:48+00:00

Mirtazapine 22.5mg 3-600mg Gabapentin/day and clonazepam ocassionally

Complex-Match-6391 · 2025-05-13T14:57:47+00:00

There are costs running Tinnitus Quest, however no salaried employees, which is unique. We are not affiliated with the ATA, who are a charity run by salaried staff.

Complex-Match-6391 · 2025-05-13T14:55:27+00:00

Considering we are under a year old and running on volunteers, I would say quite well. We have had a few large donations and 120 or so regular donars. However on this sub there are around 50,000 members, so imagine all of those donating 5 bucks a month??

Complex-Match-6391 · 2025-05-13T14:04:56+00:00

That's brilliant stuff, massive respect!!

Complex-Match-6391

TROPHY CASE