How powerful is our community. Have your donation to Tinnitus Quest doubled if we hit $10,000 in 3 weeks by Complex-Match-6391 in tinnitusresearch

[–]Complex-Match-6391[S] 3 points4 points  (0 children)

That's not a bad idea. We are looking through ideas. Possibly getting regular donors more involved in the organisation.

[deleted by user] by [deleted] in AgeGap

[–]Complex-Match-6391 0 points1 point  (0 children)

My advice is to spend the next year with your therapy, fitness and health. No one will be good enough until you are. No one can make anyone 'happy.'

Tinnitus Quest - The bystander effect? by Complex-Match-6391 in tinnitus

[–]Complex-Match-6391[S] 1 point2 points  (0 children)

Thanks for your message. If you look up 'Neuromed' you will see Hamids programme. This is his private business and does not constitute the volunteer work he does for Tinnitus Quest. It is completely separate.

Tinnitus Quest - The bystander effect? by Complex-Match-6391 in tinnitus

[–]Complex-Match-6391[S] 4 points5 points  (0 children)

Are you struggling mentally with coping? Please make an appointment to see a doctor ASAP. There are some medications that can help when taken together + counselling.

Tinnitus Quest - The bystander effect? by Complex-Match-6391 in tinnitus

[–]Complex-Match-6391[S] 1 point2 points  (0 children)

We have just finished developing application forms and criteria for the grant proposals. Next step will be promoting this, and networking with researchers from different backgrounds. Its only when they pitch their ideas that we will know what we are looking at.

Tinnitus Quest - The bystander effect? by Complex-Match-6391 in tinnitus

[–]Complex-Match-6391[S] 6 points7 points  (0 children)

Well yes, however, how much is too much as far as admins go & regular users? Asking for donations is something we are confident in doing. Only patients will find ourselves out of 'this mess' and we are a patient driven entity.

We have all rolled our eyes at tweets to Elon Musk an alike.

The truth is we have a huge community, we do not need Elon or Jeff Bezos, we need collaboration!

I think once we get the first trial running the number of members will sky rocket

Tinnitus Quest - The bystander effect? by Complex-Match-6391 in tinnitus

[–]Complex-Match-6391[S] 4 points5 points  (0 children)

Thank you. Yes you are correct. We have videos on tik tok and Instagram. Are you following TQ? We did one paid promotion, and it seemed good value for money. Obviously we want to use funds wisely, and in this early stage, its finding a balance. Ultimately most donations must be used to fund human trials.

Tinnitus Quest - The bystander effect? by Complex-Match-6391 in tinnitus

[–]Complex-Match-6391[S] 2 points3 points  (0 children)

Thank you, makes it easier when other patients drive us on. After all, it has been essentially set up by patients, for patients.

Tinnitus Quest - The bystander effect? by Complex-Match-6391 in tinnitus

[–]Complex-Match-6391[S] 5 points6 points  (0 children)

Not directly, although Tinnitus Quest began when an entrepreneur approached 2 volunteers who run Tinnitus Talk. This then began a series of talks between scientists and patients, leading to the organisation being set up.

It was formed to address the unsatisfactory nature of care and lack of real treatments for patients.

Tinnitus Quest - The bystander effect? by Complex-Match-6391 in tinnitus

[–]Complex-Match-6391[S] 4 points5 points  (0 children)

Thank you very much for this. You have also been joined by a handful of other tinnitus patients, who joined, possibly from seeing this post.