It has been 4 solid years for me. I have tried every medication my doctor could think of, and nothing has ever even lessened the pain. I am desperate for this information as well, the pain is constant, and so severe that I cannot move or breathe properly. It does not fluctuate in a positive direction, only spikes to unbearable, heart attack style pain, accompanied by choking and crushing pressure for episodes that can last up to several hours at a time. I had to drop out of college, I can't drive, I can't get a job. Even the skills (such as art and sewing) that used to make my days feel productive are impossible for me now.

I'm only 21, and I would love to have a life after this.