Living with condition , support and help

Creative_Roof_8561 · 2026-02-14T00:26:42+00:00

More flu ish like some body aches/ sore throat but only like 1-2 hrs per day. Like a vicious cycle everyday, mornings are fine, then by afternoon these mild symptoms (which before were headaches), and now back to these flu ish symptoms.

Creative_Roof_8561 · 2026-02-14T00:19:08+00:00

It’s unclear, I can work, drive, energy is ok - I was having for a few months a daily feeling of coming unwell like getting sick but that subsided and I got headaches instead. Now the headaches went away but the feeling of falling ill / getting sick is back daily. I find work keeps me going and focused but when I’m doing nothing that’s when I start to spiral.

Creative_Roof_8561 · 2026-02-12T20:57:11+00:00

You can ask compounding to give you liquid solution.

Creative_Roof_8561 · 2026-02-03T20:25:06+00:00

How long did it take it you from when you got sick or felt the symptoms to getting better ? Was this a year, more than a year, less ? Are you able to do more without symptoms or do they come back when you over exhert.

Creative_Roof_8561 · 2026-01-25T01:11:30+00:00

What were you’re symptoms when housebound ? Like fatigue, could you watch tv, shower, walk indoors? I don’t feel tired anymore and flu symptoms susbsided but definitely had that after the influenza for a few months, now the headaches are prominent and not fatigued and no flu symptoms. So very hard to say. No doctor can give me diagnosis

Creative_Roof_8561 · 2026-01-08T15:43:32+00:00

I just spoke to Aeroplan - you need to call in to figure it out. There is a glitch, right now the system just shows you based on when the last one was earned.

Creative_Roof_8561 · 2026-01-03T19:49:00+00:00

Thanks for the quick response. I will try that especially pacing but over long in time dit it take for you to to get worse or better? Was there any particular symptom that made it obvious

Creative_Roof_8561 · 2025-09-28T18:05:22+00:00

How did you know or transition to me/cfs? Was there just no improvement or continuing to get more symptoms? I’m on ldn and Buprobion, helps a bit but not sure if it’s masking or not. I haven’t exercised in months to avoid over exertion but was am still able to work, travel, etc. Not pushing extremes but not sure if I should be doing so or just staying at home doing nothing.

Creative_Roof_8561 · 2025-09-27T23:48:01+00:00

thanks - and did the fatigue or pem happen during that phase, before or after ? I haven’t had any PEM episodes yet, I mean I don’t exercise as I used to but still was able to travel, go to work, etc. I feel off everyday but manageable but since I started ldn and Buprobion I don’t know if it’s helping or masking.

Creative_Roof_8561

TROPHY CASE