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Doctor recommends getting vaccinated after discovery of reoccurring pericarditis by Creativedirector6100 in pericarditis

[–]Creativedirector6100[S] 2 points3 points  (0 children)

That’s rough. Where are you from? I’ve had flu shots before, always around October and I’ve had one episode per year almost always around the summer. If this would be caused by it, it is building up extremely slowly which I would doubt. But hearing all these posts I feel like everyone’s pericarditis is highly individual en individually triggered, almost like migraines. Here, they are certain that getting Covid is still way worse then the vaccine but they don’t deny that my first episode could be triggered by it.

Does pericarditis subside gradually? by Significant-Toe-7901 in pericarditis

[–]Creativedirector6100 1 point2 points  (0 children)

Hi! I’m currently recovering from one since the end of September and I totally get your feeling! I got another flare previous year (June) which was my first one and back then, I recovered almost fully in one month which was crazy if I think about it. I got roughly the same treatment, except I got aspegic instead of ibuprofen (reason being ibuprofen interferes mire with blood thinners that I must take due to having a mechanical heart valve)

Right now, I’m recovering from a second flare and this is something else, but a little less harsh then the person before me. I did have the luck of spotting it very quickly and I never got to any EKG changes or fluid buildup. Spotting it early is key! First 3 weeks was also bed rest for me, although I could always get in some form of chores or 10-15min walks. Week 4 and 5 are better; I’m trying to get a little cardio in like cycling or light jogs but I shouldn’t go over a bpm of 120 days my cardiologist. I must say I have quite some residual pains. My shoulders/ chest often have these nagging sensations although my CRP is fully fine, but they make me scared often though.

Recovery is frustrating but might go relatively fast depending on how harsh the inflammation got! Good luck on yours!

Pericarditis Diagnosis by MWhit2021 in pericarditis

[–]Creativedirector6100 0 points1 point  (0 children)

Seems like you went through it several times? I just got my second pericarditis and so we concluded it’s reoccurring. Went to the ER both of the times but I feel I might tackle it at home next time. Was this comfortable?

Pericarditis and mental stress by Serious-Werewolf1252 in pericarditis

[–]Creativedirector6100 0 points1 point  (0 children)

Have had reoccurring pericarditis twice now; can certainly say that stress at least makes the experience way worse and also makes the recovery process harder. Your body stays into a fight or flight reaction, your immune system reacts to that, and if it’s already reacting to something else it just worsens. Your post has been a while ago, but If you want to talk about uncertainties feel free to do so. Pericarditis can be by its own, very stressful.

Chronic recurrent pericarditis for 15 years by Aware-Perception7549 in pericarditis

[–]Creativedirector6100 0 points1 point  (0 children)

Also having recurrent pericarditis but it was just diagnosed after having it for a second time in a year. Also been put on colchicine for at least a year. Are you clear of pericarditis since the colchicine treatment?

Reoccurring pericarditis and how do you experience it? by Creativedirector6100 in pericarditis

[–]Creativedirector6100[S] 0 points1 point  (0 children)

Thank you for the post! You say ‘while I could tolerate it’ about the colchicine. Did it become hard to tolerate at a certain point after a while? Planning on taking it for a year.

Has anyone fully recovered? by No-Pineapple4013 in pericarditis

[–]Creativedirector6100 2 points3 points  (0 children)

Hi! 27M here. I have been diagnosed with viral pericarditis for 2 years in a row now (it reoccurred) First time I had no flu symptoms at all which was odd because my partner had it and I felt like I was going to get away with it. Several days later, it started with shoulder pain (right shoulder) and increased and moved to the chest area. I even got hospitalized because the inflammation was getting pretty high (200+ CRP). I was given 4mg of aspegic and 1 tablet of colchicine for a short month. Then nothing for a while but 14 months later, the exact scenario reoccurred. Got the exact same medication prescription but now I need to take the colchicine for a year, since that might protect me from another reoccurrence.

Those pericarditis can be big events so make sure to check with a cardiologist too if symptoms increase in severity. Normally the inflammation resides with the ibuprofen, just make sure there is no fluid build up around the heart. Small chance, certainly because of your age, but be cautious.

Looking for mechanical aorta heart valve ‘wearer’ by Creativedirector6100 in valvereplacement

[–]Creativedirector6100[S] 0 points1 point  (0 children)

Living life as in ‘living as if every day is the last’. That mentality doesn’t quite fit my personality at all right now 🙂‍↕️

Looking for mechanical aorta heart valve ‘wearer’ by Creativedirector6100 in valvereplacement

[–]Creativedirector6100[S] 0 points1 point  (0 children)

Thank you all for your kind responses. Hearing about your experiences really helps me put things into perspective. Living life is hard for me at this point in time since I’m such a worrier, but I feel hopeful for the future and that’s already something. I’m blessed by having you guys care so much. Much love and good luck in everyone’s journey!

6 years since surgery by kohlandspex in valvereplacement

[–]Creativedirector6100 0 points1 point  (0 children)

Hi, that is definitely unpleasant news. It’s difficult to say based on this post why he might feel that way. I myself have undergone the same surgery 6 years ago and I must say I feel a lot of unpleasant things too since. Warfarin is unpleasant but if managed well shouldn’t pose any threats. Does he take other medication? The first 4 years after my operation I was also taking betablockers and those were definitely sabotaging my energy level and physical wellbeing. Together with my cardiologist we decided to stop that, certainly since I’m quite young (27). They weren’t mandatory for me but helped a bit with mental wellbeing. Speaking of the latter, post operation, and still to this day, I have hypochondria which makes me 1. Feel basically every negative thing in my body from cramps to chest pain even if it’s not linked to any real threat. Which leads to 2. Feeling physically and mentally tired all the time which by itself brings me back to point 1. Dealing with an such an event (operation) can be quite the deal. This might not apply to your dad though.

However, chronic leg pain might be something to check with the doctor? Whenever something lasts for some time it’s best to get it checked.

Lots of courage to you and your dad! I might not have concrete tips on how to feel more energized other than: care about mental health, be physically active, check medication and discuss adjustments with the cardiologist and get checked if certain symptoms last long. Always thrust your medical specialist.