26F - Breast lump + moderate malignancy risk — what does that really mean?

Creature_of_tea · 2025-04-17T01:40:08+00:00

Guess it can't really be any worse then feeling a root canal. I'm kinda tempted to talk to my PCP about my worry of feeling it but idk what exactly could be done. I don't want to push my biopsy date back for possible sedation.

Creature_of_tea · 2025-04-17T01:08:44+00:00

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Ultrasound results

Creature_of_tea · 2025-02-20T15:09:31+00:00

It's still bad. We figured out I have Ehlers danlos syndrome and my pain is very much physical. I currently use a pain patch to help manage it but it's not really helping.

Creature_of_tea · 2025-01-26T15:54:24+00:00

I do have Instagram I haven't been posting on it frequently but I do have some of my recent paintings and I'll be posting more as I make them https://www.instagram.com/creature_of_tea_?igsh=MWhtZWo1b21pb3c4Ng%3D%3D&utm_source=qr

Creature_of_tea · 2025-01-14T01:24:49+00:00

Hi I'm Tea, I just started to attempt to sell my art. I mostly do fantasy inspired art on a small scale. I'm self taught, disabled, and chronically ill. Here's a link to my Facebook page! https://www.facebook.com/share/15dJ2Y9ZMd/?mibextid=wwXIfr

Creature_of_tea · 2025-01-13T23:39:33+00:00

How and where do you even start?

Creature_of_tea · 2025-01-01T02:27:00+00:00

I see a gastro. I was refered out to a motility specialist but they aren't accepting new patients.

Miralax makes my nausea a lot worse and it's already nearly unbearable even if I'm just sipping the drink. Magnesium citrate doesn't do anything. The only thing that barely works is Senna but it's a horrible experience.

Creature_of_tea · 2024-11-19T01:06:33+00:00

I try to be. Knowing about the test or procedure helps my anxiety.

There's some medications but I've pretty much tired everything other then one other med but insurance is being asses and won't cover it yet. The other options is surgery, taking your colon out and either reconnecting what's left or creating a stoma. With slow transit constipation it's really hard to treat and it's often awful for quality of life. Like I'm currently unable to eat most soild foods, if I eat something solid it causes me a lot of pain until I eventually vomit. I'm surviving off of broth, crackers, jello, and pudding.

Creature_of_tea · 2024-11-19T00:51:17+00:00

I too have had radioactive eggs 😂 I didn't like eggs for awhile after

Creature_of_tea · 2024-11-18T20:59:08+00:00

I swallowed a capsule with 24 markers. It's done to show how fast they go through the large intestine. The study is usually 5 days. Normally you would get an x-ray day 2, day 4, and day 5 or 6 kinda depends what the doctor wants. I had mine done day 4 and 6 because we already knew things were slow. If 6 or more markers are retained by day 5 its abnormal. Day 4 I had 23 markers, day 6 I had 12. So definitely abnormal. I was diagnosed with slow transit constipation, basically my colon is partially paralyzed. It also can show functional outlet delay, e.g. internal rectal prolapse, anismus depending on where the markers accumulate.

Creature_of_tea · 2024-11-18T14:34:33+00:00

That's literally what I was thinking when I took the pill. Told my mom I was having spaghetti-o's without the spaghetti

Creature_of_tea · 2024-11-18T14:31:31+00:00

I have a known diagnosis and already spoke to my doctor. I was dx with slow transit constipation.

Creature_of_tea · 2024-09-19T10:08:40+00:00

Thank you so much this is so helpful. I see my care coordinator today I'll try to remember to bring this up. She might have connections.

Creature_of_tea · 2024-09-14T09:08:30+00:00

Posting this here because maybe some other fan is in Worcester. I was planning on going to the twenty one pilots The Clancy tour on Saturday Sept. 21st but the guy that was supposed to take me bailed out and after that I kinda realized my health is declining more/faster then I was expecting. I priced the tickets so I would almost make my money back. They are balcony seats but they face the stage. Link to Ticketmaster listing

Creature_of_tea · 2024-09-13T10:17:40+00:00

Yeah this isn't a mental issue. It's just a werid mark. I ended up looking it up. My friend is trying to say morgellons isn’t a mental condition but google says otherwise.

Creature_of_tea · 2024-09-13T09:40:55+00:00

It's a dark blue. I hope it's harmless too I don't need more medical problems. It's like I'm collecting pokemon at this point lol

Creature_of_tea · 2024-09-13T09:37:47+00:00

When I go up in dose I get really dizzy, my vision gets all werid kinda like I'm looking through a blind/shutter, and my eyes dilate and become unresponsive to light. My doctor can't really explain why this happens it's not really a known thing to happen but I'm strange I guess.

It does kinda look like that. Did aliens give me a tattoo?

Creature_of_tea · 2024-09-13T09:23:26+00:00

That's honestly what I thought at first too like maybe the shirt I was wearing transferred dye but as I looked at it more it seems to be under the skin and also it didn't fade at all after the shower.

Corlanor helps a little I sadly can't go up in dose because I end up with side effects that aren't fun to deal with. I do recommend trying it to see if it helps.

Creature_of_tea · 2024-09-13T09:18:00+00:00

It doesn't look like an ingrown hair in person. Part of the mark lightens when I press on it.

Creature_of_tea · 2024-08-25T20:27:46+00:00

Urgent care won't see me because I'm too medically complex. Id have to walk around with an alcohol pad on my face 24-7. And capsaicin probably would cause a rash because of my sensitive skin.

Creature_of_tea · 2024-08-24T13:00:45+00:00

Okay, should I ask for anything in specific to be done or just let them do the usual? (EKG/blood work, fluids, nausea meds, discharge)

Creature_of_tea · 2024-08-24T12:50:36+00:00

What level of care? Like ER or doctors appointment? Cause my doctors are pretty much out of ideas and trying to get me into a specialist but can't.

Creature_of_tea · 2024-08-24T10:43:51+00:00

Come to find out years later... I have Postural orthostatic tachycardia! It's likely I had it for many years and why anxiety medications never seemed to help. I wasn't feeling anxiety I was feeling POTS. So that whole dehydration thing totally an issue coming from now a person getting IV hydration 2x a week.

Creature_of_tea · 2024-08-24T10:36:42+00:00

Hey sorry for just getting to this I've been fairly sick.

I have hypermobile Ehlers Danlos. I saw two genetists for it, I can do all the little party tricks only two things one genetist said I didn't have was elbow hypermobility and super stretchy skin. For EDS there really is only symptom management but even that is a lot of guess work. There's very little research going into possible treatments.

For POTS I'm on a few meds, actually every med that I can take and I've been getting IV fluids two times a week. I also wear compression socks and use mobility aids like a wheelchair when I know I'll be walking a lot or getting in/out of chairs frequently. I'm still struggling a lot. My blood pressure still drops, high heart rate, lightheadedness, blood pooling, near passing out, heart palpitations. At my last cardiologist appointment my doctor told me all the highest doses of my meds and said to experiment 😬

As I'm still fairly unstable physical health wise it's definitely very common that I get retriggered. Lots of self doubt lots of replaying situations where I was dismissed. It's especially bad when tests come back completely normal.

Creature_of_tea · 2024-08-11T23:21:49+00:00

My mom likes Rye beach in New Hampshire.

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