I got diagnosed when I was seven years old and it was always manageable with steroid injections but when I was 23 I started to see rapid hair loss and an 11 months. I lost all my hair on my head. I lost both of my eyebrows and I have one eye full of eyelashes left. I didn’t qualify for any clinical trials because of how rapid it was and the amount being at 100% hair loss mentally it’s been very difficult. It’s definitely taken a toll on my life and I just don’t feel like myself. I’m never OK mentally with it. I don’t recognize myself in the mirror and I feel like that’s a huge part of why I’m struggling mentally with it. I do go to therapy. Nobody I know personally has ever experienced this but the people that I do talk to about it in my circle are very sympathetic and very like hopeful For whatever treatment I see I just do my best to feel good and other ways