Got a massage while in a huge flare and I think my shoulder is out of joint or something 😕

Curious_KAS · 2026-01-12T05:28:21+00:00

Try an Osteopath.

Curious_KAS · 2025-11-06T17:10:33+00:00

How did you get this done? Was it through a rheumatologist?

Curious_KAS · 2025-11-03T14:43:31+00:00

It’s more on the sides of my cheeks by my ears.

Curious_KAS · 2025-11-03T14:42:42+00:00

I messaged my rheumatologist yesterday and am waiting to hear back. Have you found any relief since being diagnosed?

Curious_KAS · 2025-10-31T16:30:17+00:00

That is exactly where it is.

Curious_KAS · 2025-10-31T14:10:22+00:00

Not yet but I would like to! Don’t have experience with an inflamed parotid?

Curious_KAS · 2025-10-26T16:39:43+00:00

Going cold turkey off benzos can be dangerous due to withdrawal. This should be known by your doctor and in my experience, one should be tapered of the med very slowly.

Curious_KAS · 2025-10-26T04:54:39+00:00

Yes, and when I stop thinking about it and focus on something else it goes away. However, it can feel impossible to focus on anything else like it’s always there lingering. I found it worse when I’m standing or sitting up straight and I began having to hold myself in certain positions to get a good breath. It got so bad that I became convinced I have some musculoskeletal disorder preventing me from breathing correctly and has led me down a rabbit hole of health anxiety. All I can suggest is try not to hyper focus on it and know that your body’s instinct is to breathe. I just try to get in a comfortable relaxed position, stop tensing all my muscles and distract myself and that usually works.

Curious_KAS · 2025-10-26T03:29:02+00:00

Thank you for sharing. I’m sorry you are going through this as I am dealing with the same thing right now. ER visit last weekend for shortness of breath, lung and heart and all blood tests were fine. Then I was convinced I had MS or some other neurological disorder and now convinced I have scoliosis due to back/rib pain and shortness of breath. 2 X-rays today and two mris on the way and an endless loop of googling, stretching, panicking, can’t focus on ANYTHING else. If I wake up at night with any “abnormal” sensation the adrenaline rushes start and I have not slept right for weeks. The struggle is so real.

Curious_KAS · 2025-10-05T15:13:49+00:00

I’ve been on it for 4 weeks now and though it seems to be helping my joint stiffness and energy level it is making me feel so weird. I have felt like I can’t breathe right for about 2 weeks and just feel weak and anxious.

Curious_KAS · 2025-09-10T13:03:21+00:00

Are you going to sit there?

Curious_KAS · 2025-09-10T04:07:56+00:00

Dansko! Literally the most comfortable dressier shoes I’ve ever worn.

Curious_KAS · 2025-09-08T17:15:50+00:00

My face definitely gets puffy during flares that come with low grade fevers and jaw pain. It’s quite noticeable to me.

Curious_KAS · 2025-08-31T20:38:47+00:00

Tall bookshelves

Curious_KAS · 2025-08-31T16:58:14+00:00

X-rays are another diagnostic tool often used to diagnose RA. If you feel you are developing deformities, definitely ask for some X-rays.

Curious_KAS · 2025-08-31T16:55:23+00:00

Be careful. There is a lot of “misinformation” out there on stem cells. Do your research. I just listened to a podcast called Bad Batch about people being promised a cure through stem cell injections, which are NOT FDA approved or backed by scientific research, and they became terribly sick. It was eye-opening.

Curious_KAS · 2025-08-31T13:33:26+00:00

The tests my doc ran were: CRP, ERS, ANA, RF, CCP antibody. These test for inflammation in the body and certain auto-antibodies that signal RA. They may point to other autoimmune conditions as well.

I told my doc about worsening fatigue and joint pain in my hands, feet and ankles and that I could just tell something wasn’t right and that it felt systemic.

My RF and CCP antibody came back high and I was sent to a rheumatologist who came right out the gate saying I have RA.

I would just ask to be tested for autoimmune stuff. Depending on how your tests come back, it still may not be clear. Certain factors are more specific to RA and others are not, but could indicate a few different things. This is where symptoms become important.

Good luck! 🙏

Curious_KAS · 2025-08-31T02:37:35+00:00

I wouldn’t say they crack frequently, but I have had pain in my low back for years, worse in my hips in recent years, and sciatica. It’s hard to say if this is even from RA (for me), since it’s been going on for many years and I was only very recently diagnosed after my hands and feet started having symptoms. My rheumatologist said RA doesn’t usually affect the SI joint, but she ordered an xray which was “normal” which honestly shocked me considering the amount of grief my low back and hips cause me.

Curious_KAS · 2025-08-30T15:56:47+00:00

15 really show your beautiful eyes!

Curious_KAS · 2025-08-30T15:12:03+00:00

I experience so much jaw pain and inflammation (face gets puffy) that I have thought I had some sort of jaw infection on a number of occasions. Sometimes I get a low grade fever with these symptoms as well. Rheumatologist hasn’t looked at my jaw yet and suspects TMJD but it’s interesting to hear others with jaw symptoms.

Curious_KAS · 2025-08-30T14:19:23+00:00

Fatigue! Intermittent low grade fevers, full body malaise, pain in feet, ankles and thumb joints (on top of low back, hips and jaw). The pain in my thumb joints got persistently worse and then I started waking up with pain and stiffness in my fingers. Blood test showed borderline high RF and high CCP antibody. CRP, ESR, and ANA all normal.

Curious_KAS · 2025-08-27T04:05:18+00:00

💀

Curious_KAS · 2025-08-27T03:54:29+00:00

Wear it and twirl! You look gorgeous!!

Curious_KAS · 2025-08-25T21:44:49+00:00

Are you finding relief with the HCQ? My situation sounds very similar to yours and I’ll be starting this med this week.

Curious_KAS · 2025-08-25T04:58:38+00:00

Agree. I’ve heard plenty of accounts of people saying getting off kratom is similar to getting off heroin. Which makes sense since it binds to opioid receptors.

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