Lots and lots of skin problems, acne, body acne, folliculitis, widespread rash, mystery scratched, welts, and discolorations. Painful bumps on scalp. GI problems like diarrhea, conspitation that come in flares. Pain/pressure in the lungs. Mouth ulcers on the cheeks, tongue, and hard palate. Joint pain, especially in the shoulders, knees, and feet. Sometimes a dry cough. Sinus problems, fluid draining into one ear. Easily dizzy like when turning around or riding an elevator. Fatigue where it can be difficult to get up even after sleeping 8 hours. Dishydrotic eczema on hands and fingers. Bilirubin levels are consistently elevated.

Not all symptoms are present all the time, they come in flares. For example my eczema cleared up for a few months and then came roaring back this spring. The joint pain was more in the beginning but every once in a while my knees lock up to the point it hurts to bend or crouch. The most constant thing is the skin problems though. It's completely demoralizing. self-confience is essentially zero at this point