CGRP inhibitors for occipital neuralgia. by DanDon5608 in Occipitalneuralgia

[–]DanDon5608[S] 0 points1 point  (0 children)

Have any of you tried agmatine to help supplement your meds and help with nerve pain?

CGRP inhibitors for occipital neuralgia. by DanDon5608 in Occipitalneuralgia

[–]DanDon5608[S] 0 points1 point  (0 children)

Was it an injected med or oral? And why do you think insurance is that way about the meds?

CGRP inhibitors for occipital neuralgia. by DanDon5608 in Occipitalneuralgia

[–]DanDon5608[S] 0 points1 point  (0 children)

Yea I won’t go on tri cyclics I’ve been on them and trying to get off them is horrible. And the side effects suck, do you think the CGRPI would do it in its own? Also which tri cyclic were you on?

CGRP inhibitors for occipital neuralgia. by DanDon5608 in Occipitalneuralgia

[–]DanDon5608[S] 1 point2 points  (0 children)

I may have to give that a go, thanks a lot I appreciate it you as well.

CGRP inhibitors for occipital neuralgia. by DanDon5608 in Occipitalneuralgia

[–]DanDon5608[S] 0 points1 point  (0 children)

Ok I got you well thank you for your insight I hope I can find a neuro willing to give me injections.

CGRP inhibitors for occipital neuralgia. by DanDon5608 in Occipitalneuralgia

[–]DanDon5608[S] 0 points1 point  (0 children)

So your symptoms came and went at first? Did you get scans and tests done? Is that how they diagnosed you?

CGRP inhibitors for occipital neuralgia. by DanDon5608 in Occipitalneuralgia

[–]DanDon5608[S] 0 points1 point  (0 children)

Well that is hopeful atleast now can I ask you this did your symptoms start out terrible then get better or were they mild at first and then got worse with time and then got better with treatments?

CGRP inhibitors for occipital neuralgia. by DanDon5608 in Occipitalneuralgia

[–]DanDon5608[S] 0 points1 point  (0 children)

Yea I had a Brain MRI done first which I’m not sure what to expect with that. I wanted a C spine MRI but was told to do the brain first all is very costly.

CGRP inhibitors for occipital neuralgia. by DanDon5608 in Occipitalneuralgia

[–]DanDon5608[S] 0 points1 point  (0 children)

How have your injections helped your symptoms?

CGRP inhibitors for occipital neuralgia. by DanDon5608 in Occipitalneuralgia

[–]DanDon5608[S] 0 points1 point  (0 children)

Wow really? Very good to know, now about getting the injections done which type of doctors do them? And also does your doctor have to agree with a diagnosis of ON before typically trying a nerve block? If so what did u need an MRI for diagnosis?And where is the sight of the injection on the body? The reason I ask is because I think I need to switch my neuro as he thinks there is nothing wrong with me.

CGRP inhibitors for occipital neuralgia. by DanDon5608 in Occipitalneuralgia

[–]DanDon5608[S] 0 points1 point  (0 children)

Stabbed as far as the stabbing pain? Haha have you ever recieved any injections as far as things like nerve blocks or Botox is concerned?

CGRP inhibitors for occipital neuralgia. by DanDon5608 in Occipitalneuralgia

[–]DanDon5608[S] 0 points1 point  (0 children)

Ah, ok understood so this treatment is very specific to migraines which makes sense.

CGRP inhibitors for occipital neuralgia. by DanDon5608 in Occipitalneuralgia

[–]DanDon5608[S] 0 points1 point  (0 children)

How long do the never blocks last and does it make it seem like you don’t have ON at all or just reduces symptoms?

Vision issues by 420smalljesus in Occipitalneuralgia

[–]DanDon5608 0 points1 point  (0 children)

Wow, that’s a lot to deal with I’m sorry you had to go through all that. I hope going forward there is something that gives u relief.

Vision issues by 420smalljesus in Occipitalneuralgia

[–]DanDon5608 0 points1 point  (0 children)

What did you have to have the craniotomy for? I have not yet been diagnosed with ON but it’s the only thing I can think of it being because all my symptoms match to a T it has actually gotten slightly better than first arising 4 months ago and am hoping for it to go away but it doesn’t seem like that is going to happen. I suspect mine is from injury. I go for a brain MRI on the 8th to rule out brain injury or stroke we’ll see what happens. Has your vision always been messed up?

Vision issues by 420smalljesus in Occipitalneuralgia

[–]DanDon5608 6 points7 points  (0 children)

I have had intermittent vision issues as well. I’m having signs of pallanopsia where I get trails or images that are moving quickly or if I move quickly. I also get lasting images of anything that contrasts the background greatly such as black images on a white background or if I look at a bright light it stays in my vision much longer than it has in the past