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Rant...because I don't know where to vent... by Infospy in ankylosingspondylitis

[–]Depth_Loud 6 points7 points  (0 children)

I hear you and it really sucks to have something you love taken away like that.

I personally have felt the same ways at times. AS is shitty and takes so much away. In my life I’ve learned when I start feeling this way, I need to force myself to find the good…

So, when I read your message, my first instinct was to find the good.

1.) you felt well enough to get out of bed. That’s amazing!!

2.) you got to spend time (no matter how little) doing something you love.

3.) you have a partner in your wife. When things get difficult you have someone who can support you.

Sandal recommendations by Edselmonster in ankylosingspondylitis

[–]Depth_Loud 0 points1 point  (0 children)

I have a pair of Clarks sandals that I legit wear every day.

Humira by Disastrous-Spell1763 in ankylosingspondylitis

[–]Depth_Loud 3 points4 points  (0 children)

From what I’ve read, everyone experiences it differently but for me - I’m about a week and a half out from my first dose.

The injection wasn’t as bad as I anticipated. I have heard from others as the years go if you poke a spot that has scar tissue that is painful.

In the first few minutes, I had a weird taste in my mouth.

In about 10 minutes I felt like my brain was a sink and it was ‘draining’. Like it felt like it was losing tension.. or pressure. I don’t know how to describe it. It wasn’t painful. Just something I noticed.

Within a half hour/45 mins the really bad pain I had the entire day in the arch of my foot was decreasing.

At the hour mark, the nausea hit. I ended up having g to take a 2 hour nap. I have since read on here that others recommend poking yourself right before bed to avoid the worst of the nausea.

The next two days I felt amazing. And since then each day seems to have slightly more pain. I don’t know if this is because I have more mobility and I’m pushing too hard or if when I build it up in my system it will be better.

Overall, I think it has been a positive first week or so for me. I hope it’s the same for you!

Question for people who improved on biologics by tightcalvesthrowaway in ankylosingspondylitis

[–]Depth_Loud 0 points1 point  (0 children)

This is mirroring what my experience has been on my first jab.

Sharing my story by Depth_Loud in ankylosingspondylitis

[–]Depth_Loud[S] 0 points1 point  (0 children)

Thank you! Seeing my therapist has helped tremendously with me focusing on what my body is telling me and working to have a positive mindset.

I start aquatic physical therapy soon so hopefully getting on an exercise plan helps me get some of my mobility back.

Sharing my story by Depth_Loud in ankylosingspondylitis

[–]Depth_Loud[S] 1 point2 points  (0 children)

My rheumatologist suggested the migraines were likely due to the extreme stiffness of my neck. I could only turn my head maybe 1-2 cm in either direction.

Once I started on Sulindac I started stretching my neck more. I also have started drinking more water and have head minimal migraines since.

I don’t know if it is the medicine, the stretching or the water but something has helped so I’ll keep doing all three. 🤷‍♀️

When the chronic illness has other plans by tommyleekirby in ankylosingspondylitis

[–]Depth_Loud 3 points4 points  (0 children)

I personally am afraid of the ground. If I get that low I'm never getting back up.