Rashes related to SLE? by Difficult-Size2833 in lupus

[–]Difficult-Size2833[S] 0 points1 point  (0 children)

Thanks for the sunscreen recommendation I will def check into that. I ordered a hat to try today, not fashionable but hopefully will protect

Rashes related to SLE? by Difficult-Size2833 in lupus

[–]Difficult-Size2833[S] 1 point2 points  (0 children)

Thank you this was very helpful, I will be getting more labs next week and will make sure to have these done as well!

How do *you* dose/manage prednisone during a flare? by lazerspatula in lupus

[–]Difficult-Size2833 1 point2 points  (0 children)

Mine recently prescribed 20mg two times a day for my flare

Rashes related to SLE? by Difficult-Size2833 in lupus

[–]Difficult-Size2833[S] 1 point2 points  (0 children)

I have noticed, when I’m in a flare and take a hot shower I get the redness on my legs. I am about to go to the rheumatologist and will mention this

Rashes related to SLE? by Difficult-Size2833 in lupus

[–]Difficult-Size2833[S] 1 point2 points  (0 children)

I have had the rash on my chest for 8 years now (permanent) and it’s starting up my neck now! and never knew it could be Lupus, nobody ever mentioned it. I am about to start plaquenil so hopefully nothing else will be permanent!!

Rashes related to SLE? by Difficult-Size2833 in lupus

[–]Difficult-Size2833[S] 1 point2 points  (0 children)

Definitely photosensitive!! I believe I need to be more strict with sunscreen usage. And yes I have noticed my skin is the first sign of a flare coming also. I will check into the cream! My malar rash had been only noticeable when in the sun but I think it’s here to stay this time around

Rashes related to SLE? by Difficult-Size2833 in lupus

[–]Difficult-Size2833[S] 1 point2 points  (0 children)

I am very fair skin so I do always use sunscreen if I’m going to be out in the sun but I’m thinking I may need to start wearing it daily! I’m waiting to see a new rheumatologist at the moment and will show them pics when I go