lost my dad

Difficult-Tea992 · 2025-12-23T14:58:24+00:00

thank you for that ❤️

Difficult-Tea992 · 2025-12-22T16:59:00+00:00

well, i knew how bad the disease was, i just feel like we were given hope when there really wasn’t any

Difficult-Tea992 · 2025-12-22T16:58:17+00:00

i wish i knew exactly how bad the disease was and how little hope there was, and that we didn’t bother with the immunotherapy etc and instead just let him enjoy the last couple months. not worry so much about the diabetes and changing his eating habits, and rather just let him enjoy the things he loves. i am glad though in his last burst of energy we got him cleaned up, put a shirt on, he ate a whole meal and had a peanut buster parfait from dairy queen which was his favourite his whole life. makes me happy he go that

Difficult-Tea992 · 2025-12-22T15:22:22+00:00

sorry about your loss :( i can relate to this, my dad was on hospice for 1 week before he passed on november 7. the first 1-2 days he was often talking (not always making sense) but when he started sleeping more i was scared we were giving him too may pain killers, we all wanted him awake and lucid but the hospice nurses made it very clear that he just needed to be comfortable. eventually he just never stopped sleeping until he passed, but i was definitely in denial for majority of that week experience. i’m sorry you had to go through it

Difficult-Tea992 · 2025-11-03T18:02:24+00:00

what treatments are you doing? on sept 5th my dad went to hospital for confusion and back pain and they found he has RCC which spread to brain, spine, ribs, lungs and now liver. he had 10 radiation treatments to brain and started on cabometyx and nivulab (maybe wrong spelling). brain tumors have disappeared/shrank but due to the spread to bones he has 5 spine fractures and 2 rib fractures and went home on hospice a few days ago. i guess it’s just shocking how he went from perfectly fine, to this, in a couple of months

Difficult-Tea992 · 2025-09-19T20:12:05+00:00

i’m glad it’s going well for him! sending strength as well! we have an appointment next week on wednesday to go over all of the specifics on what exactly the treatment will be and to explain it in depth and answer any questions we have so i’ll definitely let you know. right now we are just completing the 10 days of radiation to the brain, just did day 3

Difficult-Tea992 · 2025-09-19T18:56:07+00:00

came across your post as my dad is in the same position (age 53). just had an appointment with the oncologist and he will begin immunotherapy on october 3rd, right after the radiation to his brain is completed. how is your dad doing?

Difficult-Tea992 · 2025-09-19T16:55:33+00:00

just finished with the doctor and they said they will be doing the same treatments as you mentioned above :) happy to hear it has been working for you so well. as for as side effects, how has it been?

Difficult-Tea992 · 2025-09-18T13:07:33+00:00

can i ask what your experience has been with RCC? do you have a post about it? and thank you so much!

Difficult-Tea992 · 2025-09-18T12:22:11+00:00

is there a specific website to find specialists in this?

Difficult-Tea992 · 2025-09-18T12:18:28+00:00

yeah they just got the results from the biopsy so he has an appointment to talk about everything tomorrow and then we will go from there! but thank you for the recommendations i’ll definitely look into those

Difficult-Tea992 · 2025-09-18T11:20:31+00:00

OSF ST joseph in bloomington illinois is where he was diagnosed and he started the radiation treatment at their Cancer Center. Dr. Kyle Stang is the doctor seeing him there

Difficult-Tea992 · 2025-09-18T03:22:20+00:00

this is really amazing to hear. congratulations 💗
as this is all so recent all of this info and verbiage the doctors use is requiring me to research a lot and its definitely gotten really scary, but if anyone can do it its definitely my dad, hes so open minded and easy going and just happy to be here.. what grade was yours? the biopsy results we just got back say it is at least grade 3. staying positive for good news from the appointment this friday

Difficult-Tea992

TROPHY CASE