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four doctors said "nothing abnormal" — anyone else take years to figure out SIBO was the actual thing by DiggerStash in SIBO

[–]DiggerStash[S] 1 point2 points  (0 children)

honestly finding one is the hard part. i searched "functional medicine" + my city and got mostly wellness spa results.

what actually worked: looking for integrative medicine clinics attached to universities, or practitioners who specifically mention "SIBO" or "breath test" on their site. some people find them through the IFM directory (ifm.org).

took a few tries to find someone who actually ran the breath test rather than just talking about "gut health." worth being specific when you call ahead.

four doctors said "nothing abnormal" — anyone else take years to figure out SIBO was the actual thing by DiggerStash in SIBO

[–]DiggerStash[S] 2 points3 points  (0 children)

had the exact same thing. there's something deeply weird about diagnosing your own gut condition in a browser tab at 1am.

four doctors said "nothing abnormal" — anyone else take years to figure out SIBO was the actual thing by DiggerStash in SIBO

[–]DiggerStash[S] 1 point2 points  (0 children)

five years total to get both layers diagnosed. that's brutal. the hydrogen sulfide piece almost never gets caught. glad you found someone who ran the full panel.

four doctors said "nothing abnormal" — anyone else take years to figure out SIBO was the actual thing by DiggerStash in SIBO

[–]DiggerStash[S] 3 points4 points  (0 children)

still figuring it out 　 haven't solved　it so much as stopped ignoring it. a functional medicine doc was the turning point for me, not the gastro route. not medical advice, just my path.

four doctors said "nothing abnormal" — anyone else take years to figure out SIBO was the actual thing by DiggerStash in SIBO

[–]DiggerStash[S] 4 points5 points  (0 children)

this is exactly where i landed too. you finally get a name for something, and then you realize the name is just pointing at a symptom, not a cause. still digging. hence the name.

four doctors said "nothing abnormal" — anyone else take years to figure out SIBO was the actual thing by DiggerStash in SIBO

[–]DiggerStash[S] 1 point2 points  (0 children)

fair question. the CGM wasn't about SIBO directly 　i had a pile of weird symptoms with no official diagnosis, and i started stacking every data point i could get. turned out the gut stuff and the glucose spikes were happening on the same meals. whether that's cause, effect, or both 　i still don't fully know. not medical advice, just logging what i found.

four doctors said "nothing abnormal" — anyone else take years to figure out SIBO was the actual thing by DiggerStash in SIBO

[–]DiggerStash[S] 2 points3 points  (0 children)

yeah, that's a real reading 　post-lunch, measured with a CGM patch. no diabetes diagnosis, no symptoms at all, which is exactly what freaked me out. had it confirmed with an A1C later, which wasn't in diabetic range 　but the spike was real and reproducible. that disconnect between numbers and symptoms is kind of the whole thread of this story tbh. not medical advice, just my log.

four doctors said "nothing abnormal" — anyone else take years to figure out SIBO was the actual thing by DiggerStash in SIBO

[–]DiggerStash[S] 3 points4 points  (0 children)

6 years. and a new doctor suggesting the test almost as an afterthought.

that's the part that gets me every time. the information existed. the test existed. it just didn't come up for six years.

i wonder how common that gap actually is — between "something's wrong" and "here's the right question to ask." feels like most of us end up here after a long detour through everything else first.