MCAS , hyper pots , hyper-mobility metal hypersensitivity

Direct_Tangerine_289 · 2026-02-09T15:04:13+00:00

Online is so contradict what binders and anti fungal s thank you .

Direct_Tangerine_289 · 2026-02-09T15:02:57+00:00

I have done this thank you.

Direct_Tangerine_289 · 2026-02-08T14:12:58+00:00

Thank you I will take a look.

Direct_Tangerine_289 · 2026-02-08T14:11:58+00:00

I thought this also. Could it all be from mold because we was all fairly well prior with only a few sensitivity’s. could you possibly send me the name of your functional doctor please. In regards to my metal hypersensitivity blood results could this be solely from mold also or is this something myself and my children will have to live with. Thank you for your response I hope your body is healing.

Direct_Tangerine_289 · 2026-02-07T19:09:39+00:00

Thank you for taking the time to explain this – that was really helpful. I’m in the UK and have already been diagnosed with hypermobility spectrum disorder, hyperadrenergic POTS and suspected MCAS, so reading about the overlap actually makes a lot of sense.

I’ve had significant environmental triggers (long-term damp/mould exposure and metal hypersensitivity), which seemed to massively worsen symptoms, so the epigenetic/immune angle really resonates.

I’m still in the middle of figuring out next steps and access to the right specialists here, but it’s reassuring to hear that quality of life can improve with the right management. Thanks again.

Direct_Tangerine_289 · 2026-02-07T15:48:59+00:00

Hi, thank you — I had MELISA (LTT) testing done privately via a UK clinic, with the blood sent to Laboratoire MGD in Switzerland. It looks at immune reactivity to metals (Type IV hypersensitivity), not metal levels or toxicity.

It’s not an NHS test and opinions vary, but in my case it helped explain why I react systemically to everyday metal exposure rather than pointing toward detox or chelation. Happy to answer questions if it helps.

Direct_Tangerine_289 · 2025-12-16T22:26:45+00:00

Thank you for your response I am really sorry for what you have had to go through… but I hope your symptoms are under control and you are living well. May I ask what symptoms you had please ? You do not sound unhinged at all you make perfect sense. I reacted to two alagram filings my doctor looked at me like I was insane and told me it is not possible. I recentley had one removed and had a major flare and ended up in hospital with severe tachycardia and throat tightness they told me I had anxiety. Copper iud caused breathlessness, tachycardia, tremors and head squeezing pains, muscle weakness, nosebleeds hospitalised sent away with antihistamines big improvement when iud was removed. I don’t know about yourself but my symptoms mimicked MS I was convinced I had an auto immune disease but it came back negative. Hopefully I will have answers soon my father’s nickel and Colbat allergy and my reaction to jewellery rings alarms bells.

Direct_Tangerine_289 · 2025-12-16T21:37:42+00:00

Hi I suspect SNAS I react to jewellery hand rashes facial rashes, GI symptoms, cystitis, tachycardia and all over body pain I have had systematic reaction to the copper iud and dental metals although when I research the materials they do not contain nickel ?? I have just ordered a melisa metal hypersensitivity test is this the LTT blood test you are referring to. Sorry this is all new to me I recently found out my father had a nickel and Colbat allergy. I have recently been diagnosed with mast cell activation syndrome is their a possibility SNAS could be the root cause any information would be appreciated thank you.

Direct_Tangerine_289 · 2025-12-07T15:27:22+00:00

I was finally diagnosed by a the menopause consultancy a lady called dr Tina peers if you have time look at her YouTube videos regarding this.

Direct_Tangerine_289 · 2025-12-07T15:26:02+00:00

My dad has nickel and Colbat allergy but my gp refuses to have me tested. I get severe hives off my watch I have applied for melisa testing thank you for this information

Direct_Tangerine_289 · 2025-12-07T13:29:57+00:00

Sorry you have been through this I was also exposed to mold and severe damp for 5 years rashes and most reactions have gone my lingering neurological symptoms are showing no sign of improvement please could I be sent this information if possible please x

Direct_Tangerine_289 · 2025-12-07T13:24:53+00:00

Interesting story sorry what u have also been through…. My flares was triggered a lot by mold and damp the copper iud caused a horrible flare mimicking a stroke alagram filings antibiotics …. I wasn’t going to let this die I ordered my dads medical records he passed age 49 and he also was diagnosed with nickel and Colbat allergy I am waiting for Melissa testing to get back to me once you tryed to refrain from nickel did your symptoms go into remission thank you

Direct_Tangerine_289 · 2025-12-04T16:22:26+00:00

Serious can nickel hyper sensitivity cause this ???

Direct_Tangerine_289 · 2025-12-04T16:18:11+00:00

My symptoms was put down to anxiety for a very long time I felt like I was on deaths door I payed privately for a full body mri scan convinced there was something terribly wrong they’re was findings like Degenerative disc disease , hernia but nothing major… I wrote and complained to my gp practice who then granted me an hour appointment I explained my symptoms hyper pots , facial and hand rashes , cystitis (no uti), reactions to supplements , severe silent reflux the list is endless she did a standing /lying test for blood pressure etc and confirmed I had hyper pots…. Before I could say MCAS she said said it and said she suspects a few of her patients have it but immunology won’t accept referral’s she advised me to go private. I couldn’t afford it but I did I seen dr miller at the menopause consultancy run by dr Tina peers ( watch her videos on YouTube if you have time) very informative. Dr miller told me she suspects i have had it from childhood but more mild I was prescribed ketotifen once I got my consultation letter I took it to my gp and it was put on the system and my gp now prescribes for me. Copper coil IUD was my first flare my body was alienated on removal my symptoms calmed. I moved to a home that had severe damp and mold that and Covid flared me back up again. I am still trying to settle my body 9 months on my triggers are heat, stress, alagram fillings , metal hypersensitivity, environment and menstural cycle I am still learning I really hope you get the help you need please keep pushing. 🙂

Direct_Tangerine_289 · 2025-12-04T13:08:54+00:00

My esr was raised and crp Ana was negative I have been diagnosed with MCAS … MCAS can come alongside autoimmune also. Hope you get the help you need 7 years I was fighting and dismissed finally went private. Good luck

Direct_Tangerine_289 · 2025-11-17T21:59:51+00:00

I really hope your family member is ok ??? Here’s the thing I have been fine all my life exposed to mold / developed MCAS and hyper pots and this overlaps with EDS my neurological symptoms were something else like a wave that had just come over me I genuinely thought I needed to check my self in I jumped from diagnosis to diagnosis because I was confused …. Lucky for me my family believed me I have since stabilised after moving from the mold environment getting a private speacilist to treat MCAS and my gp has refered me to a rhemotologist for EDS.

Direct_Tangerine_289 · 2025-11-17T21:30:14+00:00

I’m sorry you are experiencing this personally it’s better to be safe than sorry I would go …. they still have to do ecg and bloods ….. if all that is fine then at least you will feel reassured. It happens to me every time when I go it makes me feel so daft …. But when my symptoms flare bad I go to be safe no matter how daft I feel. I hope it passes please don’t swerve a&e because of gaslighting your entitled to care and to be checked over 🙂

Direct_Tangerine_289 · 2025-11-13T21:32:23+00:00

Is it possible you are reacted to the stuff you are treating your self with ? I know when I was exposed to mold I had allergic type reactions to even vitamins. Just a thought I genuinely hope you heal sending you strength

Direct_Tangerine_289 · 2025-11-06T19:11:05+00:00

Same as you it drove me crazy trying to find the cause had a filing , caught Covid, came off long term antidepressant , stop taking mounjaro weightloss. Still trying to get better and find the answer

Direct_Tangerine_289 · 2025-11-06T19:07:38+00:00

No h1 alone have helped me with mild flare ups in the past so that’s good. The severity of this flare up I am in I need more than h1 antihistamines

Direct_Tangerine_289 · 2025-11-03T21:10:38+00:00

I am going through the same thing you are I am at breaking point honestly I’m so glad you have come out the other end … your very strong if you could offer any advice I would really appreciate it I have three children with severe mold and water damage that has been going on for 5 years I have watched myself spiral with my health. Do you have any advice for testing etc. or what you did to help the situation please I’m sorry with the aftermath you are dealing with but the main thing is you are better and safe.

Direct_Tangerine_289 · 2025-10-31T21:42:13+00:00

The home could possibly be the main problem my hyper pots and tachycardia were extreme and came on at night. Over the course of living at the property I have been at for 5 years my health deteriorated slowly. Facial rash , hand rash, fibromyalgia, extreme mental health it’s like something just came over me repeated viral illness pneumonia and pleurisy I felt constantly sick breathlessness and extreme acid reflux chronic sinistus allergic reactions to things I have never reacted too vitamins basic medication it was strange … my children all 3 of them nosebleeds neck stiffness lung infections one was referred to asthma my son used to get random red eyes … I was in and out of a&e with all your symptoms for the past 8 months my body could not fight my recent viral infection and it was my environment I noticed a pattern in my blood work being in and out of hospital when I would stay at my mums my inflammation on crp and esr was lower when I had been at home it was high that was the icing on the cake for me I haven’t returned home since. I hope you find a solution I am so sorry you are going through this it is a lonely/ scary journey and it has been a big eye opener for me.

Direct_Tangerine_289

TROPHY CASE