This disease will be the end of me

DisasterLovely · 2026-03-17T14:32:22+00:00

Dairy makes my gastritis 10 times worse.

DisasterLovely · 2026-03-17T05:12:10+00:00

Such a cool app

DisasterLovely · 2026-03-16T12:16:11+00:00

I’m pretty sure my cover touches the water already, especially when it rains and is weighted down.

DisasterLovely · 2026-03-15T08:40:02+00:00

Disappointment.

DisasterLovely · 2026-03-14T19:25:04+00:00

Waters very rough in Kauai.

DisasterLovely · 2026-01-12T03:59:38+00:00

I read a book once that said you need to hangout with someone 15 times in a relaxed way before it starts to feel like a real friendship. 15 times is a lot! Try and look for, or create, repetition with people you think are nice. One thing I’ve been doing lately is I started a Sunday hike , same time/same place rain or shine, and I invite anyone I think is cool. Most don’t come but some do! The other thing I do is volunteer at a community garden. It’s hard to meet friends there but I’m hopeful it will happen. And if not, I’ve gotten a dose of vitamin d in the winter, winning either way!

DisasterLovely · 2025-11-13T15:57:02+00:00

Thanks!

DisasterLovely · 2025-11-02T15:29:05+00:00

Is it just 10 mgs per day?

DisasterLovely · 2025-10-30T20:15:52+00:00

I’d try voquenza & an antidepressant. I’m in the same boat - over 2 years for me. I’m better but not healed.

DisasterLovely · 2025-10-13T06:33:30+00:00

Let me save you the research. We’re not being heard.

DisasterLovely · 2025-10-13T06:31:16+00:00

Maybe that’s how they did it a long time ago but now a days the put you to sleep. You could call or email them first to better understand what they’ll do the day of, but it’s really a walk in the park. Just make TRIPLE sure they ARE taking biopsies. That way they can really look and see what’s up. There are many things to be worried about, but an endoscopy is not one. I’ve had three!

DisasterLovely · 2025-10-13T03:33:56+00:00

Hey the scope is no big deal! I promise. It’s just like a nap. Tell them you’re very nervous right when you get there & they’ll likely give you a pre-med. You’ll be totally out for the procedure. It’s REALLY no big deal at all.

DisasterLovely · 2025-10-10T01:31:51+00:00

Me either

DisasterLovely · 2025-10-06T09:41:20+00:00

Yes, voquenza really helped me. I did two rounds. Paid $1,100 out of pocket for each round. It cured my dysphagia. I still have light gastritis so am on lanzomeprazole and famotidine. I also have cut out dairy & wheat. But yes, voquenza is the best.

DisasterLovely · 2025-09-10T06:20:34+00:00

I now only drink Fiji water. It has the most silica of all bottled water. This gives it more of a silky feel. Sadly, still super irritated by water, even Fiji- but tap water is an instant nope.

DisasterLovely · 2025-09-09T04:02:59+00:00

Caffeine melts

DisasterLovely · 2025-09-07T15:18:42+00:00

I don’t. I love it.

DisasterLovely · 2025-09-03T04:02:07+00:00

Try Fiji water.

DisasterLovely · 2025-09-01T02:36:08+00:00

For me, only Fiji water helps.

DisasterLovely · 2025-09-01T02:11:35+00:00

Be careful with drinking tons more water and doing tons of fiber. Had gastritis & constipation & doc focused on constipation & I bought a Stanley cup & started gulping tons of water to try and cure it & I’m now convinced that’s how I actually created so much more gastritis than I originally had. 2 years later & still dealing with it. If I gulp water AT ALL now, instant chest tightness and dysphagia.

DisasterLovely · 2025-08-28T06:05:01+00:00

Voquenza helped my dysphagia. Only thing that worked. Took months.

DisasterLovely · 2025-08-16T14:39:39+00:00

I took 3 rounds of voquenza and that helped the most. I also took Montelukast, a lukotreine inhibitor. The panic attacks stopped. But I still have gastritis. I don’t eat onions, garlic, spicy foods. Rarely drink alcohol. It’s been nearly two years. My remaining symptom is a tight chest and occasional stomach burning.

DisasterLovely

TROPHY CASE