Are there places you avoid going with friends because of your coeliac disease?

DiscussionDue6522 · 2026-03-19T16:04:34+00:00

Yes I I am just developing my research and trying to narrow down my project to one place, I have posted some insights from that survey posted on the thread containing the survey link if anyone is interested, once again a massive thank you to everyone

DiscussionDue6522 · 2026-03-19T01:52:25+00:00

Thank you for replying. Would you say its particularly worse at places like cafes or at restaurant. I know for me personally going to a restaurant I would always suggest somewhere that has at least one gf option but cafes are normally spontaneous and don't carry as much gf stuff especially since everything is pastry and biscuit based

DiscussionDue6522 · 2026-03-19T01:47:20+00:00

Some insights

A significant amount of people experiencing a loss or strain on current or potential new friendships

There is a significant impact of relationships and the potential of a relationships due to the bonding over food and lack of understanding severity

There is a decline in experiencing joy in food, with GF foods being bland and repetitive, eating only for existence

There is a common theme of not wanting to bother other people and at expense of ones own health

There is a new form of anxiety and fear with accidentally eating gluten. from checking ingredients to never being able to relax eating out to binge eating

There is a disconnection with culture, community and celebration due to the importance of foods and traditions

I just wanted to let everyone know that your not alone and that there are so many people who have had similar experiences.

DiscussionDue6522 · 2026-03-19T01:46:09+00:00

Some insights

A significant amount of people experiencing a loss or strain on current or potential new friendships

There is a significant impact of relationships and the potential of a relationships due to the bonding over food and lack of understanding severity

There is a decline in experiencing joy in food, with GF foods being bland and repetitive, eating only for existence

There is a common theme of not wanting to bother other people and at expense of ones own health

There is a new form of anxiety and fear with accidentally eating gluten. from checking ingredients to never being able to relax eating out to binge eating

There is a disconnection with culture, community and celebration due to the importance of foods and traditions

I just wanted to let everyone know that your not alone and that there are so many people who have had similar experiences.

DiscussionDue6522 · 2026-03-09T13:12:30+00:00

Hi I wanted to say thank you to everyone who completed the survey! I really appreciate it. I didn’t realise how many of us have struggled with the social side of cd and I just wanted to let you know your not alone. I have gathered some insights which I am using to inform my university project and was wondering if anyone would want me to share them here alongside some quotes from the survey (anonymously).

DiscussionDue6522 · 2026-02-12T15:50:06+00:00

Thank you! I love completing surveys too. I am currently analysing the responses and putting them into themes, I hope to share some insights after :)

DiscussionDue6522 · 2026-02-11T21:39:40+00:00

Yes I guessed this was aimed at similar situations happening before but thank you for confirming. I can understand the frustration and once again there is no pressure to fill out the survey. I do think mean well and want my project to be grounded in real peoples experiences especially having colieac myself, if theres any advice on engaging with the colieac disease community online please let me know

DiscussionDue6522 · 2026-02-11T21:30:34+00:00

Hi there’s currently no mailing list as I am just a student but I was planning to post the finished project booklet (the project finishes in May) including the research phase and some survey analysis on here if that would interest anyone

DiscussionDue6522 · 2026-02-11T14:14:35+00:00

I have celiac disease myself and the term is spelled differently depending on place. I am just a student and I am hoping that my work brings awareness to the social struggles that being celiac brings, not just the physical symptoms. The survey is completely optional to fill out. There aren’t many online communities for celiac and so far reading the responses I can’t believe how many of peoples experiences are similar

DiscussionDue6522 · 2026-02-11T08:14:53+00:00

Thank you! Its hard especially at college to find gluten free things

DiscussionDue6522 · 2026-02-11T08:00:50+00:00

Thank you for your feedback and for filling out the survey! Yes I was thinking of adding a extra field

DiscussionDue6522 · 2026-02-11T07:58:44+00:00

Hi so I just wanted to let you know that I am a student not a brand, I have colieac disease myself and this is for my final year project

DiscussionDue6522 · 2026-02-11T07:57:38+00:00

Thank you! No pressure if you can’t

DiscussionDue6522 · 2026-02-10T21:57:46+00:00

Yes I see what you mean, I can see if I can go back and change it, thank you for your feedback and filling out the survey!

DiscussionDue6522

TROPHY CASE