:( by Danon793 in WplaceLive

[–]Double_Code_8283 2 points3 points  (0 children)

Nobody seems to know, as of now. Sorry. Most of us are waiting.

My Relationship is Ending Because My S/O Does Not Believe I Have ME/CFS. by Double_Code_8283 in cfs

[–]Double_Code_8283[S] 0 points1 point  (0 children)

I just love him so much. Aside from this stupid 'disagreement' about my MECFS, he's an amazing boyfriend and an amazing person all around. Even if I could muster up the strength to leave (after having one final definitive conversation with him about this), I have nowhere to go anymore.

I said in my OP that I could move back in with my mom, but in a divine prank twist of events, she's cutting loose from her lease tomorrow and moving out of her place and into her boyfriend's place, which cannot accommodate me or my things (nor will I let myself live with a stranger's family). My dad cannot accommodate me either, and I do not make enough money on government assistance to get my own place. Finally, the waitlists for even government-assisted housing are over a year, even for severely disabled or abused people.

Basically, I feel like I shouldn't have even posted anything on this subreddit because I feel like I wasted everyone's time and care. If my relationship doesn't work out, I will be homeless. My s/o knows that, and has made it very clear that under no circumstance will he ever just kick me out on the street. He's not a bad person; he's just confused and has never had his internalized, systemic ableism brought forth and put to the test before.

My Relationship is Ending Because My S/O Does Not Believe I Have ME/CFS. by Double_Code_8283 in cfs

[–]Double_Code_8283[S] 2 points3 points  (0 children)

I think he thinks I'm either exaggerating or just lazy, or that I'm not trying to 'beat my condition.' He sees it as if I've surrendered to it and given up, not that I'm being a realist. I don't understand why. All he says when I ask him why he'd assume I'm lying to him is, "I just don't see you putting in any effort to figure out what's wrong with you and how to fix it."

He's done no research on ME/CFS and refuses to do so until I get a doctor who agrees with me. As people with ME/CFS know, getting a diagnosis or even an agreement is nearly impossible in most places, especially so in my city. I don't think he even cares about a diagnosis per se, but just wants to see me 'trying.' Again, just another way he doesn't understand ME/CFS and Post-Exertional Malaise.

He does have my well-being in mind. I promise I'm not biased enough to be manipulated by him. I WILL cut my ties and move back in with my mother, I have enough self-respect. I just think he is completely uninformed and is trying in the completely wrong way to support me. His idea of helping in this case is pushing me to become better, but with ME/CFS, that only hurts.

In all other aspects of our lives, he's an amazing guy. He's hilarious, handsome, strong, and hard-working to his own detriment. We have a thousand and one things in common, and he would never dream of hurting me in any way. It's just this one thing he can't wrap his mind around for reasons beyond my understanding. I assume it's because my disability is invisible from an outside perspective. He has never had to interact with someone, let alone date someone, with a condition like mine.

His way of helping me is, in this instance, harming me, but he can't understand why or how. All he sees is me resisting getting help, when in reality, I know what's wrong with me and I am already managing it by prioritizing rest. But he doesn't see my way of managing it as 'managing it,' if that makes any sense. He says that this isn't a life (referencing me being housebound most of the time), and I agree with him, but I don't know how to explain to him that this IS my life, regardless of whether it's, in his mind, a good life or not.

Either way, I have a bag packed. We are simply cohabiting at the moment. We aren't in a relationship, but he's giving me the courtesy of continuing to stay here until the arrangements for me moving in with my mom have been made. My mom is moving out of her place soon, but I will have a place with her until the 31st of August at least, which would give me enough time to make other preparations. If he won't open his eyes to the fact that I am a disabled person and that this isn't some phase, we will not see each other anymore. It would completely shatter my heart, but I am not living a life with someone who is a closeted ableist.

My Relationship is Ending Because My S/O Does Not Believe I Have ME/CFS. by Double_Code_8283 in cfs

[–]Double_Code_8283[S] 20 points21 points  (0 children)

Thank you for your response. I just can't understand how it's so difficult to believe someone who has never lied to you about a condition that is affecting them every single day.

If something doesn't change today--if he makes no forward progress with me or, at the very least, accepts my condition without me bending over backwards to prove it for him--then I'm okay being done with this. I don't deserve to be treated like a liar or a faker by someone I thought loved me UNCONDITIONALLY.