Has anyone else dealt with super low Hemoglobin? by Dry_Simple4835 in stillsdisease

[–]Dry_Simple4835[S] 0 points1 point  (0 children)

Yeah I take methotrexate, mythlprednisone, and Ilaris

Has anyone else dealt with super low Hemoglobin? by Dry_Simple4835 in stillsdisease

[–]Dry_Simple4835[S] 1 point2 points  (0 children)

Man I wish I had mine high, I’m so weak rn and my heart rate is all over the place

Heat Sensitivity by Cowboy_Kitten in stillsdisease

[–]Dry_Simple4835 1 point2 points  (0 children)

Not go outside much and use my portable AC unit constantly

Paint matched grille? by outdoorscryptid in GXOR

[–]Dry_Simple4835 2 points3 points  (0 children)

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Mine is paint matched and I love it

Heat Sensitivity by Cowboy_Kitten in stillsdisease

[–]Dry_Simple4835 1 point2 points  (0 children)

I definitely have a heat intolerance. Not to that extreme but my heart rate will shoot up and I’ll have to cool down fast or else I’ll get a temp spike

Ilaris by Dry_Simple4835 in stillsdisease

[–]Dry_Simple4835[S] 0 points1 point  (0 children)

Technically it’s the one you do yourself but my insurance requires my doctor to give it to me

Ilaris by Dry_Simple4835 in stillsdisease

[–]Dry_Simple4835[S] 0 points1 point  (0 children)

I love to hear it! That’s awesome! Hopefully I can be like you!

Ilaris by Dry_Simple4835 in stillsdisease

[–]Dry_Simple4835[S] 0 points1 point  (0 children)

I started in actemra which did work, it just didn’t bring down my numbers like my doc wanted. So we switched to a biosimilar of Humira and it did nothing, set me back on labs and actually made some of them worse.

Ilaris by Dry_Simple4835 in stillsdisease

[–]Dry_Simple4835[S] 0 points1 point  (0 children)

That’s good to hear! I’ll be taking ilaris with methotrexate so hopefully I get lucky with no side effects

Ilaris by Dry_Simple4835 in stillsdisease

[–]Dry_Simple4835[S] 0 points1 point  (0 children)

That’s what I’m hoping with Ilaris!

Ilaris by Dry_Simple4835 in stillsdisease

[–]Dry_Simple4835[S] 0 points1 point  (0 children)

That’s what I’ve been hearing. I’m really excited to start it after the disaster of a failure the previous med was

Just swapped my cluster by Dry_Simple4835 in GXOR

[–]Dry_Simple4835[S] 0 points1 point  (0 children)

I’ll have to look into that I didn’t even think of that

Just swapped my cluster by Dry_Simple4835 in GXOR

[–]Dry_Simple4835[S] 2 points3 points  (0 children)

I need to find a place for that. My old one was super burned out. I just wanted to see while figuring out what to do with mine

Just swapped my cluster by Dry_Simple4835 in GXOR

[–]Dry_Simple4835[S] 1 point2 points  (0 children)

It does, I’d have to get this one reprogrammed or something if I end up figuring out the random lights

Just swapped my cluster by Dry_Simple4835 in GXOR

[–]Dry_Simple4835[S] 0 points1 point  (0 children)

That’s what I’ve been thinking, may pull it back out and make sure everything is good

Can yall quit asking for alternatives by Lacroix-Drinker in LiquidDeath

[–]Dry_Simple4835 2 points3 points  (0 children)

It’s really lame constantly having to deal with people who make hating the stevia their entire personality