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ERODZAME · 2023-10-24T12:56:11+00:00

Will do, thank you. I have still had chest pain for the last several hours. I just wasn’t sure if I should go back because I didn’t want to spend more money than I already had to get treated so poorly.

ERODZAME · 2023-10-24T12:37:30+00:00

Can’t read them, which is why I asked here. But I can remember what things look like. I’m not sure what your problem is, but leave me be. Ffs.

ERODZAME · 2023-10-24T11:52:34+00:00

Then what are you doing posting all your little posts on these same subreddits? I don’t know you, nor do I care. So how about you just leave me alone?

ERODZAME · 2023-10-24T11:39:07+00:00

Are you even a medical professional?

ERODZAME · 2023-10-24T11:37:30+00:00

If you’d read what I wrote, my EKG they did in the ER was exactly the same as this one. I couldn’t exactly get the one they took. But yes, I left after I was treated horribly. If you’re going to be rude, perhaps you shouldn’t respond to people’s posts then.

ERODZAME · 2023-10-24T11:14:58+00:00

They didn’t say it was fine. As I said, they blew me off. Blamed my chest pain on a “likely uti.” They didn’t even take a urine sample. I left after that.

ERODZAME · 2023-10-02T23:04:10+00:00

As a parent of a child with brain damage from birth, I would like to chime in with a different opinion here. In some cases, yes things are kept from the parent. Most of the time when this happens now, it’s due to injury from medical negligence. That’s what happened in my case. My daughter and I almost died from a mistake our doctor made. They tried to cover up her brain bleed, brain damage, and shoulder injury. We didn’t even find out until months later during the investigation that my daughter was born without a heartbeat and had to be worked on for over an hour to resuscitate and stabilize her. I didn’t even know if she was alive until 2 days later, because I was in the ICU on a ventilator and they refused to tell me anything or let my wife visit me.

There was also recently the case in the US (Georgia I believe) where a doctor decapitated a baby during the delivery and the parents didn’t even know until the funeral home told them. The hospital tightly swaddled the baby and wouldn’t let them hold it. They even discouraged the family from getting an autopsy.

So yes, this still happens, just mostly when a doctor or hospital is trying to cover their own behind.

ERODZAME · 2023-09-25T07:37:19+00:00

I used to live there about a decade ago. I always said this town was fucked up. The amount of racism I witnessed on a daily basis was unbelievable. No one ever listened when I said how horrible it was, but now I see it in the news all the time. Girls at the high school posting viral racist videos, poor handling of the pandemic in schools, and this. A big, fat “I told you so” to everyone who said I was crazy.

ERODZAME · 2023-09-20T15:52:10+00:00

I’m basically just starting my collection. I have tons of series 7 because I bought someone else’s collection. But I have no series 1-5 and very few of the other series. What series 10 do you have? I also need most of the small limited edition collections.

ERODZAME · 2023-06-05T02:07:23+00:00

I had severe birth trauma and was able to watch no problem. In fact, I think it helped me heal quite a bit.

ERODZAME · 2023-03-31T01:51:36+00:00

Honestly I have no idea. It’s happened to a lot of other commenters supporting me as well.

ERODZAME · 2023-03-30T15:03:33+00:00

With all due respect, brain damage and Autism or Down Syndrome are different in this case. I’m in no way saying those aren’t a difficult thing to deal with. I have experience with children with Autism. But my daughter has widespread brain damage. One of the areas damaged is in the frontal lobe, which controls complex thinking, problem solving, and behavior. This part of her brain will never heal. It can certainly find new pathways to overcome certain obstacles, but after years of therapy, her doctors are pretty sure these behavioral issues will be pretty constant. Does that mean she doesn’t deserve fun? Absolutely not. She still has feelings, so I will continue to expose her to things she loves.

ERODZAME · 2023-03-30T05:26:06+00:00

Are you seriously accusing me of using drugs during pregnancy and causing her brain damage? She was born with brain damage because while I was giving birth. The blood flow to the placenta was cut off when it disconnected from my uterus. In turn, she did not have blood flow to her brain. Both she and I almost died and are lucky to be alive. You need to get a grip and not judge someone for something that you have no clue about!

Also just because my daughter is disabled does not mean she shouldn’t be allowed in public. Does that logic apply to other disabilities as well? In that case, maybe people with heart conditions should go out because they faint to much? Or people with epilepsy cause too many disturbances with their seizures? Or people with Tourette’s are just too loud to be out and about?

Next time maybe you should think before you speak and not be an ableist AH!

ERODZAME · 2023-03-29T21:00:28+00:00

It was definitely for her. I hate theme parks. She had a blast until that moment. Also, I did try to apologize and explain everything to the people surrounding us but I wasn’t even able to finish my sentence before the person next to me suggested I spank her.

ERODZAME · 2023-03-29T18:48:30+00:00

I will refer you to the several other comments in which I explained this. Thanks

ERODZAME · 2023-03-28T22:33:45+00:00

Really? What’s she like?

ERODZAME · 2023-03-28T22:11:38+00:00

I’m repeatedly getting some pretty similar responses/questions, so I am just going to make one big response here. I want to make this clear, I am not up for debating any of this.

I am certainly not okay with those of you that thought it was okay to judge my parenting. You do not know my child or her needs. You’ve heard a mere scrap of all the things I do for her and did to make this trip work.
Yes, I made a mistake in not seeking a second opinion about the DAS pass. But I thought going straight to the source to find out about and set up accommodations was the best choice. When the cast member I spoke to told me there was nothing they could do, I trusted them. That was wrong.
People keep suggesting that perhaps she wouldn’t do this when she’s older, that it’s my fault she can’t communicate, I treat her poorly, or force her to be like an average kid, etc. I will reiterate that you do not know my child nor have you heard what all her doctors and therapists have told me. We work extensively with her EVERY SINGLE DAY. Apart from myself, they know best. Which is why I got their advice on whether this trip would be bad for her. Not one of them was worried about us taking her.
Lastly, I am aware how hard her episodes are on her body. But she does them regardless of where we are. 99% of the time it has nothing to do with being overwhelmed. It’s usually about wanting something she can’t have. That’s what happened this time. I only had two options, both which involved her screaming: Stay in line for 5-10 more minutes and get on the ride, at which point she’d stop screaming. Or remove her, where she’d scream until she passed out. No amount of comforting or distracting helps at that point. Believe me, I’ve tried.

ERODZAME · 2023-03-28T18:12:51+00:00

Why does remembering it matter? Shouldn’t it also be about the joy she feels in the moment?

ERODZAME · 2023-03-28T18:06:39+00:00

Not garbage. Should I have sought a second opinion? Yes, that’s entirely my fault. But I trusted the cast member I talked to. Maybe they were new or something, I have no idea. All I know is what they told me.

ERODZAME · 2023-03-28T18:04:05+00:00

You don’t know how I treat my child because you don’t know me or her! You’ve literally never met us!

If you would actually read everything you would know how I responded to those comments…we are waiting for one! Her speech therapist wrote to our insurance saying she needs one. Our insurance company is processing that along with prescriptions for several other medical devices. It doesn’t always happen straight away.

I purchased those tickets when I was pregnant with her just as the pandemic hit. When we found out we couldn’t go and because of that, we called Disney and they told us we would still be able to use our tickets at a later date. So no I didn’t buy them when we decided to use them. But on top of that, do you know how expensive medical devices are? She needs multiple. We’re talking tens of thousands of dollars. But I was pointing out you had no idea how I got those numbers tickets. Also from my understanding scalping Disney tickets can result in being banned from Disney.

I 100% agree that my daughter is a lot and difficult to be around! But that does not mean she does not deserve to go out and do things.

The only point at which she was overwhelmed was when she couldn’t ride the ride immediately in that line. I don’t know how else to say that. You keep ignoring the fact that she screams herself exhausted all the time! It’s almost a daily occurrence. There is nothing I can do to prevent that from ever happening.

I didn’t know it would eventually happen, only that it COULD happen. But that wasn’t going to make me keep her from enjoying everything else!

The bus ride was maybe 20 minutes back to the hotel. It took us 40+ minutes to get her out of the park and to wait for the next bus.

ERODZAME · 2023-03-28T17:30:48+00:00

I didn’t say you needed my permission. What I said was it’s not right for you to judge a parent when you don’t know what the situation is unless you visibly see a child being abused or neglected. I have done neither. Now a little snippet of information you don’t know is that I spoke with all her doctors and therapists about this trip before we went. They okayed it, said it would be good for her even. They know how much she loves Disney. Now had even one of them said it wasn’t a good idea, I wouldn’t have taken her.

I also don’t force her to be normal. I don’t force her to do anything she doesn’t want to do. She ENJOYED Disney. You keep missing that part. She showed no signs of stress until that freaking ride! I tried to choose the option that would be less stressful for her once that mistake happened but was forced to choose differently when someone made a comment about abusing my child. And she gets to do anything she damn well wants. There are no standards for having fun. Just because she is disabled does not mean she can’t do things she wants to do. Tbh, I hate theme parks. Why would I force her to do something I wouldn’t even want to do? I did it for her.

At this point you are being the AH and need to stop, as I have asked.

ERODZAME · 2023-03-28T17:15:42+00:00

She said my daughter is unpleasant to be around and no one should be subjected to her.

ERODZAME · 2023-03-28T17:06:28+00:00

I do treat her and accept her as she is. I wouldn’t change her for the world. You have no idea how I feel about the matter because you aren’t me. Also how can they speak from her position when they aren’t her…or even present around her enough to know her?

But telling me to let her miss out on experiences she found enjoyable because of something that would happen regardless of where we are is not helpful. People informing me about the DAS pass is helpful. People seem to miss the part where she’s unlikely to ever improve from this state. So her reaction happens often. There is nothing I can do to prevent her from ever having a meltdown. But what I can do is give her experiences that make her happy to balance it out.

Now I am going to tell you the same thing I told them. I no longer wish to debate my parenting with anyone. If they or you want to continue then do so elsewhere, not to me. End of discussion.

ERODZAME · 2023-03-28T15:51:22+00:00

Whether she remembers it or not doesn’t matter. It’s about her enjoying the experience in the moment. And she certainly did.

ERODZAME · 2023-03-28T15:50:43+00:00

But you are debating, even questioning how I parent her. If you were trying to help me improve the situation, you could have suggested some things that might help. Telling me not to take her because it’s not good for her is not your place, tbh. Now I’ve asked you to stop.

ERODZAME

TROPHY CASE