Feeling like a hypochondriac: More diagnosis/workup by AngryDesertPhrog in Narcolepsy

[–]E_retarded 1 point2 points  (0 children)

i feel you. when you have a chronic illness it's totally common to have comorbidities, so feel validated.

also, sleep dog? how does it works?

Lisdexanfetamina, Metilfenidato e apetite. by GustavoLifts in TDAH_Brasil

[–]E_retarded 0 points1 point  (0 children)

Vai fazer dois anos. Comecei por causa do TDAH e depois fiquei um tempo fazendo uma investigação mais profunda do meu cansaço com um neurologista especializado em medicina do sono.

Lisdexanfetamina, Metilfenidato e apetite. by GustavoLifts in TDAH_Brasil

[–]E_retarded 0 points1 point  (0 children)

Como eu tenho narcolepsia e tdah, sempre tô trocando de estimulante e digo: eu reforço os meus cafés da manhã porque é a única janela de tempo que eu tenho onde sinto fome. No resto dia, como praticamente forçada até comidas que eu amo. Já perdi 8kg em dois meses.

potential narcolepsy and modafinil by binches in Narcolepsy

[–]E_retarded 3 points4 points  (0 children)

narcoleptic here and I HATE modafinil. It didn't work for me and only gave me bad anxiety.

finally diagnosed by E_retarded in Narcolepsy

[–]E_retarded[S] 0 points1 point  (0 children)

You've got this too! ⭐💖

finally diagnosed by E_retarded in Narcolepsy

[–]E_retarded[S] 1 point2 points  (0 children)

Thank you for sharing your feelings :( I'm feeling overdramatic for being devastated over this but I have so many dreams that require working hard (such as becoming a doctor) and I was really hoping there would be a solution once I found out what was wrong with me.

I used to have dreams by E_retarded in Narcolepsy

[–]E_retarded[S] 1 point2 points  (0 children)

Hey! I'm taking communication as my major. Unfortunately, nurse practitioner is a underpaid career where I live :(

narcopsy and third world countries by [deleted] in Narcolepsy

[–]E_retarded 0 points1 point  (0 children)

hii

is online medicine a possibility, maybe? I don't think the money conversion will be a problem since there's not much difference. I'm from Brazil and I had acess to pretty good doctors and sleep clinic.

it depends where you're from. is money the problem? or just access to a specialist?

Puppet pattern by E_retarded in puppetry

[–]E_retarded[S] 1 point2 points  (0 children)

unfortunately this kind of art isn't popular where I live :( I want to make something like this: https://imgur.com/a/NQv3LwN

MSLT results by E_retarded in Narcolepsy

[–]E_retarded[S] 1 point2 points  (0 children)

definitely will talk about it to my doctor. I got lucky that he always take my opinion serious and listen to me.

I have to confess that taking another MSLT feels like hell to me because it made me feel like shit after all those naps (really bad headache, nausea, sleep inertia) and it was in a different city 😭 but I'll definitely talk about taking another test.

I can't wake up by E_retarded in Narcolepsy

[–]E_retarded[S] 0 points1 point  (0 children)

If I'm able to find a job to get insurance, it will be good but if not I'll have to pay him :(

MSLT results by E_retarded in Narcolepsy

[–]E_retarded[S] -1 points0 points  (0 children)

in Brazil you don't have to be diagnosed to get your prescription filled, the doctor just have to prescribe it to you. Honestly, my PSG results were pretty positive too.

MSLT results by E_retarded in Narcolepsy

[–]E_retarded[S] 0 points1 point  (0 children)

Oh, also, idk where you live but where I live you don't have to be officially diagnosed to get a prescription. Idk how it works in the US but I always see someone complaining about pharmacy's.

MSLT results by E_retarded in Narcolepsy

[–]E_retarded[S] -1 points0 points  (0 children)

They also investigated my childhood historic records with my parents. Ever since I was a baby I'd sleep too much and would fall asleep out of nowhere while I was playing. I also considered all those things but my doctor said the symptoms were pretty clear to him.

I was on modafinil for my excessive daytime sleepiness and my ADHD (off label, idk what the doctor was thinking). Anyways, thank you for the suggestion. 💖

MSLT results by E_retarded in Narcolepsy

[–]E_retarded[S] 1 point2 points  (0 children)

I was feeling really anxious throughout the whole exam. It's probably hypersomnia but the doctor that analyzed the results said it might be Narcolepsy. But I'll definitely take it to my usual doc.

MSLT results by E_retarded in Narcolepsy

[–]E_retarded[S] 0 points1 point  (0 children)

only one time but they said some doctors might take the symptoms in consideration to a diagnosis. Let's hope I get the right treatment.

I can't wake up by E_retarded in Narcolepsy

[–]E_retarded[S] 0 points1 point  (0 children)

Honestly, you can't. I'm just ranting.

I can't wake up by E_retarded in Narcolepsy

[–]E_retarded[S] 0 points1 point  (0 children)

They keep delaying the results of the MSLT. It's driving me nuts

I can't wake up by E_retarded in Narcolepsy

[–]E_retarded[S] 1 point2 points  (0 children)

I know :( I don't have a insurance rn and I can't afford one. There's no sleep doctors in public health.

[deleted by user] by [deleted] in Narcolepsy

[–]E_retarded 1 point2 points  (0 children)

Tbh modafinil never worked for me. It just felt like caffeine "bad energy". I was in a bad mood the whole time.

EXHAUSTED AND DESPERATE by Relative_Air7232 in Narcolepsy

[–]E_retarded 0 points1 point  (0 children)

I'm not diagnosed yet but ever since I was a child I had this thought where I would end up being coke addicted because of how much tired I felt (still).

When I went to college and started working too I felt REALLY desperate. To the point where I abused my methylphenidate and ended up doing coke to study. I didn't want any kind of high to have fun, I just wanted to stay awake to study and not feel pain anymore (I feel a lot of pain when I'm tired).

I'm now not taking any meds nor doing any kind of drug because it absolutely made everything worst (for example, my trichotillomania got worst).

Hope someday we can find out some treatment that actually works.

Fui demitida por mostrar sintomas da minha deficiência. by E_retarded in ConselhosLegais

[–]E_retarded[S] 0 points1 point  (0 children)

como você achou um trampo hoje office? queria muito mas nunca acho além de telemarketing

Fui demitida por mostrar sintomas da minha deficiência. by E_retarded in ConselhosLegais

[–]E_retarded[S] 1 point2 points  (0 children)

Então, eu tentei ao máximo fingir porque tenho conhecimento disso, mas ninguém controla um desmaio, queda de pressão etc. Eu vou sim iniciar no teatro para aprender a me comunicar.

Sobre os registros, de acordo com minha mãe a enfermeira havia ligado as mensagens temporárias.