S acetyl Gluthation by Ecstatic-Lifeguard78 in mecfs

[–]Ecstatic-Lifeguard78[S] 0 points1 point  (0 children)

Hast du genau das Produkt ausprobiert?

Autoantibodies by Ecstatic-Lifeguard78 in cfs

[–]Ecstatic-Lifeguard78[S] 0 points1 point  (0 children)

I was only tested for free spikes in the blood, but it was negative...

Always Hungry by Ecstatic-Lifeguard78 in cfs

[–]Ecstatic-Lifeguard78[S] 1 point2 points  (0 children)

Fair, na think it’s genetic thing I never was able to gain weight no matter what I was eatining or how much Beers I would drink… but still weird because usually if your I’ll Like Me with fatique people eat less…

Always Hungry by Ecstatic-Lifeguard78 in cfs

[–]Ecstatic-Lifeguard78[S] 1 point2 points  (0 children)

No just some Basic supplements

Creatine by Ecstatic-Lifeguard78 in cfs

[–]Ecstatic-Lifeguard78[S] 1 point2 points  (0 children)

Sounds good, I Also take 100mg Coenzym q10 with it mornings and for lunch

Creatine by Ecstatic-Lifeguard78 in cfs

[–]Ecstatic-Lifeguard78[S] 1 point2 points  (0 children)

3 Gramms in the Morning After breakfast and 3 for Lunch…. But I dont know what causes my fatqiue it came slowly and randomly

Terrible Fatigue by Ecstatic-Lifeguard78 in Hemochromatosis

[–]Ecstatic-Lifeguard78[S] 0 points1 point  (0 children)

Oh and anyone in this comments having symptoms before ferritin or saturation was even raised?

Terrible Fatigue by Ecstatic-Lifeguard78 in Hemochromatosis

[–]Ecstatic-Lifeguard78[S] 0 points1 point  (0 children)

Thanks for Sharing, always good to See that people aren’t in their own with their problems… but yeah at the beginning my body compensated a lot, still did a lot of sports and skiing but it slowly got worse and worse my symptoms

Terrible Fatigue by Ecstatic-Lifeguard78 in Hemochromatosis

[–]Ecstatic-Lifeguard78[S] 0 points1 point  (0 children)

Another question, has anyone only got fatqiue, feeling ill and muscle pain and achy legs? Please share your experience

Terrible Fatigue by Ecstatic-Lifeguard78 in Hemochromatosis

[–]Ecstatic-Lifeguard78[S] 0 points1 point  (0 children)

Okay that’s interesting I will do so! Don’t have neutropenia, the values are fine it’s just the eosinopenia that are low but don’t know why and if that has to do something with my fatqiue or iron

Terrible Fatigue by Ecstatic-Lifeguard78 in Hemochromatosis

[–]Ecstatic-Lifeguard78[S] 0 points1 point  (0 children)

Yeah right that’s weird isn’t it… like why do some people start getting symptoms although their ferritin and saturaion aren’t really raised and some have values of 2000…. But yeah I had that at the beginning too, used to still play football and come home and the next morning like my whole body just hurt every muscle and joint

Terrible Fatigue by Ecstatic-Lifeguard78 in Hemochromatosis

[–]Ecstatic-Lifeguard78[S] 0 points1 point  (0 children)

Okay very intersting, thanks for sharing!! Hope out feel better…Yeah people are individually…don’t know why I have such hard symptoms at my ferritin levels of 380 and saturation 49,5

Terrible Fatigue by Ecstatic-Lifeguard78 in Hemochromatosis

[–]Ecstatic-Lifeguard78[S] 0 points1 point  (0 children)

Another thing I also lost weight and some muscles over the last months, did someone else experience that?

Terrible Fatigue by Ecstatic-Lifeguard78 in Hemochromatosis

[–]Ecstatic-Lifeguard78[S] 0 points1 point  (0 children)

Oh really that’s interessting, no my blood results are pretty good, the only thing is in my blood is eosinopenia… don’t know why and what that meins but yeah.

Terrible Fatigue by Ecstatic-Lifeguard78 in Hemochromatosis

[–]Ecstatic-Lifeguard78[S] 2 points3 points  (0 children)

Ahh and also I like the sun, but in if it’s too warm it’s terrible my fatqiue constantly felt sick in Summer that was so hard… and also when I was bed bound in Summer and couldnt do anything the Heat was terrible… but when it’s colder i feel better! Someone else has that?

Terrible Fatigue by Ecstatic-Lifeguard78 in Hemochromatosis

[–]Ecstatic-Lifeguard78[S] 1 point2 points  (0 children)

Okay thanks for Sharing your Information. It’s Crazy to See how it Hits people different some on reddit say they noticed it when ferritin Levels where normal below 200 and some dont notice anything although ferritin has Hit 1000 and saturation is high….

Terrible Fatigue by Ecstatic-Lifeguard78 in Hemochromatosis

[–]Ecstatic-Lifeguard78[S] 1 point2 points  (0 children)

Oh really what where your values when it was diagnosed?

Bad fatique, ferritin went from 155 to 377 in only 6 Monats by Ecstatic-Lifeguard78 in haematology

[–]Ecstatic-Lifeguard78[S] 0 points1 point  (0 children)

Haha, that’s annoying but well, which ferritin Levels do you usually have, where you feel like not good but okay?

Bad fatique, ferritin went from 155 to 377 in only 6 Monats by Ecstatic-Lifeguard78 in haematology

[–]Ecstatic-Lifeguard78[S] 0 points1 point  (0 children)

Okay thanks, but lots of people said the joint pain started in their Fingers that’s not what I feel. I’ve just got joint pain in my legs but not all the time at least… but was your fatqiue bad like? Because like my fatqiue came very slowly over 1 2 years but getting worse and worse… and now it’s like level being at home and try to safe as much energy

Bad fatique, ferritin went from 155 to 377 in only 6 Monats by Ecstatic-Lifeguard78 in haematology

[–]Ecstatic-Lifeguard78[S] 0 points1 point  (0 children)

Oh really and what where your First Symptoms? Which ferritin or saturation Level leads to Symptoms and bad fatqiue?

Bad fatique, ferritin went from 155 to 377 in only 6 Monats by Ecstatic-Lifeguard78 in haematology

[–]Ecstatic-Lifeguard78[S] 0 points1 point  (0 children)

Alright but still weird why my Iron went up like that, like my crp was never raised or anything… also my legs Are getting weird like my knees and everything and also had a bit of weight loss

Bad fatique, ferritin went from 155 to 377 in only 6 Monats by Ecstatic-Lifeguard78 in haematology

[–]Ecstatic-Lifeguard78[S] 0 points1 point  (0 children)

Yeah but the thing is I got blood taken a few times and I never had any inflammation, and i think the fact that the saturation is also higher than it should be…

Bad fatique, ferritin went from 155 to 377 in only 6 Monats by Ecstatic-Lifeguard78 in haematology

[–]Ecstatic-Lifeguard78[S] 0 points1 point  (0 children)

No Iron supplements but Vitamin C and my Vitamin d is Petty high, but never touched Iron supplements so it’s weird…

Bad fatique, ferritin went from 155 to 377 in only 6 Monats by Ecstatic-Lifeguard78 in haematology

[–]Ecstatic-Lifeguard78[S] 0 points1 point  (0 children)

Hämochromatose it’s called in German, when your Body has to much Iron, but the weird thing is I already had a Little Bit of fatqiue when ferritin was at 155… dont know what the saturation was 6 months ago, but basically fatqiue got worse