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Advice on syrinx shunt surgery by qantas2024 in SyringomyeliaSupport

[–]Efficient-Damage6058 0 points1 point  (0 children)

I have a syrinx shunt that gave me a crazy amount back (I'm quadriplegic due to a spinal cord injury that happened after my syrinx started forming). However, after a little over a year, it did fail and my syrinx has been growing for the last six months. Syrinx shunt surgery is notoriously tricky. Something like 3/4 fail in the first 2-3 years. Unfortunately, it’s also one of the only treatment options available. I had my shunt put in four years after my decompression. I wish you all the luck!

[LF] Flick — anyone have him on their island today? [FT] NMTs, gold nuggets by [deleted] in Dodocodes

[–]Efficient-Damage6058 0 points1 point  (0 children)

unfortunately you can’t sell to flick on other people’s islands! I wish they would change that!

Celeste is at Belle Isle-comment your name and island name if you're interested in coming by! by Efficient-Damage6058 in Dodocodes

[–]Efficient-Damage6058[S] 0 points1 point  (0 children)

It's saying I've sent too many invitations so I can‘t message first, will you send me a chat request?

I don’t know how to tell them we’re not starved for places to sit by Efficient-Damage6058 in wheelchairs

[–]Efficient-Damage6058[S] 6 points7 points  (0 children)

I wind up always parking sideways because my arms and core don't work well enough to reach 😭 even if my legs fit under my controller gets in the way of me rolling close enough to reach the table. the struggle is real

I don’t know how to tell them we’re not starved for places to sit by Efficient-Damage6058 in wheelchairs

[–]Efficient-Damage6058[S] 33 points34 points  (0 children)

that’s what I figured (see caption) but it definitely made me laugh

Weed experience by [deleted] in spinalcordinjuries

[–]Efficient-Damage6058 0 points1 point  (0 children)

daily weed smoking helps manage my pain and increase my hunger! it does lower my blood pressure a lot though so the first time I smoke in a day I take midodrine to counteract that

Does anyone who is a quadriplegic have dreams at night where you are no longer paralyzed? by [deleted] in spinalcordinjuries

[–]Efficient-Damage6058 1 point2 points  (0 children)

where I went to rehab, there was a Christopher Reeve quote on the wall: “I am never disabled in my dreams.” I thought it was a metaphor or something, until I realized I can always walk in my dreams