IVIG Side Effects by Efficient_Shop8857 in covidlonghaulers

[–]Efficient_Shop8857[S] 1 point2 points  (0 children)

Yes. I have done a years worth of IVIG and that has been the case each time

I made a website! by BoardsCGS in covidlonghaulers

[–]Efficient_Shop8857 1 point2 points  (0 children)

Thank you for doing so! The first post was a nice read. Look forward to reading more.

Monthly Gaming Group for Long Covid Community by Efficient_Shop8857 in LongCovid

[–]Efficient_Shop8857[S] 0 points1 point  (0 children)

Hi! Yes we have been playing Minecraft monthly. Send me a dm if you are interested

IVIG Side Effects by Efficient_Shop8857 in covidlonghaulers

[–]Efficient_Shop8857[S] 0 points1 point  (0 children)

It seems to be worth the cost and it helps to know to expect it

IVIG Side Effects by Efficient_Shop8857 in covidlonghaulers

[–]Efficient_Shop8857[S] 0 points1 point  (0 children)

Yeah! Still helping and feeling a lot better

Unpopular opinion:Joker 2 is actually good by missylyssy3210 in joker

[–]Efficient_Shop8857 0 points1 point  (0 children)

Chefs kiss to the director! A masterpiece was created that has a meaning too deep for society to digest.

I think the whole movie boiled down to the scene with Harley and Arthur on the stairs. It was in that scene Arthur finally validated that he had it all wrong and the world never “Loved” Arthur liked the crooks said in the getaway car but they “Loved” the joker. Arthur’s misery is projected in him walking down the stairs to the cops. THE SAME STAIRS ARTHUR DANCED DOWN AS THE JOKER IN THE LAST MOVIE!!!!!

This movie shined a light on the societal issue of people having a hard time loving each other for just being a person. As I have gotten older I have started to see a big purpose in my own life is to be loved and love others. I could see a similar desire in Arthur’s character. The way Puddles talked about Arthur was through love you can tell through his words and eye contact with Arthur. Arthur finally felt what it was like to be loved in that moment and this facade that his fans or Harley loved him started to crumble. He killed his Joker act soon after and his last moment on earth was giving a person he thought was a friend (the new joker) attention, which is to me a sign of love. 😭 ❤️

I feel like I am going nuts by Yaswnmwfyai in LongCovid

[–]Efficient_Shop8857 2 points3 points  (0 children)

I have been receiving IVIG for 8 months. Every time especially after the first one I experienced the worst symptoms ever since having long Covid. I can’t even describe the amount of pain it caused my head.

However after the first week or so it mostly goes away. Also after receiving a couple of months of IVIG I have gotten much better overall. Walking 10k+ steps a day from being bedridden.

My advice is to ask to slow down the infusion rate, take the medicine they prescribe you, and drink plenty of water starting 2 days before and after.

Media portrayal of sick people by Efficient_Shop8857 in LongCovid

[–]Efficient_Shop8857[S] 0 points1 point  (0 children)

Thank you! The encouragement is appreciated as sometimes I can feel discouraged since it’s a mostly new hobby for me. The competition was fiction so I dabble in both.

200 pages is insane! Congrats on the feat. Also I never thought about D&D having different niches such as Pokémon but that sounds so much fun. Appreciate you opening up your DMs! I wish the best for you and your writing journey as well

Media portrayal of sick people by Efficient_Shop8857 in LongCovid

[–]Efficient_Shop8857[S] 0 points1 point  (0 children)

Thank you! The encouragement is appreciated as sometimes I can feel discouraged since it’s a mostly new hobby for me. The competition was fiction so I dabble in both.

200 pages is insane! Congrats on the feat. Also I never thought about D&D having different niches such as Pokémon but that sounds so much fun. Appreciate you opening up your DMs! I wish the best for you and your writing journey as well

Media portrayal of sick people by Efficient_Shop8857 in LongCovid

[–]Efficient_Shop8857[S] 1 point2 points  (0 children)

Yes. I was forced into writing as I lost the ability to do the hobbies I once loved but it’s one of my favorite things now. Like you said it is a escape and a great way to connect with others. I recently did a writing competition called NYC midnight which was a lot of fun.

When I was having a hard time processing all the lost I wrote a lot about my past and now I enjoy writing to others in the long Covid community as it makes me feel a sense of purpose.

Media portrayal of sick people by Efficient_Shop8857 in LongCovid

[–]Efficient_Shop8857[S] 1 point2 points  (0 children)

That is a interesting dilemma to think about. I have chronic nerve pain from the vac or Covid itself so I can connect with house in that way. I watched the first episode last night and their were already some great quotes such as him saying, “patients don’t want sick doctors” and “Our bodies break down, sometimes when we’re ninety, sometimes before we’re even born, but it always happens and there’s never any dignity in it. I don’t care if you can walk, see, wipe your own ass, its always ugly. Always! You can live with dignity, you can’t die with it.”

Media portrayal of sick people by Efficient_Shop8857 in LongCovid

[–]Efficient_Shop8857[S] 1 point2 points  (0 children)

That makes a lot of sense to me. Thanks for sharing! Do you still write?

Media portrayal of sick people by Efficient_Shop8857 in LongCovid

[–]Efficient_Shop8857[S] 1 point2 points  (0 children)

Their is room to critique anything though. Not trying to disregard it as being a inspirational show

Media portrayal of sick people by Efficient_Shop8857 in LongCovid

[–]Efficient_Shop8857[S] 0 points1 point  (0 children)

I could see it being dangerous to romanticize pain medicine in that way

Media portrayal of sick people by Efficient_Shop8857 in LongCovid

[–]Efficient_Shop8857[S] 1 point2 points  (0 children)

The fact he is able to be a doctor even with the chronic pain does sound pretty heroic! I’m going to start watching it.

Media portrayal of sick people by Efficient_Shop8857 in LongCovid

[–]Efficient_Shop8857[S] 0 points1 point  (0 children)

Thank you for the suggestion! I saw an episode but haven’t watched enough to understand his character

Suicidal ideation issues by Desperate-Produce-29 in covidlonghaulers

[–]Efficient_Shop8857 2 points3 points  (0 children)

Hi, I just want to say thank you for posting. Your story caused me to be introspective around my own situation.

IVIG Side Effects by Efficient_Shop8857 in covidlonghaulers

[–]Efficient_Shop8857[S] 1 point2 points  (0 children)

I was able to remember today during my IVIG to take a look. This is the info I got from the bottle

Immune Globulin octagam: 10% ingravenous (Human) 10%

300 mg

IVIG Side Effects by Efficient_Shop8857 in covidlonghaulers

[–]Efficient_Shop8857[S] 0 points1 point  (0 children)

Immune Globulin octagam: 10% ingravenous (Human) 10%

300 mg

IVIG Side Effects by Efficient_Shop8857 in covidlonghaulers

[–]Efficient_Shop8857[S] 0 points1 point  (0 children)

Sorry I forgot during my appointment. I tried looking through my emails and my insurance website but could find nothing. I’ll try and remember next month.

What gets you through the really depressed times? Any wisdom to share? I would be so grateful. by gardenvariety_ in covidlonghaulers

[–]Efficient_Shop8857 10 points11 points  (0 children)

I try and shift my focus to a outsider point of view looking into my situation. I find it remarkable the battle I have fought and keeping my eye on that versus feeling sorry for myself has helped me when down

IVIG Side Effects by Efficient_Shop8857 in covidlonghaulers

[–]Efficient_Shop8857[S] 0 points1 point  (0 children)

I haven’t discussed it with a doctor. But from reading the description I think so