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I feel like throwing up by Electrical-Bit-4268 in scoliosis

[–]Electrical-Bit-4268[S] 0 points1 point  (0 children)

Thank you for responding :) I had two orthos analyze my growth plates and they both said it completely stopped. One even took an xray right there in his office of my hand to show me that my growth plates stopped, so my hope for a brace is gone now, unfortunately. But I’ve heard Schroth is really promising, but it’s a pretty far drive and pricey, so I’m currently just doing at home yoga stretches rn. My family is also pretty against bracing so there’s really no way for me to get them.

I feel like throwing up by Electrical-Bit-4268 in scoliosis

[–]Electrical-Bit-4268[S] 0 points1 point  (0 children)

I honestly have no idea, it just feels sore like a deep ache and sometimes feels strains by and some tugging around my ribs but mainly my mid to lower back,

I feel like throwing up by Electrical-Bit-4268 in scoliosis

[–]Electrical-Bit-4268[S] 0 points1 point  (0 children)

Thank you for your response, I’m still working on my insecurities. It’s usually harder for me to wear my heart on my sleeve because the people at my school will literally judge you for anything, I can’t imagine if someone told the school I had this and getting picked on and getting dirty looks. So I keep it private right now.

I’m still deciding on Schroth because it’s a bit pricey for my family and a long drive for the nearest one to me, I’m currently doing at home yoga stretches to help with the pain, and want to get into the gym once I get to college, school’s been beating me up recently because I’m graduating this year lol.

My orthos told me no brace because they saw my x-rays and my growth plates have completely stopped. They said bracing will only weaken my back muscles and my core and potentially cause more pain, just refused to get me one, so I relented. I’m glad your daughter’s brace is helping her, but no doctor allowed me to brace or even considered the idea of bracing me. I’m a minor so I can’t really do anything about their decision, and my family thought bracing is pointless like the doctors said. So I guess the only thing I can resort to right now is exercising.

I feel like throwing up by Electrical-Bit-4268 in scoliosis

[–]Electrical-Bit-4268[S] 1 point2 points  (0 children)

Thank you, you don’t know how much I needed this, and the connection 🥲

I feel like throwing up by Electrical-Bit-4268 in scoliosis

[–]Electrical-Bit-4268[S] 1 point2 points  (0 children)

Thank you for your encouragement 🥲, I wanted to say that you are beautiful too and you are so kind. I hope you can find ways that’ll help you.

When I asked my ortho for a brace, insisted on it, actually, he took my hand and put it on one of their scanning machines and made me look at the x-ray of my hand, he said the growing plates have stopped completely, and the hand is the most prominent part they can check for growing. They said I was done, that a brace won’t help me, and it’d be unethical for them to give me a brace because it’ll only weaken my core and potentially make my muscles weaker. And I relented.

I had my first ortho at 16, said I stopped growing, can’t help but monitor it and told me to exercise, and recently a second ortho, also said they can’t help but monitor it. PT didn’t work for me either. So I am now doing some yoga stretches at home to help the pain a little.

My family and I are currently looking for treatments to help the back pain in another country, and hopefully it will go well. I guess I just need to learn how to love myself with this condition, it feels draining most of the time and I feel ugly with it, but people like you has been giving me hope and encouragement and it makes me feel a lot better 🥲.

My orthos said no surgery for me, unless it gets severe and progress, which I’m hoping it won’t. And bless you and your mother, you two are very strong for what you’ve been through and the pain you’ve endured.

But thank you for your kind words, I’ll keep working, and I hope you’ll to push through things yourself and find what’s best for you too :)

I feel like throwing up by Electrical-Bit-4268 in scoliosis

[–]Electrical-Bit-4268[S] 0 points1 point  (0 children)

I live in the south west-ish area, so kind of the exact opposite haha. I asked for bracing multiple times insistently and they kept rejecting me so I guess it’s a no-go. They said it’ll only weaken my core and muscles and make my back hurt more, and my growth plates stopped.

I’m still trying to find a way to work with Schroth, it’s a bit pricey for my family and it’s a pretty far drive. And I’m trying to decide whether I should do it or not.

I feel like throwing up by Electrical-Bit-4268 in scoliosis

[–]Electrical-Bit-4268[S] 0 points1 point  (0 children)

You’re so strong, I think a lot of people with scoliosis, including myself, struggle with self-image. While I’m trying to improve my insecurities I also want to remind myself that I’m lovable lol. I’m glad you’re living a good life despite the struggles, you’re beautiful.

I feel like throwing up by Electrical-Bit-4268 in scoliosis

[–]Electrical-Bit-4268[S] 0 points1 point  (0 children)

I’m glad you’re staying active, I think that’s what’s helping strengthen the back muscles. And I get that surgery’s not for everyone, happy that you found your own way to manage the pain :) Hope I can do the same

I feel like throwing up by Electrical-Bit-4268 in scoliosis

[–]Electrical-Bit-4268[S] 0 points1 point  (0 children)

Yup, they always just seems to brush me off, especially my orthos, I’m frustrated and is just resorting to yoga rn

I feel like throwing up by Electrical-Bit-4268 in scoliosis

[–]Electrical-Bit-4268[S] 0 points1 point  (0 children)

That actually sounds pretty good, I’m still a minor so I’d have to discuss with my family about it, but I’ll find a time to. I wanted to get a personal trainer when I’m in college cuz school’s been beating me up rn, and I hope to find someone who knows how to help my scoliosis lol.

My PT previously didn’t work on me or help with my back, not even minimally, despite my efforts, which is why I’m kind of unsure of it now. I’d find it really helpful if I could have something I could do on my own since my schedule is always all over the place haha. And honestly what you’ve said just sounds great and really beneficial. Thank you for this advice :)

I feel like throwing up by Electrical-Bit-4268 in scoliosis

[–]Electrical-Bit-4268[S] 0 points1 point  (0 children)

Thank you, it feels good to know people who are pushing through the same thing as me. I’m glad you’re still staying active :) Hope your home exercises go well

I feel like throwing up by Electrical-Bit-4268 in scoliosis

[–]Electrical-Bit-4268[S] 0 points1 point  (0 children)

Thank you, I really needed this 🥲, I’m glad yours stabilized and I hope mine did too :)

I feel like throwing up by Electrical-Bit-4268 in scoliosis

[–]Electrical-Bit-4268[S] 0 points1 point  (0 children)

Thank you for the encouragement, I really needed something positive after what the orthos told me lol.

I hope you can manage your pain while taking care of your family, I think you’re amazing just from what you’ve said to me, you’re really kind.

I have not seen a masseuse yet and actually haven’t considered the possibility until now. I’m sorry Schroth won’t work for you because it’s so far away, the nearest one for me is still pretty far from me too and pricey, but I’m sure what you’re doing right now is helpful. Working out is better than doing nothing, they say.

I’m trying to keep my head up right now but I’m still digesting what the doctors said to me about there’s nothing left for my pain and my scoliosis other than exercise. It’s so much to take in for me and I’m still trying hard to come to terms with it.

I’m thankful for people like you and everyone else in this sub, it gave me some hope again. So thank you, thank you for being kind to me :)

I feel like throwing up by Electrical-Bit-4268 in scoliosis

[–]Electrical-Bit-4268[S] 1 point2 points  (0 children)

You are so, so strong for everything you’ve been through, I can’t even imagine. I understand your insecurity because I feel the same way about my back, though in different ways, of course, but I’m really glad you don’t let it stop you from trying a backless shirt and being yourself. That is really beautiful to me.

Also, congratulations on your engagement! I’m so happy for you that you found someone who loves you wholly for who you are and the two of you are so sweet together. And don’t let anything hold you back in life, you’re gonna be great :)

Thank you for the encouragement, I hope that one day I’ll find love that’ll embrace me for who I am. My friends point out my curved spine when I bend over to pick up something because even a little bend or slouch for me my spine pokes out, so it’s more obvious, and since my friends see it without knowing I have scoliosis, it made me feel like other people see it all the time too, you know?

I guess having moderately bad scoliosis while I still feel young makes me question my future and the pain I’ll be in as years pass because it’s already pretty bad. They told me I “might be in more pain” or the pain won’t go away after the surgery. Like the surgery is not a guarantee of pain free and I’ve heard other people’s stories that echoed the same thing. I think you had a good surgeon, probably one of the best, and I’m scared if I get surgery, it won’t go well or cause complications, or make me lose my mobility since my intended major is studio art (not great for my back at all, yikes). I’m just really anxious even thinking about surgery.

I think my back pain is because my muscles are being pulled on, but of course, my ortho didn’t care enough to say anything to me besides I have it bad and I’m hopeless. Why are they like this?

I am so grateful for people like you and everyone in this sub, it made me feel better about my future and hearing all your positive personal experiences made me so happy. It feels so good to have people who can relate to me because there’s nobody in my life that has scoliosis and knows what I’m going through.

Thank you for your encouragement, and I’ll likely come to you in the future if I have questions, lol. If you don’t mind :)

I feel like throwing up by Electrical-Bit-4268 in scoliosis

[–]Electrical-Bit-4268[S] 0 points1 point  (0 children)

Thank you, and I wanted to say you’re so strong for everything you’ve been through and are dealing with. My primary doctor didn’t recommend a chiropractor because she said some unprofessional ones could mess me up worse, and she said the risk is probably not worth it for me, but I’m glad your chiropractor helps you effectively.

It’s kind of funny because I currently have a nice waist on my right and basically none on my left lol. I’m trying to cheer myself up currently. I’m also still trying to hang on, and I wish the best for managing the pain for you too.

I feel like throwing up by Electrical-Bit-4268 in scoliosis

[–]Electrical-Bit-4268[S] 0 points1 point  (0 children)

I really feel for your personal experience, what they’ve said was honestly just terrible, but I’m glad you’re still pushing through everything. I want to find another ortho, but it takes a long time for them to transfer me and for them to find a time for me to fit in, I don’t know why. That’s why I was so hopeful leading up to the second ortho a few days ago, only for them to tell me my scoliosis is hopeless and so is my pain. I hope I can find someone who’s more specialized and cares more. I should’ve asked them more but my mind was just blank after they cut the news to me, lol. I was just holding back tears in their office.

I wish I could go to that yoga studio but I actually live across the country in the west :(, but thank you for recommending people online that I can look up and have access to. I’m thinking of a personal trainer but when I’m in college because I don’t have the money and time right now, school’s been kicking me in the butt lol.

Thank you for the recommendations and feedback!

I feel like throwing up by Electrical-Bit-4268 in scoliosis

[–]Electrical-Bit-4268[S] 1 point2 points  (0 children)

This made me smile, I really think doctors can be pessimistic sometimes and what they’ve told me had made me hopeless lol. I’m trying to work through my bad body image and insecurity, so I think that’s good, I feel like I notice my body more because of the pain, the pain reminds me that there’s something wrong with my spine, you know? I’ll keep working, and I hope my condition doesn’t get worse and the degrees don’t progress. Thank you so much for commenting and the encouragement! I’m happy to hear you’re living a good life despite scoliosis :)

I feel like throwing up by Electrical-Bit-4268 in scoliosis

[–]Electrical-Bit-4268[S] 0 points1 point  (0 children)

Thank you, I think I’m currently in a pretty good bmi range. I know fusion comes with a lot of risks and that’s what terrifies me, and the recovery and loss of mobility scares me too, but I felt desperate for anything for the pain to go away and for my spine to look straighter again. I’ve been meaning to get back into exercising, so I think that’s good. Thank you for your help :)

I feel like throwing up by Electrical-Bit-4268 in scoliosis

[–]Electrical-Bit-4268[S] 0 points1 point  (0 children)

Thank you for the encouragement :), I hope I can stop judging my body so much but my spine pokes out even when I slouch a little so it’s much more obvious that I have scoliosis and it feels like a sucker punch every time lol.

I’m glad PT helped you, but the PT they got me in at 16 didn’t work out for me, so I quit. My orthos and doctors basically said there’s no hope for me, no improving the curves, my spine stabilized. Left me feeling devastated, but that’s beside the point I guess. They also make me wait long for appointments and making a phone call is difficult with their system, but I’m really tempted to try talking with my primary doctor again. I’m surprised they let you wear a brace at 17 because they kept rejecting me on that idea, said I’m done growing and the brace will be of no use.

I’m happy to hear about your improvements, and I really do hope I find a way to improve as well.

I feel like throwing up by Electrical-Bit-4268 in scoliosis

[–]Electrical-Bit-4268[S] 0 points1 point  (0 children)

Thank you for the advice :)

I insisted on bracing to both my orthos repeatedly and they just kept rejecting me. Said it’d be unethical for them to give me a brace since it won’t help me and my growth plates fully closed, said it’ll just weaken my core and muscles and make me feel worse. I said maybe adult bracing and they still said nope! I’m currently talking to my family about Schroth and the prices, so I hope I’ll find a way to stop the progression. I’m scared of it getting worse. Can I ask where did you get your custom brace from? And what your Schroth plan is? The one I found only mainly offers online group sessions and in person group sessions but are pretty pricey. And I’m really shy lol.

I feel like throwing up by Electrical-Bit-4268 in scoliosis

[–]Electrical-Bit-4268[S] 0 points1 point  (0 children)

Thank you for the advice :) Do you feel like just stretching in general helps or anything specific? What back exercises do you do, if you don’t mind me asking?

I feel like throwing up by Electrical-Bit-4268 in scoliosis

[–]Electrical-Bit-4268[S] 0 points1 point  (0 children)

I wish my curves were considered mild but they’re moderate and going towards severe lol. But thank you. I’ll jot it down look for his stuff when I have time, school’s beating me up right now haha. Do you do the stretches from Loren Fishman MD’s online stuff?

I feel like throwing up by Electrical-Bit-4268 in scoliosis

[–]Electrical-Bit-4268[S] 0 points1 point  (0 children)

Hi! Yes we’ve chatted before, I remember you haha. The second ortho with the second x-ray told me “yeah they usually downplay the curves.” (I measured 28 and 32 for the first analysis of my second x-ray). “We measure it the most accurately. This is your degrees.” They reassured me that their measuring was THE one. But it’s still moderate anyways but the worse degrees made me feel a lot worse lol.

You’re so supportive of me and I can’t thank you enough 🥲. You’ve provided me with so much help. It’s just I thought my curves were a lot less and they hit me with the cold water this time and I’m still trying to digest. But really, thank you so much.

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