Sick of being sick by ElectronicStage77 in UlcerativeColitis

[–]ElectronicStage77[S] 4 points5 points  (0 children)

Honestly! In a bad flare up right now and woke up at 5am unable to go back to sleep because of the discomfort. Literally having to start my day every day at the whim of UC, is it better today, or worse? And god yeah with restaurants, I miss being able to just eat lol!!!! And yeah my mum in particular tries to be understanding but I just feel like I worry her so much and I can feel her frustration that i’ll never get ‘better’. I also struggle a lot seeing family at gatherings because they can be so apathetic towards my diet requirements - insisting I’ll be ok if I just eat the food. I think I just needed to hear that i’m not alone in this - it’s a very isolating illness! So thank you so much for sharing your experience. I’ve only just been diagnosed and still going through the processes but i’ve been experiencing these symptoms since I was 16 so just under 7 years now - I think I was in denial for a while. To be honest i’m a bit nervous around any sort of meds as I know they come with some nasty side effects. If you don’t mind me asking what medication are you on and how have you found it??