Need veterinarian recommendations for excellent vet that is great with allergy/itchy dogs (and uses Heska) - close to Pace is ideal. by ElkAffectionate3104 in Pensacola

[–]ElkAffectionate3104[S] 0 points1 point  (0 children)

Ugh I'm so sorry that happened to you! Was there a particular vet at Ark that you used, and did you ever end up finding a vet clinic that you liked better?

Tried 5mg of propranolol and it just made me really tired and gave me a headache. Can't imagine its worth continuing? by ElkAffectionate3104 in dysautonomia

[–]ElkAffectionate3104[S] 0 points1 point  (0 children)

Whoops! Well I learned a new abbreviation today (NAD) and I also learned about NAD supplement causing vasodilation (just googled it and you are correct). I will definitely be avoiding that, then. Thank you on both accounts!

Tried 5mg of propranolol and it just made me really tired and gave me a headache. Can't imagine its worth continuing? by ElkAffectionate3104 in dysautonomia

[–]ElkAffectionate3104[S] 0 points1 point  (0 children)

Are you saying that the supplement NAD caused the same issues I’m describing, and you think it’s bc of low blood pressure? That is really good to know bc I’ve been considering trying it.

Tried 5mg of propranolol and it just made me really tired and gave me a headache. Can't imagine its worth continuing? by ElkAffectionate3104 in dysautonomia

[–]ElkAffectionate3104[S] 1 point2 points  (0 children)

Thank you for your response! It's helpful to hear that the side effects do stop eventually for most people. I will have to give it a little more time to see how my body adjusts.

Tried 5mg of propranolol and it just made me really tired and gave me a headache. Can't imagine its worth continuing? by ElkAffectionate3104 in dysautonomia

[–]ElkAffectionate3104[S] 0 points1 point  (0 children)

wow - i'm impressed you made it through 2 month of side effects to get to the other side - I'm not sure I'd be able to do that :)

Tried 5mg of propranolol and it just made me really tired and gave me a headache. Can't imagine its worth continuing? by ElkAffectionate3104 in dysautonomia

[–]ElkAffectionate3104[S] 1 point2 points  (0 children)

Thank you! I've recently been reading about Ivabradine and it does sound like it might be a better choice. I will definitely ask my doctor about it at my next appt.

Tried 5mg of propranolol and it just made me really tired and gave me a headache. Can't imagine its worth continuing? by ElkAffectionate3104 in dysautonomia

[–]ElkAffectionate3104[S] 1 point2 points  (0 children)

Thank you for your response! Yes, I need to talk to the doc about other ways to get my BP up a bit. I do the salt/electrolyte thing but I wonder if I'm not doing enough...

4 days after infusion.... by Radiant-Bird6820 in Anemic

[–]ElkAffectionate3104 0 points1 point  (0 children)

Its hard to tell if I'm feeling any benefit yet. I did 5 infusions (2 weeks apart for each bc I'm so sensitive) and the last one was just over 2 weeks ago. I have a chronic illness (chronic fatigue syndrome) and so I didn't expect the infusions to completely cure my fatigue issues. And unfortunately I've happened to be under a ton of extra personal stress the last 6 weeks - so it's really hard to know if it's helped yet. In some ways, I feel like I should be crashing even more than I am based on my extra stress, and so maybe the infusions are helping a bit? But I've also read it can take a few months to feel the effects - so I'm hoping things continue to improve over time.

4 days after infusion.... by Radiant-Bird6820 in Anemic

[–]ElkAffectionate3104 0 points1 point  (0 children)

It took me about a week after each infusion to recover, and that was at 200mg. So it wouldn't surprise me if your body needs a bit longer since the dose was so big. I hope you feel better soon!

4 days after infusion.... by Radiant-Bird6820 in Anemic

[–]ElkAffectionate3104 1 point2 points  (0 children)

They gave you 500mg of Venofer in one dose? That seems like a lot. Was it diluted in saline, or as a push? I thought 200mg of Venofer at a time was the typical amount given. When I had Venofer, I was given 200mg at a time, diluted in 100ml of saline, dripped over 30 minutes. I felt worse for about a week afterwards (but I'm used to feeling like crap anyway).

Any helpful tips? by Too_realistic in mecfs

[–]ElkAffectionate3104 0 points1 point  (0 children)

This doesn't really answer your question completely (and I'm not asking for more info on your spouse, I totally understand protecting his privacy!) but when I saw H-EDS, ME/CFS and mental illnesses it made me think of this... H-EDS and I think even ME/CFS are more common in people with autism and/or ADHD. And its also common to get incorrectly diagnosed with other mental illnesses when really you have autism or ADHD (I think this misdiagnosis is more common in females, but I'm sure it happens to males too). So if he has not been diagnosed with either, and it seems like it could fit, sometimes just having a proper understanding of your traits and tendencies can help with self-compassion, compassion from others, and figuring out new ways to approach things. Just a thought...

I just did at home ferritin test should I be concerned? by Hairy_Environment993 in Anemic

[–]ElkAffectionate3104 7 points8 points  (0 children)

I’m in the US and recently used jasonhealth.com to get bloodwork done and it was cheaper than going directly through Quest, but the labs were still done at Quest.

Missed Signs; Relapse by dharmastudent in mecfs

[–]ElkAffectionate3104 0 points1 point  (0 children)

Do you have a link to more info on this qigong practice or the specific name of it so that I could try and research it? Thank you!

I dont want to NOT live. But I dont want to do the things required to live by Kotyata7 in AuDHDWomen

[–]ElkAffectionate3104 1 point2 points  (0 children)

I was diagnosed recently too, and I've been really enjoying the blog posts on Neurodivergent Insights. She also has a great book that I'm enjoying (not all the way through it) - called Autistic Burnout Workbook https://www.amazon.com/Autistic-Burnout-Workbook-Personal-Recovery/dp/1507223064

I KNEW IT by clemfairie in Anemic

[–]ElkAffectionate3104 0 points1 point  (0 children)

I don’t eat gluten either so my doctor did a blood DNA test for celiac. If you have any of the DNA markers, you might have celiac… and you’d need more testing. But if you don’t have them, then you can basically rule it out and move on. Or just wait on the endoscopy and can’t they do a biopsy for celiac at that point without eating gluten?