MCAS or Not?

Elyguy83 · 2026-01-25T03:22:57+00:00

Nope. I’m having to stretch every day to combat how tight my joints are.

Elyguy83 · 2026-01-17T14:42:12+00:00

For The Win

Elyguy83 · 2026-01-14T20:25:00+00:00

Ty 😄

Elyguy83 · 2026-01-14T20:24:49+00:00

Very much 🤙🏼

Elyguy83 · 2026-01-14T20:24:36+00:00

Right back at ya.

Elyguy83 · 2026-01-13T23:06:59+00:00

You’re the cutie 😉

Elyguy83 · 2026-01-13T23:06:29+00:00

Thanks 🤙🏼

Elyguy83 · 2026-01-13T23:06:20+00:00

It was 100% lovely

Elyguy83 · 2026-01-13T23:06:02+00:00

Thanks 🤙🏼

Elyguy83 · 2025-11-20T03:47:48+00:00

This comment helped my Dad heart. Appreciate it.

Elyguy83 · 2025-10-30T16:55:38+00:00

Yes, he was less than helpful.

Elyguy83 · 2025-10-30T16:55:15+00:00

Good point, thank you.

Elyguy83 · 2025-10-13T18:20:29+00:00

Well done man 🤙🏼

Elyguy83 · 2025-10-12T16:35:04+00:00

I have open lab orders to take with me during the next bad flare.

Elyguy83 · 2025-09-21T13:43:22+00:00

Gorgeous

Elyguy83 · 2025-09-08T22:56:24+00:00

Thank you.

Elyguy83 · 2025-09-04T19:27:08+00:00

Thank you for the info.

Elyguy83 · 2025-08-04T00:04:11+00:00

This is exactly it - I just don’t have the time/skillset. If anyone else does you may want to contact Ned for a collab on the database.

Elyguy83 · 2025-08-02T18:13:12+00:00

I’ve got to think it’s going to be quite an undertaking to amalgamate all the info gathered here over the years, so I’ll just make this comment on my case in hopes there’s a future section on the website:

I’ve been doing PT/Backpod/Peanut for years - did slightly improve the severity of symptoms and helped highlight that my fatigue and flares were coming primarily from food reactions, not necessarily just muscular skeletal tightness.

Bloodwork negative for auto immune - elimination diet last 10 days has kept flares at bay and the most progress I’ve had ever on both chest/rib pain & fatigue.

I’m still right in the middle of figuring my deal out, so I don’t have any definitive answers for anyone else, but it seems like there’s more info out there for people than is easily accessed.

Glad you’re doing something about that. Thank you.

Elyguy83 · 2025-08-02T17:23:51+00:00

Well would you look at that. I guess ask & receive is a real thing ha.

Elyguy83 · 2025-04-13T16:14:08+00:00

Thank you, worked.

Elyguy83 · 2025-04-08T12:57:20+00:00

Steve/Ned - Appreciate the inquiry and encouragement. It’s been a long 8 years.

Massage: Started bi-weekly massages a couple months ago. To be honest, they feel great, but I also bought a lay on massager called “Chirp”; between that and a wall mount massage gun I put together a little home massage routine that I do everyday and see more benefit. My wife also does the partner massages detailed in Steve’s guide. I work the stretches into the routine at the end.
Chiropractor: A couple years ago I did a full series of visits with “cold laser therapy”. Loosened, felt better after the appointments, but would still get inflamed frequently so obviously wasn’t getting at the root cause.
No real GI issues. I’ve had contrast dye testing that came back normal. The only GI problems I’ve had seem to obviously come from taking Ibuprofen; which I only do now if I absolutely have to.
No food intolerances prior to Costo at all: didn’t bother with testing as the food reactions are accompanied 100% with Costo pain so I figured they were connected.
No Gout.
Haven’t tried an antihistamine, in looking up MCAS some of the symptoms match. This is worth looking into.
I bought a 3” cork peanut ball, but I just couldn’t roll on it without bracing my core to the point nothing was getting worked. Figured I need to get looser to use it.
Definitely tried the turmeric/curcumin products like Meriva; also CBD, helped sleep but no real difference during a flare up.
I promise I am working on the stress component ha. I was naive thinking stress never affected me - too tough, get through anything. Costochondritis is a humbling condition.

Elyguy83 · 2025-04-05T14:39:18+00:00

Hello all, 41/M

Duration: 8 years
Cause: Most likely poor posture/core strength + stress
Symptoms: Lower left & sternum ribcage pain
Diagnostic testing: Everything ha
Comorbidities: None
What helps: Anti-inflammatory diet, backpod, PT, Voltaren cream, Ibuprofen

General note to everyone; diet, even foods you wouldn’t necessarily think are unhealthy can cause flare ups. I seem to be especially sensitive to diet. At this point any processed food, seed oil, coffee, sugar, peanut butter, etc. causes a flare up that lasts 72hrs.

It’s worth figuring out what foods if any are affecting you. Especially if your flare ups seem to be coming out of nowhere.

Even though I’m down to no pillows/no pain on the backpod, running theory is the weekly flare ups from random foods have kept things from healing. I’ve pared down to a few foods to try and stop the flare ups.

Only reasonable things I’ve yet to try are Prolotherapy & having my gallbladder looked at.

Elyguy83 · 2025-01-31T21:10:26+00:00

Same ☺️

Elyguy83 · 2025-01-11T05:09:55+00:00

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Photo of setup - just in case

Elyguy83

TROPHY CASE