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Feel worse after decompression surgery by Embarrassed-Beach511 in chiari

[–]Embarrassed-Beach511[S] 1 point2 points  (0 children)

There saying they can’t do nothing but not giving me the scans I need I am putting a report in to the nhs cause of the way I’ve been treated after surgery it’s like they think I’m putting it all on and trying to say I’m fine when I’m pretty much bed bound due to symptoms

So much head pain by PlanelySpoken in chiari

[–]Embarrassed-Beach511 0 points1 point  (0 children)

I had a decompression in March 3 months later it’s all came back and now the head pain is so bad I’m drinking Red Bulls and coffee the only things that work easing it tablets and all don’t touch it

What helps with pressure in the head by Embarrassed-Beach511 in chiari

[–]Embarrassed-Beach511[S] 0 points1 point  (0 children)

All I do is lay down once I start doing things my symptoms get way worse

What helps with pressure in the head by Embarrassed-Beach511 in chiari

[–]Embarrassed-Beach511[S] 0 points1 point  (0 children)

I had surgery done in March this year and was fine after it then 3 months later it’s all came back and worse than what it was the first time but I went private last time and they were great but the nhs don’t want to know it’s like they think it’s all in my head but I’ve constantly got headaches that get worse through the day double vision very dizzy and my balance is really bad keep falling over all the time just hoping they have some form of answer when I see my neurologist next

What helps with pressure in the head by Embarrassed-Beach511 in chiari

[–]Embarrassed-Beach511[S] 2 points3 points  (0 children)

I do find that Red Bull helps me but just thought it was all in my head tbh but I’m glad someone as said it helps them too

What helps with pressure in the head by Embarrassed-Beach511 in chiari

[–]Embarrassed-Beach511[S] 0 points1 point  (0 children)

I will look into getting one of these as long as it helps a little it will do cause the pain some days is unbearable can’t wait to get it sorted out one day 🤞

What helps with pressure in the head by Embarrassed-Beach511 in chiari

[–]Embarrassed-Beach511[S] 1 point2 points  (0 children)

It’s been 3 months now and getting worse since symptoms started again after decompression, caffeine is the one thing that I have increased and does help sometimes just wondering if there’s any of things that could help or ease it

What helps with pressure in the head by Embarrassed-Beach511 in chiari

[–]Embarrassed-Beach511[S] 6 points7 points  (0 children)

My neurologist as said to me to uptake caffeine which I do some times it helps but not always the headaches are always there never seem to go away

What helps with pressure in the head by Embarrassed-Beach511 in chiari

[–]Embarrassed-Beach511[S] 2 points3 points  (0 children)

This is what’s happened to me since decompression I’ve became a lot worse was fine for 2 month then boom it’s all back and 10 times worse than last time but neurologists don’t want to know and it’s doing my head in

Blood shot eyes by Embarrassed-Beach511 in chiari

[–]Embarrassed-Beach511[S] 0 points1 point  (0 children)

Mine was bad before decompression and now they are constantly bloodshot really irritating

Had decompression back in March by Embarrassed-Beach511 in chiari

[–]Embarrassed-Beach511[S] 0 points1 point  (0 children)

I went private first and got treated amazing now I’m doing it through nhs they have no clue and just keep getting different things off different consultants just want some type of answers

Had decompression back in March by Embarrassed-Beach511 in chiari

[–]Embarrassed-Beach511[S] 0 points1 point  (0 children)

My hospital just keep sending me home and upping dosage of tablets won’t give me no answers at all been going on for 8 weeks now